Recherche et essais cliniques

The FSHD Society drives global research efforts to accelerate breakthroughs in understanding, treating, and ultimately curing FSHD. We are here to connect you to the latest scientific advancements, clinical trials, and opportunities to participate in shaping the future of FSHD care. Explore our resources to stay informed, engage with groundbreaking studies, and contribute to a world without FSHD.

Pipeline de développement de médicaments

Discover therapies in development targeting FSHD at their root cause. Our Drug Development Pipeline tracks promising treatments from preclinical studies to clinical trials, offering hope for future therapies. Learn how these innovations could transform care for individuals living with FSHD.

Explore the Pipeline

Réseau de recherche sur les essais cliniques

Collaboration accelerates progress. The Clinical Trial Research Network connects researchers and institutions worldwide to standardize protocols, share data, and streamline trial recruitment. Join a network dedicated to advancing FSHD science.

Learn about the Network

Formation aux essais cliniques

Understanding clinical trials enables informed participation. Access guides, FAQs, and webinars explaining trial phases, eligibility, and what to expect from the trial. Knowledge helps bring you closer toward contributing to FSHD breakthroughs.

En savoir plus

Essais et études en cours

Find active FSHD clinical trials and observational studies near you. Our updated directory includes trial locations, objectives, and enrollment criteria. Your participation could help bring treatments closer to reality.

Find Trials

Mises à jour de la recherche

Stay ahead with the latest FSHD research news. From peer-reviewed publications to conference highlights, we curate updates that matter most to the community. Science moves fast—stay informed.

Read the Latest