Welcome to the Sacramento Chapter

The Sacramento chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

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  Paul Miller

  At the age of 16, Paul was diagnosed with FSHD, and he is now 62. Throughout his life, he has maintained a positive outlook and found many ways to adapt to the condition. While he now uses a power wheelchair for outdoor activities and a wheeled walker inside, he remains active and independent.

  Paul’s current passion is photography, which allows him to express his creativity and capture the beauty around him. Despite the challenges of FSHD, he finds joy in his hobby and uses it as a way to connect with others and share his unique perspective.

  Contact Paul directly ou visitez le site Sacramento Facebook page.