Lighting the Way to a Cure

2021 Minnesota Walk & Roll to Cure FSHD!

Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MN

Please mark your calendars for the 2021 Minnesota Walk & Roll! We will see you on Sunday, September 19, 2021 Please reach out to the Chapter Director, Jacob Wise, with... Read More »

2021 Pacific Northwest Walk & Roll to Cure FSHD!

Town Square Park 31600 Pete von Reichbauer Way S,, Federal Way, WA

Please mark your calendars for the 2021 Pacific Northwest Walk & Roll! We will see you on Sunday, September 19, 2021 Please reach out to the Walk & Roll Leader,... Read More »

FSHD 360 UCLA

Tamkin Auditorium, Ronald Reagan Hospital 757 Westwood Plaza, Los Angeles, CA

Meet the dedicated clinicians and researchers at UCLA at this year's FSHD 360 Los Angeles conference. Dr. Perry Shieh and his team will answer your questions about your health, genetic... Read More »

North Carolina Virtual Chapter Meeting

North Carolina NC

Saturday, September 25, 2021 3:00pm-5:00pm Eastern Time Please join us for the next virtual gathering of the North Carolina Chapter, this Saturday, September 25th, 3pm ET! This will be an... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Targeting a Cure

Tampa Bay Sporting Clays 10514 Ehren's Cutoff, Land O'Lakes, FL

Join Us on Saturday, October 2, 2021 George Pollock Jr, Founder of the FSHD Cycling Team, is hosting the first annual "Targeting a Cure for FSHD" to raise awareness and... Read More »

Western PA Chapter Meeting & Celebration

West End-Elliott Overlook Park (Elmer Creek Pavilion) Marlow St., Pittsburgh, PA

Sunday, October 3, 1:00 p.m. West End-Elliott Overlook Park (Elmer Clark Pavilion) Marlow Street, Pittsburgh, PA 15205 Together we can ensure no one on this journey travels alone. The Western... Read More »

New England Connections

Zoom Virtual Meeting

Please join us for our quarterly virtual chapter meeting! We welcome new friends, so please feel free to dial in from anywhere. We look forward to "seeing"/meeting you soon! -Kathy... Read More »

South Carolina Chapter Meeting

Zoom Virtual Meeting

Please JOIN US for our Fall South Carolina Chapter meeting! Tuesday October 12th, 2021 - 8-9 PM Eastern Time Our gatherings are informal, and we welcome new friends! Please stay... Read More »

Chicago Virtual Chapter Meeting

Chicago IL

Saturday, Oct. 23rd, 2021, 10am CT 11am ET | 10am CT | 9am MT | 8am PT Via Zoom:  https://us02web.zoom.us/j/82661566456?pwd=VmhLTXRnNGRqYnkyd2dLRExEUTZaZz09 It’s been a while since we got together as a... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

FSHD 360 VCU

Virginia Commonwealth University Larrick Center, 900 Turpin Street, Richmond, VA

10:00-3:00 pm ET  Virginia Commonwealth University is one of the newer members of the FSHD Clinical Trial Research Network, but its director Nick Johnson, MD, has been a leader in... Read More »

Mid-Atlantic Virtual Chapter Meeting

Mid-Atlantic DC

Mid-Atlantic Virtual Chapter Meeting Saturday November 6, 2021 10:00am-11:00am ET We hope you will be able to join us for a very exciting virtual meeting with the Mid-Atlantic Chapter! We... Read More »

Western PA Drum & Roll

Andrew Carnegie Free Library and Music Hall 300 Beechwood Avenue, Carnegie, PA

Please mark your calendars: The 2021 Western PA Drum & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, November 6th, 2021! Event information can... Read More »

Magic for a Cure

Kolo Klub Hoboken, NJ

  Please join us for "Magic for a Cure" for FSH Muscular Dystrophy on Thursday, November 18th at the Kolo Klub in Hoboken NJ! Celebrity Magician, John Stessel, will MC... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Columbus Chapter Meeting

Nationwide Children’s Hospital’s, Center for Gene Therapy 700 Children's Drive - Columbus, Columbus, OH

Saturday, Dec. 11th, 2021 1pm – 2:30pm ET Harper Lab, Center for Gene Therapy, Nationwide Children’s Hospital 700 Children’s Drive, Rm. WA3015 Columbus, OH 43205 Please join us for an... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

2022 FSHD Connect

Orlando, FL orlando, FL

FSHD Connect is the FSHD Society's flagship educational conference. Held every two years, it is the world's biggest networking event for FSHD, bringing together hundreds of individuals and families living... Read More »