{"id":40940,"date":"2024-07-12T11:31:26","date_gmt":"2024-07-12T16:31:26","guid":{"rendered":"https:\/\/fshdsocietyde1.wpenginepowered.com\/?post_type=tribe_events&#038;p=40940"},"modified":"2024-07-12T11:32:34","modified_gmt":"2024-07-12T16:32:34","slug":"fshd-university-betterlife-fshd-with-amanda-hill","status":"publish","type":"tribe_events","link":"https:\/\/www.fshdsociety.org\/fr\/event\/fshd-university-betterlife-fshd-with-amanda-hill\/","title":{"rendered":"FSHD University: BetterLife FSHD with Amanda Hill"},"content":{"rendered":"<p>19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT<\/p>\n<h3>BetterLife FSHD<\/h3>\n<p>We are thrilled to announce the premiere of BetterLife FSHD, an innovative health platform dedicated to helping you take control of your well-being and advance FSHD research. With BetterLife FSHD, you can track your symptoms, access personalized resources tailored to your needs, and be matched to clinical trials and other research studies. In this session, Amanda Hill, Director of Clinical Research at the FSHD Society, will provide a live demonstration of BetterLife FSHD and share how your experiences and health data can drive us toward treatments and a cure faster than ever before. Are you ready to take control of your FSHD story?<\/p>\n<p><a href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_XHHH5oQ6TlS9rXkBJII5Ag\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-24890\" src=\"https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-300x42.png\" alt=\"\" width=\"300\" height=\"42\" srcset=\"https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-300x42.png 300w, https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-768x108.png 768w, https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-260x37.png 260w, https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-800x113.png 800w, https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-200x28.png 200w, https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-564x80.png 564w, https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button-600x85.png 600w, https:\/\/www.fshdsociety.org\/wp-content\/uploads\/2020\/04\/Register-for-webinar-button.png 836w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT BetterLife FSHD We are thrilled to announce the premiere [&hellip;]<\/p>\n","protected":false},"author":43,"featured_media":28498,"template":"","meta":{"_acf_changed":false,"_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","footnotes":""},"tags":[],"tribe_events_cat":[250,245],"class_list":["post-40940","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-fshd-university","tribe_events_cat-zoom-web-conference","cat_fshd-university","cat_zoom-web-conference"],"acf":[],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO 5.0.0.1 - aioseo.com -->\n\t<meta name=\"description\" content=\"19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT BetterLife FSHD We are thrilled to announce the premiere of BetterLife FSHD, an innovative health platform dedicated to helping you take control of your well-being and advance FSHD research. With BetterLife FSHD, you can\" \/>\n\t<meta name=\"robots\" content=\"max-image-preview:large\" \/>\n\t<meta name=\"author\" content=\"An Sasala\"\/>\n\t<link rel=\"canonical\" href=\"https:\/\/www.fshdsociety.org\/fr\/event\/fshd-university-betterlife-fshd-with-amanda-hill\/\" \/>\n\t<meta name=\"generator\" content=\"All in One SEO (AIOSEO) 5.0.0.1\" \/>\n\t\t<meta property=\"og:locale\" content=\"fr_CA\" \/>\n\t\t<meta property=\"og:site_name\" content=\"FSHD Society - Empowering FSHD Patients, Accelerating FSHD Progress\" \/>\n\t\t<meta property=\"og:type\" content=\"article\" \/>\n\t\t<meta property=\"og:title\" content=\"FSHD University: BetterLife FSHD with Amanda Hill - FSHD Society\" \/>\n\t\t<meta property=\"og:description\" content=\"19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT BetterLife FSHD We are thrilled to announce the premiere of BetterLife FSHD, an innovative health platform dedicated to helping you take control of your well-being and advance FSHD research. With BetterLife FSHD, you can\" \/>\n\t\t<meta property=\"og:url\" content=\"https:\/\/www.fshdsociety.org\/fr\/event\/fshd-university-betterlife-fshd-with-amanda-hill\/\" \/>\n\t\t<meta property=\"article:published_time\" content=\"2024-07-12T16:31:26+00:00\" \/>\n\t\t<meta property=\"article:modified_time\" content=\"2024-07-12T16:32:34+00:00\" \/>\n\t\t<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/FSHDSociety\/\" \/>\n\t\t<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n\t\t<meta name=\"twitter:site\" content=\"@FSHDSociety\" \/>\n\t\t<meta name=\"twitter:title\" content=\"FSHD University: BetterLife FSHD with Amanda Hill - FSHD Society\" \/>\n\t\t<meta name=\"twitter:description\" content=\"19:00 CET | 18:00 GMT | 1:00 p.m. ET | 12:00 p.m. CT | 11:00 a.m. MT | 10:00 a.m. PT BetterLife FSHD We are thrilled to announce the premiere of BetterLife FSHD, an innovative health platform dedicated to helping you take control of your well-being and advance FSHD research. 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