Welcome to the Western PA Chapter

The Western Pennsylvania chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

Nous vous apportons notre soutien, nous partageons les ressources locales et nous vous tenons informé des dernières recherches et des soins les plus récents. Que vous soyez nouvellement diagnostiqué ou que vous viviez avec la FSHD depuis des années, nous sommes là pour vous soutenir, à chaque étape de votre parcours.

Rejoignez votre section locale et apprenez comment nous pouvons vous aider dans votre parcours avec la FSHD.

Rencontrer l'équipe

• 

  Mark Christman

  Mark and his wife, Renee, have been navigating the challenges of FSHD together for more than 30 years. From the beginning, when Renee’s parents objected to Mark’s proposal because they feared his disease, to raising three children while juggling careers, their deep commitment to one another has kept them strong through every challenge. Their bond has been the foundation of their journey with FSHD.

  Diagnosed with FSHD as a teenager and using a power wheelchair for 20 years, Mark is committed to supporting others affected by the disease. A retired attorney from Pittsburgh, he vividly remembers the first time he met another person with FSHD at an FSHD Society meeting in 2014. That moment gave him hope and inspired him to start the Western Pennsylvania Chapter. Mark is dedicated to fostering a strong community and providing resources that help support individuals and families affected by FSHD.

  Contact Mark directly ou visitez le site Western Pennsylvania Facebook page.