North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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Women on Wellness
Women on Wellness – Instrumental activities of daily living
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is what we call "Instrumental ADL’s... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD – Bill Herzberg
Zoom Virtual Meeting18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Mitch Wade and Bill Herzberg Last month... Read More »
Ontario Chapter Meeting
Symposium Cafe 3055 Dundas St W, Mississauga, OntarioJoin us for an informal breakfast/brunch gathering! Saturday, June 10th, 2023 - 11:00am ET Symposium Cafe: 3055 Dundas St W in Mississauga Dear Ontario friends, Come join your fellow Ontario FSHDers for... Read More »
Bay Area Chapter Meeting
Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CABay Area Chapter Meeting Sunday, June 11, 2023 1:00-3:00 pm PT Hoover Pavilion, Room 208 Stanford Campus Quarry Road, Palo Alto Let's meet together in-person (or Zoom) so that we can catch up... Read More »
Tampa Chapter Gathering
True Food Kitchen 3645 Midtown Dr., Tampa, FLTampa Chapter Gathering Sunday, June 11th, 4pm True Food Kitchen 3645 Midtown Dr, Tampa, FL 33607 Dear friends, Please come out and join us for another great get-together of... Read More »
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Wellness Hour Movie Night – Crip Camp
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Change of topic! Instead of Happy Hour, this month we will enjoy another Movie Night... Read More »
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FSHD Radio: Community Profiles with Actress and Advocate Lauren “Lolo” Spencer
Facebook and YouTubeTuesday, June 13th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
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Young Professionals
Young Professionals
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
New York City/NJ Virtual Chapter Meeting
Zoom Virtual MeetingNew York City/NJ - Area Chapter Tuesday, June 13, 2023 7:00pm ET via Zoom We hope you can join us for a virtual chapter meeting! We will be discussing... Read More »
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30th Annual International Research Congress on FSHD
Radisson Blu Milan Italy MilanSAVE THE DATE! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »
PNW Chapter World FSHD Day & Father’s Day Celebration
Cheney Stadium 2502 South Tyler Street, Tacoma, WACelebrate World FSHD Day & Father’s Day at the ballpark with the PNW Chapter! Saturday, June 17, 2023 6:00pm Cheney Stadium, Tacoma Tacoma Rainiers vs. Albuquerque Isotopes After you register,... Read More »
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World FSHD Day!
Virtual DenverJoin us for the annual World FSHD Day to raise awareness of FSHD globally over social media on June 20th! Learn about the orange slice selfie campaign and download our... Read More »
British Columbia Chapter World FSHD Day Celebration
The Pint 455 Abbott St., Vancouver, British ColumbiaHello Friends! Please join us on June 20th, 2023 at 6pm as we celebrate World FSHD Day together! WHERE: The Pint: 455 Abbott Street, Vancouver, BC WHY: It's WORLD FSHD... Read More »
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Early-Onset Parent Roundtable
Early-Onset Parent Roundtable – Sharon Terry: mom, advocate, change-maker
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for a conversation with Sharon F. Terry, President and CEO of Genetic Alliance,... Read More »
Atlanta Chapter World FSHD Day Watch Party
Azteca Perimiter 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs, GAJoin us for the Atlanta Chapter Watch Party as the King & Queen Buildings light up orange in honor of World FSHD Day! Tuesday, June 20, 2023 7:30pm ET El... Read More »
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FSHD Radio: Hot off the Press – IRC 2023 Recap
Facebook and YouTubeThursday, June 22nd On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD Special Summertime Routine
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Frank Hanley will lead today's session with... Read More »
Idaho Chapter Meeting
Louie's Pizza and Italian Restaurant 2500 E Fairview Ave, Meridian, IDIdaho Chapter Meeting Thursday, June 22, 2023 6:30pm MT Louie's Pizza and Italian Restaurant at 2500 E Fairview Ave, Meridian, ID 83642 Join us for dinner! This will be an... Read More »
Alberta Chapter Meeting
1101 8th Street SE in Calgary, Alberta 1101 8th Street SE, Calgary, AlbertaPlease join us on Saturday June 24th for a casual breakfast get-together, and for our first in-person meeting of the Alberta Chapter! WHAT: Let us treat you to breakfast, hear some... Read More »
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Young Professionals
Young Professionals
Zoom Virtual Meeting11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual MeetingDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Women on Wellness
Women on Wellness
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
FSHD Lab Day at Nationwide Children’s Hospital
Nationwide Children's Hospital Education Center 575 South 18th Street, Columbus, OHPlease join the Columbus Chapter and Nationwide Children's Hospital for an exciting day of research and community! Hear from Dr. Kevin Flanigan, Dr. Scott Harper, and Dr. Nizar Saad, then... Read More »
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Wellness Hour
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »
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FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, July 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
Featured
FSHD University: MOVE and MOVE+ Update
Zoom Web Conference1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT MOVE and MOVE+ are the largest natural history studies to date of FSHD. Our webinar will... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual MeetingDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, July 27th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who... Read More »
Featured
Feeling Fit with FSHD
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are interested in exercise and fitness, we... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Women on Wellness
Women on Wellness
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Western PA Summer Picnic
Adams Township Community Park 698 Valencia Rd, Mars, PAWestern PA Summer Picnic Saturday, August 5th, 2023 Adams Township Community Park, 698 Valencia Road, Mars, PA 16046 More details forthcoming! We hope you can join us again this year... Read More »
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FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, August 8th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Wellness Hour
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, August 24th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual MeetingDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Women on Wellness
Women on Wellness
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Featured
Alberta Walk & Roll
RiverWalk Plaza 618 Confluence Way SE, Calgary, AlbertaAlberta Walk & Roll Saturday, September 9, 2023 Registration at 8:30 a.m. TENTATIVE - RiverWalk Plaza: 618 Confluence Way SE Calgary AB T2G 0G1 Canada Register to “walk or roll”... Read More »
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Pacific Northwest Walk & Roll
Cockrell Cider 6613 114th Ave Ct E, Puyallup, WAPacific Northwest Walk & Roll Sunday, September 10, 2023 1:00 PM Cockrell Cider, 6613 114th Ave Ct E, Puyallup, WA. 98372 Register to “walk or roll” today! Invite your family,... Read More »
Featured
Wellness Hour
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »
Featured
FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, September 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
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Ontario Walk & Roll
Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga, OntarioOntario Walk & Roll Saturday, September 16th 2023 9:00 am check in Lake Aquitaine Park - Mississauga, ON Register to "walk or roll" today! Invite your family, friends, club members,... Read More »
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Chicago Walk & Roll
Citizen's Park - Amphitheatre 511 N Lake Zurich Rd, Barrington, ILChicago Walk & Roll Saturday, September 16th 2023, 10:00 am Citizens Park, Robert Soule Amphitheater Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates... Read More »
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NE Florida Walk & Roll
121 Financial Ballpark 301 A. Philip Randolph Boulevard, Jacksonville, FLNE Florida Walk & Roll Saturday, September 16, 2023 Arrival & check-in starting at 5pm. Burgers and reception 5:30 - 6:30pm, Baseball game starts at 6:35pm. Jacksonville Jumbo Shrimp Baseball... Read More »
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Los Angeles Walk & Roll
Woodley Park 6350 Woodley Ave, Van Nuys, CALos Angeles Walk & Roll September 17, 2023 Registration 9am, Opening Ceremonies 9:45am, Walk Starts 10am Woodley Park/Lake Balboa, 6350 Woodley Ave, Van Nuys, CA 91436 Register to “walk or... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
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Columbus Walk & Roll
Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OHColumbus Walk & Roll Saturday, September 23, 2023 9:00 am Coffman Park Pavilion 5200 Emerald Pkwy Dublin, OH 43017 Register to “walk or roll” today! Invite your family, friends, club... Read More »
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Intermountain Walk & Roll
Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UTIntermountain Walk & Roll Saturday, September 23, 2023 9:00am Registration Canyon Rim Park, East Pavilion, Millcreek UT Register to “walk or roll” today! Invite your family, friends, club members, neighbors,... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Virginia Walk & Roll
Norfolk Zoo 3500 Granby St., NorfolkVirginia Walk & Roll Saturday, September 23, 2023 Registration opens at 10am Norfolk Zoo, 3500 Granby St., Norfolk, VA 23504 Register to “walk or roll” today! Invite your family, friends,... Read More »
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Mid-Atlantic Walk & Roll
Alpha Ridge Park 11685 Old Frederick Rd, Marriottsville, MDMid-Atlantic Walk & Roll Saturday, September 23, 2023 Registration opens, 10:30 am; Walk, 11:00 - 11:30 am; Team photos, awards, and lunch, 11:30 am - 12:30 pm Alpha Ridge Park,... Read More »
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Minnesota Walk & Roll
Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MNMinnesota Walk & Roll Sunday, September 24, 2023, 8:00 am Normandale Lake Bandshell Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation... Read More »
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New Jersey Shore Walk & Roll
Seaside Heights Boardwalk 1599 Boardwalk, Seaside Heights, NJNew Jersey Shore Walk & Roll Sunday, September 24, 2023 • 10:00 am Seaside Heights Boardwalk @ Heiring Ave. Register to “walk or roll” today! Invite your family, friends, club... Read More »
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West Michigan Walk & Roll
Mulligan's Hollow Lodge 600 Y Drive, Grand Haven, MIWest Michigan Walk & Roll Mulligan's Hollow Lodge, 600 Y Drive, Grand Haven, MI. 49417 Sunday 9/24. Registration Opens: 2pm; Walk Begins: 2:30pm. Register to “walk or roll” today! Invite your... Read More »
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North Texas Walk & Roll
Warren Sports Complex 7599 Eldorado Parkway, Frisco, TXNorth Texas Walk & Roll Sunday, September 24, 2023 2:00 p.m. registration Warren Sports Complex 7599 Eldorado Parkway, Frisco, TX 75033 Register to “walk or roll” today! Invite your family,... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual MeetingDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, September 28th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who... Read More »
Featured
CenTex Walk & Roll
Champion Park 3830 Brushy Creek Rd, Cedar Park, TXCenTex Walk & Roll Sunday, September 30, 2023 8:00 am Champion Park Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to... Read More »
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Kansas City Walk & Roll
Macken Park 1002 Clark Ferguson Dr., North Kansas City, MOKansas City Walk & Roll Saturday, September 30, 2023 Macken Park Festival Shelter Registration 9:00am, Opening Ceremonies 9:45am, Walk Starts 10:00am Register to “walk or roll” today! Invite your family,... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
Women on Wellness
Women on Wellness
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »
Featured
New England Walk & Roll
Optum Building Rooftop 1325 Boylston Street, Boston, MANew England Walk & Roll Saturday, October 7, 2023 11:00am Check In Optum Roofdeck, 1325 Boylston St., Boston MA 02215 Register to “walk or roll” today! Invite your family, friends,... Read More »
Featured
Wellness Hour
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT The Wellness Hour is open to everyone in the FSHD community. This is your time... Read More »
Featured
FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, October 10th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
North Carolina Chapter “Fourth Mondays”
Zoom Virtual MeetingDear friends, Welcome to the "Fourth Monday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, October 26th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »