Welcome to the Los Angeles Chapter

The Los Angeles chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

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  Sixto Garcia

  Sixto is the chapter director for the Los Angeles chapter. Diagnosed with FSHD at 17, he had been experiencing symptoms since the age of 4. Although FSHD has been part of his life for many years, Sixto believes it hasn’t taken away his humanity or his ability to make an impact. He has learned to navigate the challenges of the condition while staying focused on his goals and making a positive difference in his community.

  As chapter director, Sixto is dedicated to supporting others who are living with FSHD. He is passionate about sharing his personal experience and the lessons he’s learned to help others feel motivated. Through his work, Sixto hopes to inspire hope and resilience, showing that it is possible to face challenges head-on and build a brighter future.

  Contact Sixto directly ou visitez le site Los Angeles Facebook page.