Lighting the Way to a Cure

Western PA Chapter Meeting: Drum & Roll Launch!

Western PA Virtual Pittsburgh, PA

Thursday, July 1st, 7pm ET | 6pm CT | 5pm MT | 4pm PT Zoom: https://us02web.zoom.us/j/81914065823?pwd=cVc3RFZYMS8zV25BckRsOTc3dEh3Zz09 Please join us for the official launch meeting for the Drum & Roll fundraiser... Read More »

Northeast Florida Virtual Chapter Launch

NE Florida Virtual Jacksonville, FL

Northeast Florida Virtual Chapter Launch! Saturday, July 10th, 1pm ET | 12pm CT | 11am MT | 10am PT Zoom: https://us02web.zoom.us/j/86413001263?pwd=ZEFwRzBSb2NNZ3RaTC9WcERtcXdHUT09 We hope you will be able to join us... Read More »

Idaho Talent Fest

Nampa Civic Center 311 3rd St S, Nampa, ID

Announcing the First Annual Idaho Talent Fest! July 10, 2021 We are proud to host the first annual Idaho Talent Fest to Cure FSH Muscular Dystrophy on July 10th. This... Read More »

New England Wellstone Update Meeting

UMass Medical School Wellstone Center for FSHD 373 Plantation Street, Worcester, MA

New England Wellstone Update meeting, Tuesday July 13th at 5pm ET. We will be joined by Dr. Lawrence Hayward of the UMass Wellstone Center. He will provide research updates from... Read More »

Pacific Northwest Re: Connect

Pacific Bonzai Museum 2515 S 336th St, federal way, WA

Pacific Northwest Re: Connect Pacific Bonzai Museum 2515 S 336th St, Federal Way, WA 98003 Sunday, July 18, 2021 1:30 pm - 4:00 pm PT Join us in the courtyard... Read More »

Ontario Virtual Chapter Meeting

Ontario Ontario, Ontario

Saturday July 24th 10a-11:30a ET Time: Jul 24, 2021 10:00 AM Eastern Time (US and Canada) Join from your computer or tablet: https://us02web.zoom.us/j/88086370976?pwd=Qkp2amJTUkhzWVpUVVF6UXA3a1Z4Zz09 Meeting ID: 880 8637 0976, Passcode: 191212... Read More »

Connecticut Re:Connect

Riverview Waterfront 177 Roosevelt Drive, Seymour, CT

Connecticut Connections _______ Saturday, July 24, 2021 12:00pm-4:30pm Riverview Waterfront Cookout 177 Roosevelt Drive, Seymour, CT 06483 www.riverviewwaterfront.com The Connecticut Connections group will be hosting a picnic to celebrate everything... Read More »

ArkLaTex Virtual Meet-and-Greet

Virtual Denver,

ArkLaTex Area August 12, 2021 6:00pm CT Join us HERE Thanks to everyone who responded to Jeff Anderson about getting a local group together here. Please join us for our... Read More »

Dakotas Chapter Meeting

Brandenburg Crew Real Estate Team Office 3369 45th Street S, Fargo, ND

Dakotas Chapter Meeting Sunday, August 15, 2021 Brandenburg Crew Real Estate Team Office 3369 45th Street S, Fargo, ND 58104 1:00pm CT Please join us as we get together for... Read More »

2021 UPIN Family Day at the Zoo!

Utah Hogle Zoo 2600 Sunnyside Ave. S, Salt Lake City, UT

The FSHD Society is happy to support the UPIN FAMILY Day at the Zoo! August 21st at 10:00am As long-time partners and supporters of the Utah Program for Inherited Neuromuscular... Read More »

Virginia Chapter Virtual Meeting

Virginia VA

Virginia Chapter virtual meeting, with Dr. Nicholas Johnson Tuesday, August 24th, 2021 6pm ET | 5pm CT | 4pm MT | 3pm PT Via Zoom:  https://us02web.zoom.us/j/85293744362?pwd=ZG9rTnB2MmIrTjR5YU5BK2pna01jUT09 Please join us for... Read More »

Avidity Walk & Roll Gathering

Avidity Biosciences 10975 N Torrey Pines Rd., La Jolla, CA

SORRY FOR THE LATE NOTICE, EVENTS HAVE BEEN CANCELLED FOR TODAY!   1:15pm – 2:15pm PT | August 27, 2021 10975 N. Torrey Pines Rd. Suite 150 La Jolla, CA... Read More »

FSHD 360 University of Colorado

Douglas County Library – Parker Event Hall A&B, 20105 Mainstreet, Parker, CO

REGISTER NOW! Meet the outstanding clinicians and researchers at the University of Colorado, which joined the FSHD Clinical Trial Research Network last year. Dr. Matthew Wicklund and his team will... Read More »

Bay Area Gathering at Stanford

Saturday, August 28, 2021 12:00pm - 3:00pm Pacific We hope that all of our chapter members can join us for an informal, in-person, outdoor gathering on Saturday, August 28, from Noon to... Read More »

2021 Chicago Walk & Roll to Cure FSHD!

Chicago IL

Please mark your calendars for the Virtual  2021 Chicago Walk & Roll! We will see you on Saturday, September 11, 2021 Please reach out to the Chapter Director, Dave Lukas,... Read More »

2021 Columbus Walk & Roll to Cure FSHD!

Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OH

Please mark your calendars for the 2021 Columbus Walk & Roll to Cure FSHD! We will see you on Saturday, September 11, 2021 Please reach out to the Walk Leader,... Read More »

2021 New England Walk & Roll to Cure FSHD!

Optum Building Rooftop 1325 Boylston Street, Boston, MA

Please mark your calendars for the 2021 New England Walk & Roll! Join us for a lunch celebration on the Optum Roofdeck from 11:00am - 2:00pm Please reach out to... Read More »

2021 Colorado Walk & Roll to Cure FSHD!

Phillip S. Miller Park 1375 W Plum Creek Pkwy, Castle Rock, CO

Please mark your calendars for the 2021 Colorado Walk & Roll! We will see you on Sunday, September 12, 2021 Please reach out to the Walk Leader, Anne Babcock, with... Read More »

2021 South Carolina Walk & Roll to Cure FSHD!

Myrtle Beach Myrtle Beach, South Carolina

Please mark your calendars for the 2021 South Carolina Walk & Roll! We will see you on Saturday, September 12, 2021 Please reach out to the Chapter Director, Sam Miller,... Read More »

San Diego re:Connect

San Diego San Diego, CA

Tuesday, September 14, 2021 11:30am - 2:00pm Join HERE Please join us as we re:Connect as a chapter on Tuesday, September 14th. We are planning on virtual for now, but... Read More »

2021 NE Florida Walk & Roll to Cure FSHD!

Jacksonville Zoo 370 Zoo Pkwy, Jacksonville, FL

Please mark your calendars for the 2021 NE Florida Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Christi Thissen,... Read More »

2021 Ontario Walk & Roll to Cure FSHD!

Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga, Ontario

Please mark your calendars for the 2021 Ontario Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Walk Leader, Steve Johnston, with... Read More »

2021 International Walk & Roll to Cure FSHD!

International Virtual Walk & Roll

Please mark your calendars for the 2021 International Walk & Roll! We will "see" you virtually on Saturday, September 18, 2021! Please reach out to the FSHD Society with any... Read More »

2021 Dakotas Walk & Roll to Cure FSHD!

Urban Plains Park 3020 51st Street, Fargo, ND

Please mark your calendars for the 2021 Dakotas Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Bryan Domholt, with... Read More »

2021 Idaho Walk & Roll to Cure FSHD

Julius M. Kleiner Memorial Park 1900 N. Records Ave, Meridian, ID

Register Today! The Idaho Walk & Roll to Cure FSHD will take place on Saturday, September 18th. This event is for everyone who want sto make a difference for FSHD.... Read More »

2021 St. Louis Walk & Roll to Cure FSHD!

Boulevard Park - Lake St. Louis, MO 2550 Lake St Louis Blvd, Lake St. Louis, MO

Please mark your calendars for the 2021 St. Louis Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Marsha Sverdrup,... Read More »

2021 Utah Walk & Roll to Cure FSHD!

Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UT

Please mark your calendars for the 2021 Utah Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Allison Calder, with... Read More »

2021 California Walk & Roll to Cure FSHD!

California Los Angeles, CA

Please mark your calendars for the VIRTUAL 2021 California Walk & Roll! We will "see" you on Saturday, September 18, 2021 Please reach out to the Chapter Directors, Amy Bekier or... Read More »

2021 Central Texas Walk & Roll to Cure FSHD!

Founders Park Pavillion 419 Founders Park RoadDripping Springs,

Please mark your calendars for the 2021 Central Texas Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Ashley Bryan,... Read More »

2021 Dallas Walk & Roll to Cure FSHD!

Dallas Dallas, TX

Please mark your calendars for the 2021 Virtual Dallas Walk & Roll! We will "see" you on Saturday, September 18, 2021 Please reach out to us at FSHCommunity@FSHDSociety.org  

2021 Arizona Walk & Roll to Cure FSHD!

Silverlake Park 2420 South Kino PkwyTucson,

Please mark your calendars for the 2021 Arizona Walk & Roll! We will see you on Saturday, September 18, 2021 Check-in 9am | Ceremonial Walk/Roll 10am at ​Silverlake Park, Tucson... Read More »

2021 Atlanta Walk & Roll to Cure FSHD!

Atlanta, GA Atlanta, GA

Please mark your calendars for the 2021 Atlanta Walk & Roll! We will see you on Saturday, September 18, 2021 Please reach out to the Chapter Director, Jack Gerblick, with... Read More »

2021 Philadelphia Walk & Roll to Cure FSHD!

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Please mark your calendars for the Virtual 2021 Philadelphia Walk & Roll! Though our Walk & Roll will be virtual this year, we will gather for a celebratory Chapter meeting... Read More »

2021 Minnesota Walk & Roll to Cure FSHD!

Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MN

Please mark your calendars for the 2021 Minnesota Walk & Roll! We will see you on Sunday, September 19, 2021 Please reach out to the Chapter Director, Jacob Wise, with... Read More »

2021 Pacific Northwest Walk & Roll to Cure FSHD!

Town Square Park 31600 Pete von Reichbauer Way S,, Federal Way, WA

Please mark your calendars for the 2021 Pacific Northwest Walk & Roll! We will see you on Sunday, September 19, 2021 Please reach out to the Walk & Roll Leader,... Read More »

FSHD 360 UCLA

Tamkin Auditorium, Ronald Reagan Hospital 757 Westwood Plaza, Los Angeles, CA

Meet the dedicated clinicians and researchers at UCLA at this year's FSHD 360 Los Angeles conference. Dr. Perry Shieh and his team will answer your questions about your health, genetic... Read More »

North Carolina Virtual Chapter Meeting

North Carolina NC

Saturday, September 25, 2021 3:00pm-5:00pm Eastern Time Please join us for the next virtual gathering of the North Carolina Chapter, this Saturday, September 25th, 3pm ET! This will be an... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Targeting a Cure

Tampa Bay Sporting Clays 10514 Ehren's Cutoff, Land O'Lakes, FL

Join Us on Saturday, October 2, 2021 George Pollock Jr, Founder of the FSHD Cycling Team, is hosting the first annual "Targeting a Cure for FSHD" to raise awareness and... Read More »

Western PA Chapter Meeting & Celebration

West End-Elliott Overlook Park (Elmer Creek Pavilion) Marlow St., Pittsburgh, PA

Sunday, October 3, 1:00 p.m. West End-Elliott Overlook Park (Elmer Clark Pavilion) Marlow Street, Pittsburgh, PA 15205 Together we can ensure no one on this journey travels alone. The Western... Read More »

New England Connections

Zoom Virtual Meeting

Please join us for our quarterly virtual chapter meeting! We welcome new friends, so please feel free to dial in from anywhere. We look forward to "seeing"/meeting you soon! -Kathy... Read More »

South Carolina Chapter Meeting

Zoom Virtual Meeting

Please JOIN US for our Fall South Carolina Chapter meeting! Tuesday October 12th, 2021 - 8-9 PM Eastern Time Our gatherings are informal, and we welcome new friends! Please stay... Read More »

Chicago Virtual Chapter Meeting

Chicago IL

Saturday, Oct. 23rd, 2021, 10am CT 11am ET | 10am CT | 9am MT | 8am PT Via Zoom:  https://us02web.zoom.us/j/82661566456?pwd=VmhLTXRnNGRqYnkyd2dLRExEUTZaZz09 It’s been a while since we got together as a... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

FSHD 360 VCU

Virginia Commonwealth University Larrick Center, 900 Turpin Street, Richmond, VA

10:00-3:00 pm ET  Virginia Commonwealth University is one of the newer members of the FSHD Clinical Trial Research Network, but its director Nick Johnson, MD, has been a leader in... Read More »

Women on Wellness

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mid-Atlantic Virtual Chapter Meeting

Mid-Atlantic DC

Mid-Atlantic Virtual Chapter Meeting Saturday November 6, 2021 10:00am-11:00am ET We hope you will be able to join us for a very exciting virtual meeting with the Mid-Atlantic Chapter! We... Read More »

Western PA Drum & Roll

Andrew Carnegie Free Library and Music Hall 300 Beechwood Avenue, Carnegie, PA

Please mark your calendars: The 2021 Western PA Drum & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, November 6th, 2021! Event information can... Read More »

Magic for a Cure

Kolo Klub Hoboken, NJ

Please join us for "Magic for a Cure" for FSH Muscular Dystrophy on Thursday, November 18th at the Kolo Klub in Hoboken NJ! Celebrity Magician, John Stessel, will MC an... Read More »

Ontario Virtual Chapter Meeting

Ontario Ontario, Ontario

Saturday, November 20, 2021 11:00am-12:30am ET Please join fellow patient Emily Caouette for an extended-length session as she shares her FSH journey. Learn how she's improved her pain from years of... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Columbus Chapter Meeting

Discovery Auditorium, Nationwide Children's Hospital 700 Childrens DrColumbus,

Saturday, Dec. 11th, 2021 1pm – 2:30pm ET Discovery Auditorium, Nationwide Children’s Hospital 700 Children’s Drive Columbus, OH 43205 Please join us for an exciting Columbus Chapter Meeting, held at... Read More »

GenZ of FSHD

4:00 PM ET | 3:00 PM CT | 2:00 PM MT | 1:00 PM PT This is the virtual meeting of the GenZ of FSHD group, for people with FSHD... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »