Welcome to the Pacific Northwest Chapter

The Pacific Northwest chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

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  Selina Lai

  Selina has been an active member of the FSHD community for over 10 years, supporting fundraising efforts in both the Los Angeles area and the Pacific Northwest. With years of experience as a community leader, she is committed to expanding the Pacific Northwest Chapter and connecting with those affected by FSHD in the region. Having several family members diagnosed with the condition, Selina is passionate about advocacy, education, and research, believing these efforts will lead to effective treatments in the near future.

  Before recently retiring to Washington State, Selina worked in Nutrition, Dietetics, and Education. She spent 15 years in leadership roles in Rancho Palos Verdes, CA, while raising her two sons, Thomas and Andrew. Now living in Gig Harbor, WA, with her husband, Russell, she enjoys playing tennis, cooking, reading, and traveling. Selina is dedicated to continuing to build and strengthen the Pacific Northwest Chapter and supporting others in the community.

  Contact Selina directly, visit the Pacific Northwest Facebook page, or check out the Pacific Northwest Board to view recent newsletters and chapter updates.