8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month: How do we decide when/if we need outside help either part time or live-in? It's a big step and not everyone in the family be on the same page. Are you approaching this decision point or in... Read More »
First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we'll be talking about "mattering," feeling valued as a woman, while living with the challenges of FSHD. We will also discuss depression, the potential high prevalence in individuals with chronic diseases -identifying signs and symptoms,... Read More »
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never takes a day off. I practice qigong and kung fu daily. It’s my way to fight back.” -FH In the December “Feeling Fit” sessions, Frank Hanley will introduce several qigong exercises to... Read More »
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, you're invited to come dressed in Zoom-worthy holiday apparel, with favorite seasonal libations in hand! The Wellness Hour is open to everyone in the FSHD community. We'll have an open-ended conversation about how group members would like to... Read More »
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT In the December “Feeling Fit” sessions, Frank Hanley will introduce several qigong exercises to help strengthen the immune system and improve qi flow. These exercises build on the abdominal breathing exercises that Frank introduced in September, and reviewed during... Read More »
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we... Read More »
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