Lighting the Way to a Cure

Columbus Chapter Meeting

Discovery Auditorium, Nationwide Children's Hospital 700 Childrens Dr, Columbus

Saturday, Dec. 11th, 2021 1pm – 2:30pm ET Discovery Auditorium, Nationwide Children’s Hospital 700 Children’s Drive Columbus, OH 43205 Please join us for an exciting Columbus Chapter Meeting, held at... Read More »

Bay Area Virtual Chapter Meeting

Bay Area Virtual San Francisco, CA

Sunday, December 12, 2021 12:00pm - 1:00pm PT Please join us as Dr. Bill Lewis provided information about participating in the research study he is heading up at UC Davis.... Read More »

Early Onset Parent Roundtable

Virtual Denver

Tuesday, December 14, 2021 8:00pm Eastern/5:00pm Pacific Please join us for the December Early-Onset Parent Roundtable, where parents meet to exchange ideas, offer support, and gain insight to keep our... Read More »

GenZ of FSHD

4:00 PM ET | 3:00 PM CT | 2:00 PM MT | 1:00 PM PT This is the virtual meeting of the GenZ of FSHD group, for people with FSHD... Read More »


Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Idaho Talent Fest 2022!

Nampa Civic Center 311 3rd St S, Nampa, ID

Idaho Talent Fest 2022 - Saturday, April 9th Online auditions January 10 - February 13 Online voting February 15 - 27 March 1, 2022 Finalists Announced!  The FSHD Society, Idaho Chapter,  will be... Read More »

2022 FSHD Connect

Orlando, FL orlando, FL

FSHD Connect is the FSHD Society's flagship educational conference. Held every two years, it is the world's biggest networking event for FSHD, bringing together hundreds of individuals and families living... Read More »