Columbus Walk & Roll to Cure FSHD 2026
2026 Columbus Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who […]
The Columbus chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.
Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.
Heather Kalista is from Westerville, Ohio, and became involved with the FSHD Society in 2016 when FSHD impacted her family. Grateful for the support and connections they found, Heather is now focused on helping others in the community. She is committed to being a source of information and support for those facing similar challenges.
With a strong belief in the importance of hope, Heather is excited to work with the FSHD Society to help others as they work toward treatments for FSHD. She looks forward to continuing her efforts to make a difference for those affected by the condition.
Contact Heather directly ou visitez le site Columbus Facebook page.
While Heather is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contacter Beth Johnston, chef de la direction des bénévoles pour savoir comment vous pouvez avoir un impact et vous impliquer.
2026 Columbus Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who […]