Rencontrez les dirigeants de l'Alliance mondiale pour la FSHD

  • Fabio Figueiredo

    Fabio Figueiredo

    Abrafeu - Brazilian Association for Facioscapulohumeral Dystrophy

  • Eduardo Silveira

    Eduardo Silveira

    Abrafeu - Brazilian Association for Facioscapulohumeral Dystrophy

  • Sylvie Genet

    Sylvie Genet

    AFM-Téléthon France FSHD patient group and FSHD Europe

  • Sylvie Jaricot

    Sylvie Jaricot

    AMIS FSH Association

  • Ria de Haas

    Ria de Haas

    Dutch Neuromuscular Disease Association (Spierziekten Nederland)

  • Kees van der Graaf

    Kees van der Graaf

    Dutch Neuromuscular Disease Association (Spierziekten Nederland) and FSHD Europe

  • Pierre Laurian

    Pierre Laurian

    Fondation DUX and AMIS FSH

  • Neil Camarta

    Neil Camarta

    Fondation FSHD Canada

  • Macarena Díaz Ubilla

    Macarena Díaz Ubilla

    FSHD Chile

  • Baisheng Ning 宁栢晟

    Baisheng Ning 宁栢晟

    FSHD-China Patient Advocacy and Support Organization

  • Sheila Hawkins

    Sheila Hawkins

    FSHD Europe

  • Lora Chun

    Lora Chun

    FSHD Finlande

  • Lauri Pirinen

    Lauri Pirinen

    FSHD Finlande

  • Emma Weatherley

    Emma Weatherley

    Fondation mondiale de recherche sur la FSHD

  • Alexandros Giovas

    Alexandros Giovas

    FSHD Greece

  • Manav Goel

    Manav Goel

    FSHD India Foundation

  • Tali Maron

    Tali Maron

    FSHD Israël

  • Haviva Ner-David

    Haviva Ner-David

    FSHD Israël

  • Annalisa Alimandi

    Annalisa Alimandi

    FSHD Italia APS

  • Stefania Bertucci

    Stefania Bertucci

    FSHD Italia APS

  • Tomoyuki Nakata

    Tomoyuki Nakata

    FSHD Japon

  • Tereza Viglašová

    Tereza Viglašová

    FSHD Slovakia

  • George Pollock Jr.

    George Pollock Jr.

    Société FSHD

  • Hector Ricardo Gerpe

    Hector Ricardo Gerpe

    FSHD-Spain

  • Rajeshri Badiani

    Rajeshri Badiani

    FSHD UK

  • Mitsuru Sasaki-Honda

    Mitsuru Sasaki-Honda

    The Japan Muscular Dystrophy Association, FSHD group

  • Gerda Brown

    Gerda Brown

    Fondation de la dystrophie musculaire d'Afrique du Sud

  • Hanne Skovgaard

    Hanne Skovgaard

    Jensen Muskelsvindfonden

  • Lene Lebech

    Lene Lebech

    Muskelsvindfonden

  • Marieke Verbij

    Marieke Verbij

    Spierziekten Nederland

  • Fabiola Maria Bertinotti

    Fabiola Maria Bertinotti

    UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare

  • Micaela Doni

    Micaela Doni

    UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare

  • Maria Giovanna Tortora

    Maria Giovanna Tortora

    UILDM-FSHD - Unione Italiana Lotta alla Distrofia Muscolare