Welcome to the Colorado/New Mexico Chapter

The Colorado/New Mexico chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

Rencontrer l'équipe

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  Kurt Spiegel

  Kurt was diagnosed with FSHD at the age of 53 after experiencing muscle weakness and atrophy that led to a search for answers. As someone who had lived an active lifestyle as an endurance athlete, the progression of the disease deeply affected all aspects of his physical activities.

  Now unable to work, Kurt is focused on partnering with the FSHD Society to provide education, share insights, and offer support to FSHD patients and caregivers. His goal is to help others live the best life possible despite the challenges of FSHD.

  Contact Kurt directly ou visitez le site Colorado/New Mexico Facebook page.