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Today

September 2023

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 9:00 am - 1:00 pm

St. Louis Walk & Roll

Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO, United States

St. Louis Walk & Roll Saturday, September 23, 2023 9am-Registration/10am-Walk&Roll Hawk Ridge Park/Zachary's Playground, 8392 Orf Road, Lake Saint Louis, MO 63367 Register to “walk or roll” today! Invite your... Read More »

Sat 23
Featured Featured Sep 23 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals – Nutrition and FSHD

Zoom Virtual Meeting , United States

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT How does nutrition impact the symptoms and progression of FSHD? This week, the group will... Read More »

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 10:00 am - 2:00 pm

Canceled Virginia Walk & Roll

Norfolk Zoo 3500 Granby St., Norfolk, United States

Virginia Walk & Roll CANCELED With the impending storm this weekend, we have made the difficult decision to cancel Saturday's Walk & Roll. Thank you so much to everyone who... Read More »

Sat 23
2023 Walk and Roll Calendar Feature
Featured Featured Sep 23 @ 10:30 am - 12:30 pm

Canceled Mid-Atlantic Walk & Roll

Alpha Ridge Park 11685 Old Frederick Rd, Marriottsville, MD, United States

Mid-Atlantic Walk & Roll CANCELED With the impending storm this weekend, we have made the difficult decision to cancel Saturday's Walk & Roll. Thank you so much to everyone who... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 8:00 am - 12:00 pm

Minnesota Walk & Roll

Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MN, United States

Minnesota Walk & Roll Sunday, September 24, 2023, 8:00 am Normandale Lake Bandshell Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 11:00 am - 1:00 pm

Bay Area Walk & Roll

Bay Area Walk & Roll Sunday, September 24, 2023 • 11:00 am Sharon Park Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 2:00 pm - 6:00 pm

West Michigan Walk & Roll

Mulligan's Hollow Lodge 600 Y Drive, Grand Haven, MI, United States

West Michigan Walk & Roll Mulligan's Hollow Lodge, 600 Y Drive, Grand Haven, MI. 49417 Sunday 9/24. Registration Opens: 2pm; Walk Begins: 2:30pm. Register to “walk or roll” today! Invite your... Read More »

Sun 24
2023 Walk and Roll Calendar Feature
Featured Featured Sep 24 @ 2:00 pm - 6:00 pm

North Texas Walk & Roll

Warren Sports Complex 7599 Eldorado Parkway, Frisco, TX, United States

North Texas Walk & Roll Sunday, September 24, 2023 2:00 p.m. registration Warren Sports Complex 7599 Eldorado Parkway, Frisco, TX 75033 Register to “walk or roll” today! Invite your family,... Read More »

Tue 26
Featured Featured Sep 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Sep 28 @ 8:00 am

FSHD Radio: Hot off the Press – Mel Hayes of Fulcrum Therapeutics on the REACH Trial

Facebook and YouTube

Thursday, September 28th  14:00 PM CET | 13:00 PM UK | 8:00 AM ET | 7:00 AM CT | 6:00 AM MT | 5:00 AM PT Earlier this month, Fulcrum... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Why exercise?

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us for our second session of... Read More »

Sat 30
2023 Walk and Roll Calendar Feature
Featured Featured Sep 30 @ 8:00 am - 12:00 pm

CenTex Walk & Roll

Champion Park 3830 Brushy Creek Rd, Cedar Park, TX, United States

CenTex Walk & Roll Sunday, September 30, 2023 8:00 am Champion Park Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to... Read More »

Sat 30
2023 Walk and Roll Calendar Feature
Featured Featured Sep 30 @ 8:00 am - 12:00 pm

San Diego Walk & Roll

Harbor Island Park 1875 Harbor Island Dr., San Diego, CA, United States

San Diego Walk & Roll Saturday, September 30, 2023 Registration starts at 8:00 a.m. Harbor Island Park, 1875 Harbor Island Dr., San Diego, CA 92101 Register to “walk or roll”... Read More »

Sat 30
2023 Walk and Roll Calendar Feature
Featured Featured Sep 30 @ 9:00 am - 1:00 pm

Kansas City Walk & Roll

Macken Park 1002 Clark Ferguson Dr., North Kansas City, MO, United States

Kansas City Walk & Roll Saturday, September 30, 2023 Macken Park Festival Shelter Registration 9:00am, Opening Ceremonies 9:45am, Walk Starts 10:00am Register to “walk or roll” today! Invite your family,... Read More »

October 2023

Wed 4
Featured Featured Oct 4 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Adaptive cooking

Zoom Virtual Meeting , United States

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Adaptive cooking and adaptive eating will be our topic this... Read More »

Sat 7
2023 Walk and Roll Calendar Feature
Featured Featured Oct 7 @ 11:00 am - 3:00 pm

New England Walk & Roll

Optum Building Rooftop 1325 Boylston Street, Boston, MA, United States

New England Walk & Roll Saturday, October 7, 2023 11:00am Check In Optum Roofdeck, 1325 Boylston St., Boston MA 02215 Register to “walk or roll” today! Invite your family, friends,... Read More »

Mon 9
Wellness Hour
Featured Featured Oct 9 @ 5:00 pm - 6:00 pm

Wellness Hour on Emergency Preparedness

Zoom Virtual Meeting , United States

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT With all the floods, hurricanes, fires, and earthquakes in the news lately, we're reminded of... Read More »

Tue 10
FSHD Society Radio logo with microphone
Featured Featured Oct 10 @ 8:00 am

FSHD Radio: Community Profiles with Donna Russo – Actress, Dancer, Choreographer

Facebook and YouTube

Tuesday, October 10th This month, we welcome actress, dancer, and choreographer Donna Russo. A performer with FSHD and Turner Syndrome, Donna has graced the stage in various productions, including Alvin... Read More »

Tue 10
Featured Featured Oct 10 @ 7:00 pm - 8:00 pm Event Series Young Professionals

Young Professionals – Financial planning

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Our guest is Don Burke, an FSHD Society member who recently retired from a high-impact... Read More »

Thu 12
Featured Featured Oct 12 @ 1:00 pm - 2:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Finding your balance

Zoom Virtual Meeting , United States

19:00 PM CET | 18:00 PM UK | 13:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Jackie O'Doherty is a fitness trainer who works... Read More »

Sat 14
Featured Featured Oct 14 @ 10:00 am - 4:00 pm

Pacific Northwest FSHD 360

The Museum of Flight 9404 East Marginal Way S, Seattle, WA, United States

9:00 a.m. US Pacific Time doors open | 10:00-3:00 p.m. US PT conference sessions The FSHD Society, in collaboration with Friends of FSH Research and the University of Washington Seattle,... Read More »

Sun 15
2023 Walk and Roll Calendar Feature
Featured Featured Oct 15 @ 10:00 am - 2:00 pm

Atlanta Walk & Roll

Chattahoochee Nature Center 9135 Willeo Rd, Roswell, GA, United States

Atlanta Walk & Roll Sunday, October 15, 2023 Registration at 10:00 a.m. Chattahoochee Nature Center, 9135 Willeo Rd, Roswell, GA 30075 Register to “walk or roll" today! Invite your family,... Read More »

Tue 17
Early-Onset Parents Roundtable
Featured Featured Oct 17 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable – Pediatric FSHD Summit

Zoom Virtual Meeting , United States

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The end of September saw the first-ever workshop focused solely on pediatric FSHD. The workshop,... Read More »

Thu 19
FSHD University Logo
Featured Featured Oct 19 @ 1:00 pm - 2:00 pm

FSHD University: MOVE and MOVE+ Update

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Michaela Walker NOTE: Date has been changed from July 20 to October 19. MOVE and MOVE+... Read More »

Thu 26
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Oct 26 @ 9:00 am

FSHD Radio: Hot off the Press with the FSHD Navigator

Facebook and YouTube

Thursday, October 26th  Today's program features the FSHD Society's Anna Gilmore, who oversees the Society's new initiative, FSHD Navigator.  This program will provide superior in-person and web-based assistance to individuals... Read More »

Thu 26
Featured Featured Oct 26 @ 1:00 pm - 2:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Finding your balance part 2

19:00 CET | 18:00 UK | 1:00 PM ET | NOON CT | 11:00 AM MT | 10:00 AM PT Jackie O'Doherty is back to answer your questions about her... Read More »

Sat 28
Featured Featured Oct 28 @ 7:30 am - 2:00 pm

Canceled Putting Fore a Cure

Wildhorse Golf Club 2100 W Warm Springs Rd, Henderson, NV, United States

Putting Fore a Cure Saturday, October 28, 2023 Wildhorse Golf Club Henderson, NV 7:30 am Shotgun Start Mark your calendars for Saturday, October 28th, when we will be holding our... Read More »

Sat 28
Featured Featured Oct 28 @ 10:00 am - 11:00 am Event Series Young Professionals

Young Professionals: Managing Symptoms

Zoom Virtual Meeting , United States

11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT Managing Symptoms and Improving Quality of Life with Tara Hill and Glen Denehie FSHD Young... Read More »

Sat 28
2023 Walk and Roll Calendar Feature
Featured Featured Oct 28 @ 10:00 am - 2:00 pm

New Jersey Shore Walk & Roll

Seaside Heights Boardwalk 1599 Boardwalk, Seaside Heights, NJ, United States

New Jersey Shore Walk & Roll RESCHEDULED to Saturday, October 28, 2023 • 10:00 am Seaside Heights Boardwalk @ Heiring Ave. Register to “walk or roll” today! Invite your family,... Read More »

Tue 31
Featured Featured Oct 31 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »

November 2023

Wed 1
Featured Featured Nov 1 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Wheelchairs

Zoom Virtual Meeting , United States

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we're talking about women and wheelchairs: when to... Read More »

Wed 1
Featured Featured Nov 1 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

Please note, due to Halloween, October's CarePartner Hour has been moved to Wednesday, November 1, 2023. The time and link will remain the same. 8:00 – 9:00 PM ET |... Read More »

Sun 5
Featured Featured Nov 5 @ 1:00 pm - 2:30 pm

Western PA Drum & Roll to Cure FSHD

Drum & Roll to Cure FSHD Sunday, November 5, 2023 • 1:00 pm National Aviary, The Garden Room, Pittsburgh, PA Register for the 2023 Western Pennsylvania Drum & Roll today!... Read More »

Thu 9
Featured Featured Nov 9 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Holistic paths to wellness

Zoom Virtual Meeting , United States

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Rita Lynn (far right) with her family... Read More »

Sun 12
Featured Featured Nov 12 @ 9:30 am - 3:30 pm

Ohio FSHD 360

Fawcett Center 2400 Olentangy River Road, Columbus, OH, United States

9:00 a.m. US Eastern Time doors open | 9:30 a.m. - 3:30 p.m. US ET conference sessions The FSHD Society, in collaboration with the Ohio State University and Nationwide Children's... Read More »

Mon 13
Wellness Hour
Featured Featured Nov 13 @ 5:00 pm - 6:00 pm

Wellness Hour – Finding reliable health info on the Internet

Zoom Virtual Meeting , United States

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT All of us consult "Dr. Google" when we have health questions, but how do we... Read More »

Tue 14
FSHD Society Radio logo with microphone
Featured Featured Nov 14 @ 8:00 am

FSHD Radio: Community Profiles – Jane Nemke, Founder of Designs to Thrive

Facebook and YouTube

Tuesday, November 14th In this month's Community Profiles episode, Tim sits down with Jane Nemke, an accredited International Association Color Consultant and the founder of Designs to Thrive. Jane shares... Read More »

Thu 16
Magic for a Cure
Featured Featured Nov 16 @ 6:00 pm - 9:00 pm

Magic for a Cure (Naples, FL)

The Pointe at Naples Bay Resort 1500 Fifth Avenue South, Naples, FL, United States

Magic for a Cure 6pm Cocktails * 7pm Dinner * 7:45pm Magic The Pointe at Naples Bay Resort: 1500 Fifth Avenue South Naples, FL 34102 Join us for an evening... Read More »

Mon 20
Featured Featured Nov 20 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults – Clinical trial updates

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Join us as June Kinoshita, Senior Director of Research & Education, answers your questions about... Read More »

Tue 21
Featured Featured Nov 21 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Holistic paths to wellness part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Rita Lynn (far right) with her family... Read More »

Tue 21
Early-Onset Parents Roundtable
Featured Featured Nov 21 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable with Eva Chin of Solve FSHD

Zoom Virtual Meeting , United States

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Eva Chin, PhD Join us for a conversation with Eva Chin, PhD, Executive Director of... Read More »

Thu 23
Featured Featured Nov 23 @ 11:00 am - 2:00 pm

FSHD Radio Thanksgiving Special

Virtual Denver, United States

Join us for FSHD Radio’s first-ever Thanksgiving Special as we come together and give thanks for the strength and resilience that make our community shine. This year, we want to... Read More »

Tue 28
Featured Featured Nov 28 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 30
FSHD Society Radio logo with microphone
Featured Featured Nov 30 @ 7:00 am - 7:30 am

FSHD Radio: My Cause, My Cleats with Emma Weatherley

Tune in to a special FSHD Radio episode! Emma Weatherley, Managing Director of FSHD Global, joins Tim to share exciting news: Michael Dickson of the Seattle Seahawks is raising FSHD... Read More »

Thu 30
Featured Featured Nov 30 @ 8:00 am

FSHD Radio: Emma Weatherley

Virtual Denver, United States

FSHD is in the national spotlight! Emma Weatherley, Managing Director of FSHD Global, joins Tim to share exciting news: Michael Dickson of the Seattle Seahawks is raising FSHD awareness. The... Read More »

December 2023

Wed 6
Featured Featured Dec 6 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Estrogen & FSHD

Zoom Virtual Meeting , United States

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our guest this month is Loralei Thornburg, MD, professor of... Read More »

Mon 11
Wellness Hour
Featured Featured Dec 11 @ 5:00 pm - 6:00 pm

Wellness Hour – Chair dance party

Zoom Virtual Meeting , United States

Dancing with differences: A Moving Celebration of the Season 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for a joyous and... Read More »

Tue 12
FSHD Society Radio logo with microphone
Featured Featured Dec 12 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, December 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Thu 14
Featured Featured Dec 14 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Shaking Qigong with Trish Kean

Zoom Virtual Meeting , United States

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us this month for a session... Read More »

Mon 18
Featured Featured Dec 18 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults – Mindfulness with Jen Egert

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Back by popular demand, Dr. Jen Egert will lead us through a mindfulness meditation session.... Read More »

Tue 19
Early-Onset Parents Roundtable
Featured Featured Dec 19 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable – Youth voices

Zoom Virtual Meeting , United States

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Carden Wyckoff This month we will host a roundtable conversation with young adults with FSHD.... Read More »

Thu 21
FSHD University Logo
Featured Featured Dec 21 @ 1:00 pm - 2:00 pm

FSHD University – Annual drug development update

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Nicholas Johnson Every year, we bring you an update on therapy development for FSHD. What... Read More »

Tue 26
Featured Featured Dec 26 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Dec 28 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, December 28th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »

January 2024

Mon 15
Featured Featured Jan 15, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 16
Early-Onset Parents Roundtable
Featured Featured Jan 16, 2024 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting , United States

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 18
Featured Featured Jan 18, 2024 @ 11:00 am - 12:00 pm

Treating FSHD – A broader view

Zoom Web Conference , United States

With Nicol Voermans, MD PhD, and Nathaniël Rasing, MD 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT While... Read More »

Thu 25
Featured Featured Jan 25, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

Tue 30
Featured Featured Jan 30, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

February 2024

Thu 15
Featured Featured Feb 15, 2024 @ 12:00 pm - 1:00 pm

Breathing with FSHD, Andrea Klein

Zoom Web Conference , United States

Breathing with FSHD, Andrea Klein 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT Today’s webinar discusses how to... Read More »

Mon 19
Featured Featured Feb 19, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 20
Early-Onset Parents Roundtable
Featured Featured Feb 20, 2024 @ 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable

Early-Onset Parent Roundtable

Zoom Virtual Meeting , United States

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »

Thu 22
Featured Featured Feb 22, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

Tue 27
Featured Featured Feb 27, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

March 2024

Mon 18
Featured Featured Mar 18, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 21
Featured Featured Mar 21, 2024 @ 12:00 pm - 1:00 pm

Finding reliable health information on the Internet, with Tina Griffin

Zoom Web Conference , United States

Finding reliable health information on the Internet, with Tina Griffin 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT... Read More »

Sat 23
Featured Featured Mar 23, 2024 @ 9:00 am - 3:30 pm

Calgary FSHD 360 conference

9:00 a.m. Mountain Time doors open | 10:00-3:00 p.m. MT conference sessions Save the date!! The FSHD Society, in collaboration with FSHD Canada Foundation and the University of Calgary, ,... Read More »

Tue 26
Featured Featured Mar 26, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 28
Featured Featured Mar 28, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

April 2024

Mon 15
Featured Featured Apr 15, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 25
Featured Featured Apr 25, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

Sat 27
Featured Featured Apr 27, 2024 @ 9:00 am - 3:30 pm

Texas FSHD 360

Allen R. Baca Center 301 W. Bagdad Ave. Building 2, Round Rock, TX, United States

9:00 a.m. US Central Time doors open | 10:00-3:00 p.m. US CT conference sessions Save the date!! The FSHD Society, in collaboration with the University of San Antonio Health Science... Read More »

Tue 30
Featured Featured Apr 30, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

May 2024

Thu 16
FSHD University Logo
Featured Featured May 16, 2024 @ 1:00 pm - 2:00 pm

FSHD University – To be rescheduled

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Josie Godfrey There is great progress toward new medicines for FSHD, but even when a drug... Read More »

Mon 20
Featured Featured May 20, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 23
Featured Featured May 23, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

Tue 28
Featured Featured May 28, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

June 2024

Mon 17
Featured Featured Jun 17, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 25
Featured Featured Jun 25, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 27
Featured Featured Jun 27, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

July 2024

Mon 15
Featured Featured Jul 15, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 25
Featured Featured Jul 25, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

Tue 30
Featured Featured Jul 30, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

August 2024

Mon 19
Featured Featured Aug 19, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 22
Featured Featured Aug 22, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

Tue 27
Featured Featured Aug 27, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

September 2024

Mon 16
Featured Featured Sep 16, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Tue 24
Featured Featured Sep 24, 2024 @ 8:00 pm - 9:00 pm Event Series CarePartner Hour

CarePartner Hour

Zoom Virtual Meeting , United States

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »

Thu 26
Featured Featured Sep 26, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

October 2024

Mon 21
Featured Featured Oct 21, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 24
Featured Featured Oct 24, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

November 2024

Mon 18
Featured Featured Nov 18, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 28
Featured Featured Nov 28, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

December 2024

Mon 16
Featured Featured Dec 16, 2024 @ 8:00 pm - 9:00 pm Event Series Young Professionals

Young Adults

Zoom Virtual Meeting , United States

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »

Thu 26
Featured Featured Dec 26, 2024 @ 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD

Zoom Virtual Meeting , United States

For people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »

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75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

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