Lighting the Way to a Cure

Magic for a Cure

Kolo Klub Hoboken, NJ

Please join us for "Magic for a Cure" for FSH Muscular Dystrophy on Thursday, November 18th at the Kolo Klub in Hoboken NJ! Celebrity Magician, John Stessel, will MC an... Read More »

Ontario Virtual Chapter Meeting

Ontario Ontario, Ontario

Saturday, November 20, 2021 11:00am-12:30am ET Please join fellow patient Emily Caouette for an extended-length session as she shares her FSH journey. Learn how she's improved her pain from years of... Read More »

Recurring

Virginia Monthly Meeting

Zoom Virtual Meeting

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Columbus Chapter Meeting

Discovery Auditorium, Nationwide Children's Hospital 700 Childrens Dr, Columbus

Saturday, Dec. 11th, 2021 1pm – 2:30pm ET Discovery Auditorium, Nationwide Children’s Hospital 700 Children’s Drive Columbus, OH 43205 Please join us for an exciting Columbus Chapter Meeting, held at... Read More »

Bay Area Virtual Chapter Meeting

Bay Area Virtual San Francisco, CA

Sunday, December 12, 2021 1:00pm - 2:00pm PT Please join us as Dr. Bill Lewis provided information about participating in the research study he is heading up at UC Davis.... Read More »

Early Onset Parent Roundtable

Virtual Denver

Tuesday, December 14, 2021 8:00pm Eastern/5:00pm Pacific Please join us for the December Early-Onset Parent Roundtable, where parents meet to exchange ideas, offer support, and gain insight to keep our... Read More »

GenZ of FSHD

4:00 PM ET | 3:00 PM CT | 2:00 PM MT | 1:00 PM PT This is the virtual meeting of the GenZ of FSHD group, for people with FSHD... Read More »

Virginia Monthly Meeting

Zoom Virtual Meeting

Please join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »

Pacific Northwest Virtual Chapter Meeting

Seattle, Washington Seattle, WA

Saturday, January 15, 2022 10:00am-11:30am PT   Please join us for coffee hour for a casual meet up to plan future meetings and to check in with other chapter members!... Read More »

Southwest Florida In-Person Chapter Meeting

Southwest Florida Naples, FL

SW Florida In-person Chapter Meeting Sunday, February 06, 2022 3:30pm ET Happy 2022! It’s been such a long time since we’ve been able to gather as a chapter. Let’s change... Read More »

New England Virtual Chapter Meeting

New England Boston, MA

Wednesday, February 9, 2022 7:00pm-8:00pm EST Please join us for the first New England chapter meeting of 2022! We look forward to “seeing” everyone again soon. This meeting will be... Read More »

Idaho Talent Fest 2022!

Nampa Civic Center 311 3rd St S, Nampa, ID

Idaho Talent Fest 2022 - Saturday, April 9th Online auditions January 10 - February 13 Online voting February 15 - 27 March 1, 2022 Finalists Announced!  The FSHD Society, Idaho Chapter,  will be... Read More »

2022 FSHD Connect

Orlando, FL orlando, FL

FSHD Connect is the FSHD Society's flagship educational conference. Held every two years, it is the world's biggest networking event for FSHD, bringing together hundreds of individuals and families living... Read More »