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Women on Wellness: Life Hacks

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Let’s learn from each other by sharing great tricks for... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, February 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, February 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Ontario Virtual Chapter Meeting

Virtual TX

Saturday, February 25, 2023 10:00am ET Please join us for our first Chapter meeting of 2023! Grab a cup of coffee and join us for a casual discussion and Q&A... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, March 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Colorado FSHD Chapter Meeting

North Carolina Chapter Lunch

Parkway UCC 1465 Irving Street SW - Winston-Salem, Winston-Salem, NC

Dear Friends, Please join us for our first in-person lunch in a long time! We can't wait to see everyone face-to-face again. Lunch will be provided, so please RSVP to... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, April 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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Rochester FSHD 360

University of Rochester Saunders Research Building 265 Crittenden Blvd., Rochester, NY

9:00 a.m. US ET doors open | 10:00-3:30 p.m. US ET conference sessions The FSHD Society, in collaboration with the University of Rochester Medical Center, is hosting this year’s Rochester... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, May 9th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, May 25th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, June 13th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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30th Annual International Research Congress on FSHD

Radisson Blu Milan Italy Milan

SAVE THE DATE! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, June 22nd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, July 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, July 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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Feeling Fit with FSHD

12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT   For people living with FSHD who are interested in exercise and fitness, we... Read More »

Colorado FSHD Chapter Meeting

Western PA Summer Picnic

Adams Township Community Park 698 Valencia Rd, Mars, PA

Western PA Summer Picnic Saturday, August 5th, 2023 Adams Township Community Park, 698 Valencia Road, Mars, PA 16046 More details forthcoming! We hope you can join us again this year... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, August 8th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, August 24th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, September 12th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »