Welcome to the British Columbia Chapter

The British Columbia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

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  Cheryl Hooge

  Cheryl is proud to co-direct the FSHD BC Chapter. Her daughter was diagnosed with a spontaneous case of FSHD at the age of 16, and this experience sparked Cheryl’s dedication to learning as much as possible about the disease. She stays informed by reading literature and connecting with others affected by FSHD to share insights and support.

  Cheryl believes the FSHD community is an invaluable resource for patients, families, and caregivers, and her passion for building connections led her to help strengthen the local FSHD community in British Columbia. As treatments are being developed, Cheryl is focused on ensuring access to clinical trial sites, hoping to bring one to the area in the future. She is committed to supporting those affected by FSHD and continuing to grow the community.

  Contact Cheryl directly ou visitez le site British Columbia Facebook page.