Ressources complémentaires

Living with FSHD can get complicated. There are lots of things you need to think about, on top of managing your health and symptoms, and everyday life. Read through the resources below to find more information on some commonly searched topics.

Équipement adapté

Discover tools for daily living to assist with maintaining independence and comfort.

Care Coordination

Connect with specialists for comprehensive, personalized, and easier-to-navigate care.

Autosoins de l'aidant

Maintain your well-being with resources for support and resilience.

Ressources financières/juridiques

Navigate financial and legal issues with expert advice and tools.

Planification familiale

Make informed decisions about family with accurate information and support.

Vous cherchez une ressource locale ?

Il existe des sections dirigées par des bénévoles dans plus de 30 localités ! Entrez en contact avec la section la plus proche de chez vous pour rencontrer des voisins et des amis qui vivent également avec la FSHD.

Your local Center for Independent Living may be able to help:

Trouvez votre section locale