Welcome to the Virginia Chapter

The Virginia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

Rencontrer l'équipe

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  Mollie Garrett

  Mollie Garrett, diagnosed with FSHD in February 2024, joined the FSHD Society immediately and began attending monthly online meetings. In April 2024, she attended a patient education day and met others with FSHD, which led to her involvement in Capitol Hill Day in May 2024.

  Through the FSHD Society, Mollie has gained hope and a supportive community. As Co-Director of the FSHD Society Virginia Chapter, she is passionate about helping others live their best lives and looks forward to welcoming new members to the community.

  Contact Gary & Mollie directly ou visitez le site Virginia Facebook page.

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  Gary Lauck

  Gary Lauck was diagnosed with FSHD1 in November 2018. Soon after, he joined the ReSOLVE study at Virginia Commonwealth University, where he worked with the dedicated research staff and learned more about the disease. Determined to be part of the solution, Gary helped start the Virginia chapter of the FSHD Society, aiming to grow the community and support others affected by FSHD.

  Originally from a small town in West Virginia, Gary retired from the Navy in 2018 after nearly 30 years as a helicopter pilot. He now lives in Virginia Beach with his wife and two children.

  Contact Gary & Mollie directly ou visitez le site Virginia Facebook page.