Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

2022 Central Texas Tacos & Tunes to Cure FSHD

5 Soul Wine Co 4514 Bob Wire Rd, Spicewood, TX

  Please mark your calendars for the 2022 Central Texas Tacos & Tunes to Cure FSHD Celebration! We will see you on Saturday, November 5, 2022 Please reach out to Ashley Bryan with any questions! She can be reached at ashleybryan1@gmail.com  

2022 East Tennessee Walk & Roll to Cure FSHD

East Tennessee knoxville, TN

Please mark your calendars for the 2022 East Tennessee Walk & Roll to Cure FSHD! We will see you on Saturday, November 5, 2022 Please reach out to the Walk Leader, Candice Norman, with any questions! She can be reached at EastTNChapter@FSHDSociety.org. We look forward to seeing you on November 5!  

2022 Western PA Drum and Roll

Andrew Carnegie Free Library and Music Hall 300 Beechwood Avenue, Carnegie, PA

The Western PA Drum & Roll Mark your calendars: The second annual Drum & Roll will take place on Saturday, November 5th, 2022! We invite you to join us in raising funds, awareness, and celebrating coming together as a community again this fall. In this unique event, participants will learn and enjoy a mobility-device-friendly West African... Read More »

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

2022 Magic for a Cure!

Kolo Klub Hoboken, NJ

PLEASE JOIN US for the Second Annual "Magic for a Cure" for FSH Muscular Dystrophy (FSHD) featuring Celebrity Magician John Stessel @ The Kolo Klub (at the Pilsener Haus Biergarten) in Hoboken, NJ Tuesday, November 15th 2022 Buy Tickets and/or Sponsorships

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Western Washington FSHD Community Group Meeting

Western Washington Support Group Washington

The Western Washington FSHD Community Group invites you to join them virtually, every month on the 4th Saturday via Zoom web conference: Join Zoom Meeting from your computer or tablet: https://zoom.us/j/154396011 Or by Phone:  669 900 6833, Meeting ID: 154 396 011 Questions? Please contact: BobLouden@yahoo.com  We look forward to “seeing” you there!

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Philadelphia Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Philadelphia Chapter Meeting Saturday, Dec. 3rd, 2022 10am – 12pm ET Wissahickon Valley Public Library, 650 Skippack Pike, Blue Bell PA 19422 (Zoom line for those who need to call in):  https://us02web.zoom.us/j/87939719109?pwd=TkJIWCt0RWtTWVU4cGtRNmxPcHlsZz09 We hope you will join us for the next meeting of the Greater Philadelphia Chapter! In our September meeting, there was a lot... Read More »

NorTex End of Year Celebration

Napoli's Restaurant 2865 McDermott Rd. #235, Plano, TX

As 2022 comes close to an end, we want to celebrate this amazingly hopeful year with YOU! Please join us for some fun! WHEN: Saturday, December 3th, 2022  12pm – 2pm WHERE: Napoli's Restaurant - 2865 McDermott Rd. #235 Plano, TX 75025 WHO: YOU and your family, and all of our friends who are travelling the FSHD journey... Read More »

Colorado End of Year Get Together

Brothers Bar and Grill 7407 Park Meadows Drive, Lone Tree, CO

Please join us for appetizers and drinks! WHEN: Sunday December 4th, 2022  4pm – 6pm WHERE: Brothers Bar & Grill – 7407 Park Meadows Drive, Lone Tree CO 80129 WHO: YOU and your family, and all of our friends who are travelling the FSHD journey WHAT: While we catchup with one another and enjoy food and beverages, we’ll get... Read More »

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Ontario End of Year Get Together

Starbucks Scarborough Ontario 43 Milner Ave Unit 2, Scarborough, Ontario

As 2022 comes close to an end, we want to celebrate this amazingly hopeful year with YOU! Please join us for coffe and treats at a casual end-of-year get together! WHEN: Saturday December 10th, 2022 at 11am WHERE: Starbucks -  43 Milner Ave. Unit 2, Scarborough, ON M1S 3P6 WHO: You and your family, and... Read More »

San Diego Chapter Meeting and Holiday Party

Avidity Biosciences 10975 N Torrey Pines Rd., La Jolla, CA

Please join us for a Chapter Meeting and Holiday Party!                 Light refreshments and beverages will be provided. Researchers from the Avidity Team will offer tours of their laboratories, where the team is actively working on advancing treatment options for the FSHD community. If you would like to... Read More »

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Western Washington FSHD Community Group Meeting

Western Washington Support Group Washington

The Western Washington FSHD Community Group invites you to join them virtually, every month on the 4th Saturday via Zoom web conference: Join Zoom Meeting from your computer or tablet: https://zoom.us/j/154396011 Or by Phone:  669 900 6833, Meeting ID: 154 396 011 Questions? Please contact: BobLouden@yahoo.com  We look forward to “seeing” you there!

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

Event Series FSHD Radio Sequester Camp

FSHD Radio Sequester Camp

Facebook Live

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on... Read More »

East TN Chapter Meeting

Zoom Virtual Meeting

We hope you will join us for the first Chapter meeting of the year! Reconnect with old friends, and meet some new folks from our region. This will be a casual meeting, but please feel free to bring your questions, thoughts and ideas about anything you’d like to see the group do in 2023! We’re... Read More »

North Carolina Chapter “Third Thursdays”

Zoom Virtual Meeting

Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific agenda or topic, but we are looking forward to catching up with everyone, and sharing our updates... Read More »

NYC/NJ Area Virtual Chapter Meeting

Virtual Denver

​​​​​ Saturday, January 21, 2023 10:00-11:00am Eastern Time Join us via Zoom HERE We hope you will join us for the first Chapter meeting of the year! Reconnect with old friends, and meet some new folks from our region. This will be a casual meeting, but please feel free to bring your questions, thoughts and... Read More »

Bay Area Chapter Meeting

Stanford University 453 Quarry Road, Palo Alto, CA

Chapter Meeting Sunday, January 22, 2023 1:00pm - 3:00pm Pacific Time Stanford University, Center for Academic Medicine, Grand Rounds Room 125 453 Quarry Road, Palo Alto, CA 94304 Our January 22, 2023 San Francisco Bay Area Chapter of the FSHD Society will be our Kick Off meeting for 2023. We look forward to seeing everyone... Read More »

Pacific Northwest’s Valentine’s Day Cocktails and Clinical Trials

Chris Haven 12005 7th Ave NW, Seattle, CA

February 11, 2023 2:00pm – 4:30 pm   Join us for this informative discussion about trials while sipping on a special pre-Valentine’s Day cocktail (N/A available) celebrating FSHD. Have you wondered about participating in a trial? Are you involved in a trial? Come join us to discuss the requirements and how you can prepare for... Read More »

North Carolina Chapter “Third Thursdays”

Zoom Virtual Meeting

Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific agenda or topic, but we are looking forward to catching up with everyone, and sharing our updates... Read More »

Tampa Chapter Meeting

True Food Kitchen 3645 Midtown Dr, Tampa, FL

Dear Friends, Please mark your calendars for a get-together in Tampa! We'll be meeting up at the True Food Kitchen, and if the weather is nice enough, we'll enjoy our time together out on the patio. This will be an informal gathering, with no particular agenda - but we'd love to hear your ideas or... Read More »

Ontario Virtual Chapter Meeting

Virtual TX

Saturday, February 25, 2023 10:00am ET Please join us for our first Chapter meeting of 2023! Grab a cup of coffee and join us for a casual discussion and Q&A with other members of our Ontario FSHD Community. Time to reconnect with old friends. meet new ones, and help us plan for the year. Hope... Read More »

Alberta Chapter Inaugural (Virtual) Meeting

Please join us for the first Alberta Chapter Meeting (virtual) on Sunday, March 12th at 10:00am MT via ZOOM! Please RSVP! Come and meet the Chapter Co-Directors, Jennie and Karen Camarta, and hear about our exciting plans to build the FSHD Community in Canada as we prepare for upcoming clinical trials. You can get the latest information about... Read More »

British Columbia Inaugural (Virtual) Chapter Meeting

Join us for the first official meeting as the new BC Chapter of the FSHD Society! We will meet virtually on Wednesday, March 15th 2023 at 7pm PT.  Please RSVP to receive the zoom link. Come meet the Chapter Co-Directors, Priscilla Sharun and Cheryl Hooge. Our special guest for this meeting is Neil Camarta, the founder... Read More »

North Carolina Chapter “Third Thursdays”

Zoom Virtual Meeting

Dear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this casual, conversational monthly meeting. We have no specific agenda or topic, but we are looking forward to catching up with everyone, and sharing our updates... Read More »

East TN Chapter Meeting

East Tennessee knoxville, TN

Come meet us! East TN Chapter Meeting Tuesday, March 21, 2023 5:00pm - 6:00pm Eastern Time ​Cedar Bluff Branch Library Cedar Bluff Meeting Room 9045 Cross Park Drive Knoxville, TN 37923   Dear friends, Please pencil us in for an in-person chapter meeting! We are so excited to get the group back together again to... Read More »

Greater Philadelphia Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Come meet us! Greater Philadelphia Chapter Meeting Saturday, March 25, 2023 10:00am - 12:00pm Eastern Time ​Wissahickon Valley Public Library 650 W Skippack Pike Blue Bell, PA 19422 Or via Zoom: Click here to join Dear friends, Please pencil us in for the next chapter meeting! This will be an informal gathering, and if you have... Read More »

North Texas Happy Hour

Down South Kitchen & Bakery 6500 Cascades CT Ste. 100, The Colony, TX

Chapter Happy Hour Saturday, March 25, 2023 11:30am - 1:30pm CT Down South Kitchen & Bakery 6500 Cascades CT Ste. 100 The Colony, TX 75056 Dear Friends, Please mark your calendars for the NorTex Chapter Happy Hour in The Colony! We'll be meeting up at the Down South Kitchen & Bakery to eat, chat, and... Read More »