Lighting the Way to a Cure

Chicago Virtual Chapter Meeting

Chicago IL

Saturday, Oct. 23rd, 2021, 10am CT 11am ET | 10am CT | 9am MT | 8am PT Via Zoom:  https://us02web.zoom.us/j/82661566456?pwd=VmhLTXRnNGRqYnkyd2dLRExEUTZaZz09 It’s been a while since we got together as a... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

FSHD 360 VCU

Virginia Commonwealth University Larrick Center, 900 Turpin Street, Richmond, VA

10:00-3:00 pm ET  Virginia Commonwealth University is one of the newer members of the FSHD Clinical Trial Research Network, but its director Nick Johnson, MD, has been a leader in... Read More »

Women on Wellness

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This is our mutual support and social group for women... Read More »

Mid-Atlantic Virtual Chapter Meeting

Mid-Atlantic DC

Mid-Atlantic Virtual Chapter Meeting Saturday November 6, 2021 10:00am-11:00am ET We hope you will be able to join us for a very exciting virtual meeting with the Mid-Atlantic Chapter! We... Read More »

Western PA Drum & Roll

Andrew Carnegie Free Library and Music Hall 300 Beechwood Avenue, Carnegie, PA

Please mark your calendars: The 2021 Western PA Drum & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, November 6th, 2021! Event information can... Read More »

Magic for a Cure

Kolo Klub Hoboken, NJ

Please join us for "Magic for a Cure" for FSH Muscular Dystrophy on Thursday, November 18th at the Kolo Klub in Hoboken NJ! Celebrity Magician, John Stessel, will MC an... Read More »

Ontario Virtual Chapter Meeting

Ontario Ontario, Ontario

Saturday, November 20, 2021 11:00am-12:30am ET Please join fellow patient Emily Caouette for an extended-length session as she shares her FSH journey. Learn how she's improved her pain from years of... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Columbus Chapter Meeting

Discovery Auditorium, Nationwide Children's Hospital 700 Childrens Dr, Columbus

Saturday, Dec. 11th, 2021 1pm – 2:30pm ET Discovery Auditorium, Nationwide Children’s Hospital 700 Children’s Drive Columbus, OH 43205 Please join us for an exciting Columbus Chapter Meeting, held at... Read More »

Bay Area Virtual Chapter Meeting

Bay Area Virtual San Francisco, CA

Sunday, December 12, 2021 12:00pm - 1:00pm PT Please join us as Dr. Bill Lewis provided information about participating in the research study he is heading up at UC Davis.... Read More »

Early Onset Parent Roundtable

Virtual Denver

Tuesday, December 14, 2021 8:00pm Eastern/5:00pm Pacific Please join us for the December Early-Onset Parent Roundtable, where parents meet to exchange ideas, offer support, and gain insight to keep our... Read More »

GenZ of FSHD

4:00 PM ET | 3:00 PM CT | 2:00 PM MT | 1:00 PM PT This is the virtual meeting of the GenZ of FSHD group, for people with FSHD... Read More »

Recurring

Virginia Monthly Meeting

Virginia VA

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Idaho Talent Fest 2022!

Nampa Civic Center 311 3rd St S, Nampa, ID

Idaho Talent Fest 2022 - Saturday, April 9th Online auditions January 10 - February 13 Online voting February 15 - 27 March 1, 2022 Finalists Announced!  The FSHD Society, Idaho Chapter,  will be... Read More »

2022 FSHD Connect

Orlando, FL orlando, FL

FSHD Connect is the FSHD Society's flagship educational conference. Held every two years, it is the world's biggest networking event for FSHD, bringing together hundreds of individuals and families living... Read More »