Fundraise for FSHD Your Way!
Each year, volunteers from across the country come together and raise thousands of dollars to fund research into treatments and cure for FSHD. You too can be part of this passionate community of change-makers who are bringing us closer to a cure.
Team FSHD is the grassroots community fundraising program of the FSHD Society. For years, Team FSHD members worldwide have been turning their passions and interests into opportunities to raise funds and awareness for FSHD research. The funds raised by Team FSHD members support our high-impact research programs to help speed the development of treatments and a cure for FSH muscular dystrophy.
Team FSHD Impact Since 2008:
More than 70 events completely managed by volunteers
Nearly 8,100 donors contributing to the mission of FSHD
More than $5 million raised to support FSHD research and patient programs
Never doubt that a small group of thoughtful, committed people can change the world. Indeed, it is the only thing that ever has.
Who is Team FSHD?
A community of dedicated individuals who have become FSHD change-makers in their community. From grandparents to high school students, and everyone in-between, anyone can leverage their time and talent towards funding a cure.
What does Team FSHD do?
Supported by staff, driven by their passion to make meaningful change, they leverage their time, talent, interests, and connections to create engaging fundraisers that fuel our mission.
Interested in hosting your own fundraising event for FSHD?
You can create your own fundraiser, build a free online fundraising page, and begin asking your friends and family for support TODAY!
Ready to pitch in and fund the cure, but not sure if hosting your own fundraiser is for you? Find an event near you to participate in (listed on the map below):
Upcoming Events › non-walk fundraising event
Events Search and Views Navigation
List of Events
Please mark your calendars: The 2021 Western PA Drum & Roll to Cure FSHD has been scheduled! We hope to see you on Sunday, April 18, 2021 Please reach out to the Chapter Director, Mark Christman, with any questions! He can be reached at WesternPAChapter@fshdsociety.org We look forward to seeing you on the 18th!Find out more »