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Feeling Fit with FSHD: postural changes
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join physiotherapist Ulrike Uta of the... Read More »
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Wellness Hour
Wellness Hour – Toward Hope
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will be joined by crisis counselors Kylee Helmke and Andrea Morales to... Read More »
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FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, February 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »
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FSHD University: FORTITUDE A Phase 1/2 Clinical Trial of AOC 1020 in Adults with FSHD
Zoom Web Conference , United StatesLearn about the FDA's recent fast track designation for Avidity's FSHD therapeutic here. 1:00 pm ET | noon CT | 11:00 am MT | 10:00 am PT | 18:00 GMT... Read More »
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Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
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FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, February 23rd On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD: Postural Changes Part 2
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Ulrike Uta will join us to... Read More »
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FSHD University – Rita Perlingeiro on stem cell research
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT | 18:00 UK | 19:00 CET Dr. Rita Perlingeiro Our webinar speaker is Dr. Rita... Read More »
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CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month is continuing last month's talk about How do we take care of... Read More »
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CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
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Women on Wellness
Women on Wellness – Keeping up appearances
Zoom Virtual Meeting , United StatesFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will continue our conversations about Challenges (and... Read More »
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FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, March 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »
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Young Professionals
Young Professionals
Zoom Virtual Meeting , United States7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
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FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, March 23rd On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »
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FSHD University: Novel treatment strategies for FSHD
Zoom web conference , United States1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »
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Young Professionals
Young Professionals
Zoom Virtual Meeting , United States11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
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Wellness Hour – All about wheelchairs
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is all about wheelchairs. How do you know when you need... Read More »
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FSHD Radio: Community Profiles with Musician Apex Frazier
Facebook and YouTubeTuesday, April 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
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FSHD Radio: Hot off the Press with Amanda Hill on the New Era of Clinical Trials
Facebook and YouTubeThursday, April 27th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
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FSHD University: MANOUEVRE clinical trial
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT In October 2022, Roche/Genentech shared with us plans to initiate a new trial called MANOEUVRE. This... Read More »
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Wellness Hour on Friendship: The Elixir of Life
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT In the last few months, a raft of articles have been published on the topic... Read More »
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FSHD Radio: Community Profiles – All About Adoption
Facebook and YouTubeTuesday, May 9th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
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FSHD University: What every newly diagnosed person should know
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Bakri Elshiekh We want to make sure that newcomers to the FSHD community have an... Read More »
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FSHD Radio: Hot off the Press – World FSHD Day Plans with Leigh Reynolds
Facebook and YouTubeThursday, May 25th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
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Wellness Hour Movie Night – Crip Camp
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Change of topic! Instead of Happy Hour, this month we will enjoy another Movie Night... Read More »
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FSHD Radio: Community Profiles with Actress and Advocate Lauren “Lolo” Spencer
Facebook and YouTubeTuesday, June 13th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
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30th Annual International Research Congress on FSHD
Radisson Blu Milan Italy Milan, ItalySAVE THE DATE! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »
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World FSHD Day!
Virtual Denver, United StatesJoin us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our... Read More »
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FSHD Radio: Hot off the Press – IRC 2023 Recap
Facebook and YouTubeThursday, June 22nd On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
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Wellness Hour – Summertime Happy Hour
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Prepare your favorite alcoholic or non-alcoholic drink (you can download below a pdf of some... Read More »
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FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, July 11th For this month’s Community Profiles episode, we welcome Beverly Weurding, the visionary behind the Wheelchair Dancers Organization. Diagnosed with Limb Girdle Muscular Dystrophy at the age of... Read More »
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FSHD University – Epic Bio’s FSHD Program
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Epic Bio, a San Francisco based therapeutics company, is developing a gene therapy medicine specifically for... Read More »
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FSHD Radio: Hot off the Press – the 2023 Walk & Roll to Cure FSHD with Beth Johnston
Facebook and YouTubeThursday, July 27th The 2023 Walk & Roll to Cure FSHD is just around the corner, and Beth Johnston, the FSHD Society's Chief Community Engagement Officer, has all the details... Read More »
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Team Captain Social Hour
Zoom Web Conference , United StatesThursday, August 3, 2023 7pm ET/6pm CT/5pm MT/4pm PT We'll bring together all our team captains via Zoom, to celebrate and honor your hard work, help you pack your toolkit... Read More »
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FSHD Radio: Community Profiles – Ryan Levinson, Sailor & FSHD Voyager
Facebook and YouTubeTuesday, August 8th This month, Tim has the pleasure of sitting down with Ryan Levinson, a world traveler and legend in the FSHD Community. Ryan's remarkable story makes this an... Read More »
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Wellness Hour – On Birding
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT For many of us, communing with Nature is an important contributor to wellbeing, so we... Read More »
Mountain State Chapter Meeting
Zoom Virtual Meeting , United StatesMountain State Chapter Meeting Tuesday, August 15, 2023 5:30 pm - 6:30 pm PT | 6:30 pm - 7:30 pm MT Join us for a special chapter meeting for all Mountain... Read More »
CenTex Virtual Chapter Meeting
Zoom Virtual Meeting , United StatesCenTex Virtual Chapter Meeting Monday, August 21, 2023 7:00pm – 8:00pm CT Join us as we chat about the upcoming Walk & Roll to Cure FSHD and the FSHD 360!
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FSHD Radio: Hot off the Press – Max Adler, Walk & Roll Team Captain
Facebook and YouTubeThursday, August 24th This month, Max Adler, a long-time friend of the FSHD Society, sits down with Tim to talk about the LA Walk & Roll. We can't wait to... Read More »
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FSHD University – FSHD Experiences: Insights from Europe
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Megan McNiff Our speaker is Megan McNiff, a research associate from the John Walton Muscular Dystrophy... Read More »
San Diego Virtual Chapter Meeting
Zoom Virtual Meeting , United StatesSan Diego Virtual Chapter Meeting Thursday, August 24, 2023 6:00-7:00 pm PT Register below for our upcoming Walk n Roll Committee meeting. By this date you should be signed up online... Read More »
Connecticut Chapter Annual Luncheon
On the Border Mexican Grill & Cantina 1519 Silas Deane Highway, Rocky Hill, CT, United StatesConnecticut Chapter Annual Luncheon Saturday, August 26, 2023 12:00pm – 2:00pm ET On the Border Mexican Grill & Cantina 1519 Silas Deane Highway Rocky Hill, CT 06067 Join us to... Read More »
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British Columbia Walk & Roll
The Pint 455 Abbott St., Vancouver, British Columbia, CanadaBritish Columbia Walk & Roll Celebration: Tuesday September 5th, 6pm (check-in starts at 5:30pm) The Pint Public House, 455 Abbott Street, Vancouver, BC Register to “walk or roll” today! Invite... Read More »
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Wellness Hour – Preventing Falls
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT September is National Fall Prevention month . Who better to talk about fall prevention than... Read More »
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FSHD Radio: Community Profiles – Jenny and Tony Teel, Thriving in an Interabled Marriage
Facebook and YouTubeTuesday, September 12th Jenny and Tony Teel This month, Tim talks with guests Jenny and Tony Teel! This dynamic married couple runs a popular YouTube channel where they share valuable... Read More »
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FSHD University – Physical Therapy for Shoulder Issues in Kids
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Maaike Pelsma Join Maaike Pelsma, a pediatric physical therapist, to learn about shoulder dyskinesia in children... Read More »
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International Walk & Roll Celebration with FSHD Radio
National Virtual Walk , United States10:00 AM ET | 9:00 AM CT | 8:00 AM MT | 7:00 AM PT Tune in as FSHD Radio podcast host, Tim Hollenback, interviews Walkers and Rollers during our... Read More »
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FSHD Radio: Hot off the Press – Mel Hayes of Fulcrum Therapeutics on the REACH Trial
Facebook and YouTubeThursday, September 28th 14:00 PM CET | 13:00 PM UK | 8:00 AM ET | 7:00 AM CT | 6:00 AM MT | 5:00 AM PT Earlier this month, Fulcrum... Read More »
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Wellness Hour on Emergency Preparedness
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT With all the floods, hurricanes, fires, and earthquakes in the news lately, we're reminded of... Read More »
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FSHD Radio: Community Profiles with Donna Russo – Actress, Dancer, Choreographer
Facebook and YouTubeTuesday, October 10th This month, we welcome actress, dancer, and choreographer Donna Russo. A performer with FSHD and Turner Syndrome, Donna has graced the stage in various productions, including Alvin... Read More »
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FSHD University: MOVE and MOVE+ Update
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Michaela Walker NOTE: Date has been changed from July 20 to October 19. MOVE and MOVE+... Read More »
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FSHD Radio: Hot off the Press with the FSHD Navigator
Facebook and YouTubeThursday, October 26th Today's program features the FSHD Society's Anna Gilmore, who oversees the Society's new initiative, FSHD Navigator. This program will provide superior in-person and web-based assistance to individuals... Read More »
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Wellness Hour – Finding reliable health info on the Internet
Zoom Virtual Meeting , United States5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT All of us consult "Dr. Google" when we have health questions, but how do we... Read More »
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Wellness Hour – Chair dance party
Zoom Virtual Meeting , United StatesDancing with differences: A Moving Celebration of the Season 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for a joyous and... Read More »
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FSHD Radio: Community Profiles with Michael Osborne
Facebook and YouTubeTuesday, December 12th In this episode, Tim chats with Michael Osborne, a fellow Milwaukeean and baseball coach living with FSHD. Michael and Tim share the story of how they met... Read More »
Featured
Wellness Hour (Virtual Meeting)
Wellness Hour
Zoom Virtual Meeting , United StatesWellness Hour Monthly Meeting 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community.... Read More »
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FSHD University – Annual drug development update
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Nicholas Johnson Every year, we bring you an update on therapy development for FSHD. What... Read More »
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FSHD Radio: Project Mercury, A Global Effort to Speed Development and Delivery of FSHD Treatments
Facebook and YouTubeThursday, December 28th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
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Wellness Hour – Ice breaker
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT We're starting the new year off with an ice breaker online card game. Kind of... Read More »
Virginia Chapter, Monthly Virtual Chapter Meeting
Zoom Virtual Meeting , United States6:00pm ET | 5:00pm CT | 4:00pm MT | 3:00pm PT Virginia Chapter Monthly Virtual Meeting (occurs every 4th Tuesday of the month). RSVP via the below button to ensure... Read More »
New England/Connecticut Chapters, Virtual Meeting
Zoom Virtual Meeting , United StatesJoin us for a Virtual Meeting! Please join us for our "Welcome to 2024" meeting, with lots of exciting news about current and upcoming clinical trials, as well as our... Read More »
Columbus Chapter Meeting
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT| 5:00pm MT | 4:00pm PT EVENT: Columbus Chapter Meeting DATE: Wednesday, January 31, 2024 TIME: 7:00 pm – 8:00 pm EST WHERE: Zoom DETAILS: Join... Read More »
North Texas Virtual Chapter Meeting
Virtual Denver, United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a... Read More »
2024 North Texas Virtual Chapter Meetings
Zoom Virtual Meeting , United States8:00pm ET | 7:00pm CT | 6:00pm MT | 5:00pm PT North Texas Virtual Chapter Meeting, 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a... Read More »
Feb. 10, 2024: Pacific NW Chapter Meeting
7860 SE 13th Ave, Portland 97202 Sellwood Library Meeting Room 7860 SE 13th Ave, Portland, Oregon3:00pm ET | 2:00pm CT | 1:00pm MT | 12:00pm PT Pacific Northwest Chapter Meeting, 12:00-2:00pm PT at the Sellwood Library Meeting Room Address: 7860 SE 13th Ave, Portland 97202... Read More »
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FSHD Radio: Community Profiles – Jane Nemke, Founder of Designs to Thrive
Facebook and YouTubeTuesday, February 13th In this month's Community Profiles episode, Tim sits down with Jane Nemke, an accredited International Association Color Consultant and the founder of Designs to Thrive. Jane shares... Read More »
FSHD Radio: Straight Talk with Tim Hollenback
Facebook and YouTubeTuesday, February 27th We’re thrilled to share a conversation with Danny Kurtzman and Shane Stanger, the duo behind Good Bad Things! Their film is currently making waves (and taking home... Read More »
Western PA Virtual Chapter Meeting
Zoom Virtual Meeting , United States7:00-8:00pm ET | 6:00-7:00pm CST | 5:00-6:00pm MT | 4:00-5:00pm PT Please join us for a virtual chapter meeting on Wednesday, February 28, 2024, from 7:00pm - 8:30pm Eastern. Items... Read More »
Greater Philadelphia Area Chapter Meeting
Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA, United States10:15am-1:00pm ET | 9:15am-12:00pm CST | 8:15-11:00am MT | 7:15-10:00am PT Please join us for our next Greater Philadelphia FSHD Chapter meeting on Saturday, March 2 from 10:15am – 1:00pm... Read More »
3/5/24 Michigan Chapter Meeting
Zoom Virtual Meeting , United States7PM ET | 6PM CT | 5PM MT | 4PM PT Michigan Chapter - Virtual Meeting Please join us for a virtual chapter meeting on Tuesday, March 5, 2024, from... Read More »
New England Chapter – Virtual Meeting
Zoom Virtual Meeting , United States7PM ET | 6PM CT | 5PM MT | 4PM PT New England Chapter - Virtual Meeting Please join us for another great virtual chapter meeting! We will discuss current... Read More »
Colorado Chapter Meeting
9352 Dorchester St., Highlands Ranch, CO 80129 Lansdowne Arms, Library Room 9352 Dorchester St., Highlands Ranch, CO, United States3:00pm MT | 2:00 PT | 5:00pm ET | 4:00pm CT | Hello Friends! I hope you can join us for our first meeting of 2024! WHEN: Saturday March 23rd,... Read More »
NYC/NJ-area Virtual Chapter Meeting – April 6, 2024
Zoom Virtual Meeting , United States9:00am ET | 8:00am CT | 7:00am MT | 6:00am PT NYC/NJ-area Virtual Chapter Meeting Saturday, April 6th, 2024 at 9am ET Dear Friends, Please plan to join us... Read More »
British Columbia and Alberta Chapters – Virtual Meeting
Zoom Virtual Meeting , United States9:00pm ET | 8:00pm CT | 7:00pm MT | 6:00pm PT British Columbia and Alberta Chapters - Virtual Meeting When: Wednesday April 10th, 6pm PT | 7pm MT Where: Virtually... Read More »
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2024 Idaho Talent Fest
Boise State University Special Events Center 1800 W. University Drive, Boise, ID, United States8:30PM ET | 7:30PM CT | 6:30PM MT | 5:30PM PT Saturday, April 13, 2024, 6:30pm MT at the Boise State University Special Events Center Raise money to fund research... Read More »
$15 – $20
CANCELED April 21, 2024 – Alberta Chapter – Edmonton Brunch Meeting
4810 Calgary Trail NW, Edmonton, AB T6H 5H5 4810 Calgary Trail NW, Edmonton, AB, CanadaCANCELEED Due to the lack of RSVPs, we have sadly decided to cancel this event. One of the goals of our Alberta Chapter is to grow our connections and community... Read More »
Ontario Chapter Brunch Meeting
Milestones Richmond Hill 30 High Tech Rd, Richmond Hill, ON, Canada11:00am ET | 10:00am CT | 9:00am MT | 8:00am PT Ontario Chapter Brunch Meeting Saturday April 27th, 11:00am-1:00pm ET Milestones Richmond Hill (30 High Tech Rd. Richmond Hill ON... Read More »
May 4th Sacramento Chapter Meeting
Mimi's Cafe, 2029 Alta Arden Expy, Sacramento, CA 95825 Mimi's Cafe 2029 Alta Arden Expy, Sacramento, CA, United States3:00-5:00pm ET | 2:00-4:00pm CT | 1:00-3:00pm MT | 12:00-2:00pm PT Sacramento Chapter Meeting Saturday, May 4, 2024 from 12:00 pm - 2:00 pm PT WHERE: Mimi's Cafe, 2029 Alta... Read More »
May 11 Dakotas Chapter Meeting
3247 47th St S, Fargo, ND 58104 3247 47th St South, Fargo, ND, United States11:30am-12:30pm | 10:30-11:30am CT |9:30-10:30am MT | 8:30-9:30am PT Dakotas Chapter Meeting, Saturday, May 11, 2024 10:30 am - 11:30 am CT WHERE: 3247 47th St S, Fargo, ND 58104... Read More »
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FSHD University – Project Mercury
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Josie Godfrey There is great progress toward new medicines for FSHD, but even when a drug... Read More »
North Carolina Chapter Social Gathering
Floyd & Blackies: 142 8th Avenue, Cramerton, NC 28032 142 8th Avenue, Cramerton, NC, United States5:00pm ET | 4:00pm CT | 3:00pm MT | 2:00pm PT North Carolina Chapter Social Gathering Please join us for a casual dinner on May 18th at 5pm at Floyd... Read More »
May 20: Western PA Virtual Chapter Meeting
Zoom Virtual Meeting , United States7PM ET | 6PM CT | 5PM MT | 4PM PT Western PA Chapter - Virtual Meeting Please join us on Monday, May 20th at 7:00pm ET for our next virtual... Read More »
Texas Commuity Social Hour
Zoom Virtual Meeting , United States7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Texas Community Social Hour Wednesday, June 5, 2024 Join us for a special Texas Social Hour and come catch-up... Read More »
Michigan Chapter Virtual Meeting
Zoom Virtual Meeting , United States7PM ET | 6PM CT | 5PM MT | 4PM PT Michigan Chapter Virtual Meeting Join us at our next virtual chapter meeting, scheduled for Thursday, June 6th at 7pm... Read More »
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Pacific Northwest Day at the Ball Park!
Cheney Stadium, 2502 S Tyler St, Tacoma, WA 98405 Cheney Stadium 2502 S. Tyler St, Tacoma, WA, United States4:00-7:00pm ET | 3:00-6:00pm CT | 2:00-5:00pm MT | 1:00-4:00pm PT Pacific Northwest Day at the Ball Park Sunday, June 9, 2024, 1:00 pm - 4:00 pm PT WHERE: Cheney... Read More »
Bay Area Chapter Meeting
Bay Area Chapter Meeting: Connect Watch Party Join the Bay Area Chapter for a special summer chapter meeting this year in Hollister, CA. Our Bay Area Chapter Directors, Kent and... Read More »
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2024 FSHD Connect Conference
CONNECT 2024 will be hosted on June 15-16 in Denver, Colorado. CONNECT brings together world leaders in FSHD research, patient care, advocacy, education, and support. Held every two years, FSHD... Read More »
Alberta Chapter – World FSHD Day Celebration
Wild Rose Brewery - 4580 Quesnay Wood Dr. SW, Calgary, AB 4580 Quesnay Wood Dr. SW, Calgary, AB, Canada5:30pm MT (4:30pm PT | 7:30pm ET | 6:30pm CT) Alberta Chapter - World FSHD Day Celebration Hello Alberta Chapter Friends!! WHAT: On World FSHD Day, June 20, we are... Read More »
Summer Park Party – Michigan Chapter
Tunnel Park 66 Lakeshore Ave, Holland, MI 49424 - North Picnic Pavilion Lakeshore Avenue, Holland, MI, United States11AM - 3PM ET Summer Park Party - Michigan Chapter Please join us for an in-person social gathering on June 23rd. We are planning a summer park party from 11am... Read More »
Virtual Screening: Good Bad Things
Virtual TX, United StatesVirtual Screening: Good Bad Things Missed seeing Good Bad Things in theaters? Get your tickets for a virtual screening this weekend. The film will be available from 6:00pm PST on... Read More »