Welcome to the San Diego Chapter

The San Diego chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

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  Amy Bekier

  Amy Bekier’s journey with FSHD has inspired her to advocate for others facing similar challenges. After FSHD began affecting her and her family, she adopted the motto, “I can no longer sit and cope but must get active and hope.” When Amy moved to San Diego, she became both a national Board member and the San Diego Chapter Director of the FSHD Society, where she helps support others living with the condition.

  Before focusing on FSHD advocacy, Amy had a successful career as an insurance agent and Chartered Life Underwriter. She is also an award-winning artist who works with soft pastels and oil. When she could no longer use her right arm, Amy taught herself to paint with her left hand. In addition to her artistic pursuits, Amy enjoys modified recreational golf and is a proud member of the Bernardo Heights Country Club.

  Contact Amy directly ou visitez le site San Diego Facebook page.