Marcher et rouler pour guérir la FSHD

When we move together, progress moves faster.

Walk & Roll to Cure FSHD brings communities across North America together to fund research, raise awareness, and remind families living with FSHD: you’re not doing this alone.

A Movement Made Up of a Thousand Moments

Every Walk & Roll is local; built by volunteers, families, and friends. But the impact is national. When you show up in your city, you’re joining a bigger wave of support that pushes research forward and grows the community that surrounds families living with FSHD.

We fund progress: every dollar helps accelerate research and move promising work closer to treatments.

We grow awareness: every team page, post, and conversation expands understanding of FSHD.
We show up for families: in person and online—so no one feels isolated in this diagnosis.
We build momentum: one event inspires the next, city to city, season to season.

Find Your Walk

Find your Walk & Roll community
From coast to coast, local Walk & Roll events bring the FSHD community together. Use the map to find an event near you—or join virtually from anywhere. Map below!

Don’t see a location near you?
You can still be part of the movement: start a new Walk & Roll, host a DIY fundraiser, or register as a virtual participant and fundraise from home.

	Title	Category	Address	Description	Link

New this year:

Orange credit card pouch with FSHD Society logo.

Kickstart your fundraising with a self-donation (and get a thank-you prize!)
Add a self-donation when you register to jumpstart your page and lead the way for your supporters. As a thank-you, you’ll receive a small prize.
Self-donations are optional, but they’re one of the fastest ways to build early momentum—and show others you’re all in.

Additional fundraising information can be found here.

Les Marcher et rouler pour guérir la FSHD is focused on raising funds to end FSHD. Led by dozens of dedicated volunteers and supported by a small staff, these events take place across the U.S. and Canada.

Additional fundraising information for Participants can be found HERE.

Additional fundraising information for Team Captains can be found HERE.

Intéressé par le parrainage d'une marche et d'une course ?

Soutenez une grande cause tout en mettant en valeur votre entreprise dans la communauté ! Les sponsors de la Marche et du Roulage contribuent à faire progresser les traitements et la guérison de la FSHD.

To explore sponsorship opportunities, please click the below button. Questions: please contact FSHCommunity@Fshdsociety.org.

Voir les possibilités de parrainage

Walk & Roll : Histoire et communauté

Nous avons commencé la campagne en 2018 avec seulement 5 événements. Cette communauté de féroces FSHDers à travers l'Amérique du Nord continue de célébrer des événements Walk & Roll réussis année après année. Depuis le début de la campagne, la communauté a versé plus de $4,5 millions pour financer des recherches essentielles et des programmes d'éducation et de soutien aux patients.

Nous avons hâte de vous voir au Walk & Roll cet automne !

Max Adler, ambassadeur de la Marche nationale pour la guérison de la FSHD 2024

Max Adler a créé l'équipe Mighty Max parce qu'il a vu sa mère, Lisa, et sa grand-mère Ruth lutter contre la dystrophie musculaire FSH. Déterminé à faire tout ce qu'il pouvait pour que personne n'ait plus jamais à vivre cela, il a joint ses forces à celles de la FSHD Society et a décidé de faire partie de la solution.

Merci à nos sponsors nationaux !

This is how momentum is made: one fundraiser, one team, one walk at a time.