CarePartner Hour: Helping with self-care
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved... Read More »
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Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
CarePartner Hour: Helping with self-care
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual MeetingTuesday, January 17th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
East TN Chapter Meeting
Zoom Virtual MeetingWe hope you will join us for the first Chapter meeting of the year! Reconnect with old friends, and meet some new folks from our region. This will be a... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual MeetingDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
NYC/NJ Area Virtual Chapter Meeting
Virtual Denver Saturday, January 21, 2023 10:00-11:00am Eastern Time Join us via Zoom HERE We hope you will join us for the first Chapter meeting of the year! Reconnect with old... Read More »
Bay Area Chapter Meeting
Stanford University 453 Quarry Road, Palo Alto, CAChapter Meeting Sunday, January 22, 2023 1:00pm - 3:00pm Pacific Time Stanford University, Center for Academic Medicine, Grand Rounds Room 125 453 Quarry Road, Palo Alto, CA 94304 Our January... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, January 26th On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will... Read More »
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Feeling Fit with FSHD: Lonwabo’s journey Part 2
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Lonwabo Nene Join us for Q&A and discussion to follow up on Lonwabo Nene's... Read More »
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CarePartner Hour: What are your “needs”?
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT What does your partner need from you or someone who helps with their care? This came... Read More »
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Women on Wellness: Life Hacks
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Let’s learn from each other by sharing great tricks for... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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Feeling Fit with FSHD: postural changes
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join physiotherapist Ulrike Uta of the... Read More »
Pacific Northwest’s Valentine’s Day Cocktails and Clinical Trials
Chris Haven 12005 7th Ave NW, Seattle, CAFebruary 11, 2023 2:00pm – 4:30 pm Join us for this informative discussion about trials while sipping on a special pre-Valentine’s Day cocktail (N/A available) celebrating FSHD. Have you... Read More »
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Wellness Hour
Wellness Hour – Toward Hope
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will be joined by crisis counselors Kylee Helmke and Andrea Morales to... Read More »
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FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, February 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »
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FSHD University: FORTITUDE A Phase 1/2 Clinical Trial of AOC 1020 in Adults with FSHD
Zoom Web ConferenceLearn about the FDA's recent fast track designation for Avidity's FSHD therapeutic here. 1:00 pm ET | noon CT | 11:00 am MT | 10:00 am PT | 18:00 GMT... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual MeetingDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Tampa Chapter Meeting
True Food Kitchen 3645 Midtown Dr., Tampa, FLDear Friends, Please mark your calendars for a get-together in Tampa! We'll be meeting up at the True Food Kitchen, and if the weather is nice enough, we'll enjoy our... Read More »
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Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, February 23rd On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD: Postural Changes Part 2
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Ulrike Uta will join us to... Read More »
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FSHD University – Rita Perlingeiro on stem cell research
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT | 18:00 UK | 19:00 CET Dr. Rita Perlingeiro Our webinar speaker is Dr. Rita... Read More »
Ontario Virtual Chapter Meeting
Virtual TXSaturday, February 25, 2023 10:00am ET Please join us for our first Chapter meeting of 2023! Grab a cup of coffee and join us for a casual discussion and Q&A... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
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CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month is continuing last month's talk about How do we take care of... Read More »
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CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
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Women on Wellness
Women on Wellness – Keeping up appearances
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will continue our conversations about Challenges (and... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
San Diego Brew Quest to Cure FSHD
San Diego San Diego, CAMarch 9 - 26 Brew Quest – A Quest to Cure FSHD Fundraising for FSHD Society Discover new breweries around the Kearny Mesa/Miramar/Mira Mesa area while supporting our organization. At... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD: Hands and arms
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »
Alberta Chapter Inaugural (Virtual) Meeting
Please join us for the first Alberta Chapter Meeting (virtual) on Sunday, March 12th at 10:00am MT via ZOOM! Please RSVP! Come and meet the Chapter Co-Directors, Jennie and Karen Camarta, and... Read More »
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Wellness Hour
Wellness Hour – “Movie Night”
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we will discuss a film, I Didn’t See You There. The idea is... Read More »
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FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, March 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »
Featured
Young Professionals
Young Professionals
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
British Columbia Inaugural (Virtual) Chapter Meeting
Join us for the first official meeting as the new BC Chapter of the FSHD Society! We will meet virtually on Wednesday, March 15th 2023 at 7pm PT. Please RSVP to... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual MeetingDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
East TN Chapter Meeting
East Tennessee knoxville, TNCome meet us! East TN Chapter Meeting Tuesday, March 21, 2023 5:00pm - 6:00pm Eastern Time Cedar Bluff Branch Library Cedar Bluff Meeting Room 9045 Cross Park Drive Knoxville, TN... Read More »
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Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, March 23rd On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD: Hands and arms part 2
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »
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FSHD University: Novel treatment strategies for FSHD
Zoom web conference1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »
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Young Professionals
Young Professionals
Zoom Virtual Meeting11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Greater Philadelphia Chapter Meeting
Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PACome meet us! Greater Philadelphia Chapter Meeting Saturday, March 25, 2023 10:00am - 12:00pm Eastern Time Wissahickon Valley Public Library 650 W Skippack Pike Blue Bell, PA 19422 Or via... Read More »
North Texas Happy Hour
Down South Kitchen & Bakery 6500 Cascades CT Ste. 100, The Colony, TXChapter Happy Hour Saturday, March 25, 2023 11:30am - 1:30pm CT Down South Kitchen & Bakery 6500 Cascades CT Ste. 100 The Colony, TX 75056 Dear Friends, Please mark your... Read More »
Houston Area Happy Hour
Johnny Tamales Cantina 4647 East Sam Houston Pkwy S, Pasadena, TXChapter Happy Hour Sunday, March 26, 2023 3:30pm - 5:30pm CT Johnny Tamales Cantina 4647 East Sam Houston Pkwy S Pasadena, TX 77507 Please mark your calendars for the Houston-area... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
New Hampshire Virtual Catch-Up
Zoom Virtual MeetingWednesday, March 29th, 2023 8pm ET | 7pm CT | 6pm MT | 5pm PT Via Zoom: Invite Link Invite Link https://us02web.zoom.us/j/3648329628?pwd=RjAxdHFCanU1RzNtQ0Fnek4zY1hidz09 Dear friends, It’s been such a long time... Read More »
Central Texas Chapter Happy Hour
District Kitchen & Cocktails 7858 Shoal Creek Blvd, Ste. B, Austin, TXChapter Happy Hour Saturday, April 1, 2023 3:30pm - 5:30pm CT District Kitchen & Cocktails (Anderson Lane Location) 7858 Shoal Creek Blvd, Ste. B Austin, TX 78757 Please mark your... Read More »
Colorado Chapter Meeting and Social Gathering!
Lariat Lodge Brewing Company 12684 W Indore Pl, Littleton, COPlease JOIN US for our first Chapter meeting and social gathering of 2023, and to personally welcome our new Chapter Director, Kurt Spiegel! Sunday April 2nd, 2023: 3pm - 5pm Lariat... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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Wellness Hour – All about wheelchairs
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is all about wheelchairs. How do you know when you need... Read More »
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FSHD Radio: Community Profiles with Musician Apex Frazier
Facebook and YouTubeTuesday, April 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
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Young Professionals
Young Professionals: FSHD Journeys & Encouragement
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
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Women on Wellness
Women on Wellness – Looking good!
Zoom Virtual MeetingUPDATED: Date changed this month because of Passover 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we continue our conversations about... Read More »
Nevada Virtual Chapter Meeting
Zoom Virtual MeetingNevada Virtual Chapter Meeting 7:00 PM to 8:00 PM PT Join us on Zoom as we introduce Leslie Truman as our new Nevada Chapter Director! RSVP with the link below... Read More »
New England Chapter Movie Night & Discussion
Zoom Virtual MeetingWednesday, April 12th, 2023 7pm ET | 6pm CT | 5pm MT | 4pm PT Via Zoom: https://us02web.zoom.us/j/83644567187?pwd=MnhSd0lPTVdUQlZYYzhhQ0VCdEI1UT09 Dear friends, I’d like to invite you join me for a lively... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD – Lower extremities
Zoom Virtual Meeting18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “During a check-up, the doctor asked me... Read More »
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Early-Onset Parent Roundtable
Early-Onset Parent Roundtable – Special Needs Financial Planning
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Special Needs Planning Beyond One Day at a Time As a special needs family, living... Read More »
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Young Professionals
Young Professionals: What You Need to Know about Clinical Trials
Zoom Virtual Meeting11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Northeast Florida Chapter Brunch
NE Florida Jacksonville, FLNortheast Florida Chapter Brunch Saturday, April 22nd; 11am - 2pm Noura's Cafe, 1533 University Blvd W, Jacksonville FL 32217 Dear Friends, We hope you can join us for Saturday, April... Read More »
Canceled North Carolina Chapter Lunch
Parkway UCC 1465 Irving Street SW - Winston-Salem, Winston-Salem, NCThis event has been canceled.
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD: Lower extremities Part 2
18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT NOTE DATE CHANGE FROM April 27 to... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
All-Texas Chapter Meeting: Travel Tips
Zoom Virtual MeetingFor this All-Texas Chapter Meeting we will be joined by guest Debra Kerber from Easy Access Travel. She'll be giving us tips on accessible travel! RSVP below.
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FSHD Radio: Hot off the Press with Amanda Hill on the New Era of Clinical Trials
Facebook and YouTubeThursday, April 27th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
Idaho Talent Fest 2023!
Boise State University Special Events Center 1800 W. University Drive, Boise, IDIdaho Talent Fest 2023 - Saturday, April 29th Join us April 29th at the Boise State University's Special Events Center for the 3rd Annual Idaho Talent Fest to Cure FSH Muscular Dystrophy presented... Read More »
North Texas Virtual Chapter Meeting
Virtual DenverNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
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Women on Wellness
Women on Wellness – Managing fatigue
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Fatigue is one of the biggest challenges we face, and... Read More »
British Columbia Virtual Chapter Meeting
Zoom Virtual MeetingHello BC Friends! Please join us for a virtual meeting on May 3rd, 2023 at 6pm PT! Our guest speaker will be Dr. Jamshid Arjomand, Chief Science Officer at the... Read More »
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FSHD University: MANOUEVRE clinical trial
Zoom Web Conference1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT In October 2022, Roche/Genentech shared with us plans to initiate a new trial called MANOEUVRE. This... Read More »
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Rochester FSHD 360
University of Rochester Saunders Research Building 265 Crittenden Blvd., Rochester, NY9:00 a.m. US ET doors open | 10:00-4:00 p.m. US ET conference sessions The FSHD Society, in collaboration with the University of Rochester Medical Center, is hosting this year’s Rochester... Read More »
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Wellness Hour on Friendship: The Elixir of Life
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT In the last few months, a raft of articles have been published on the topic... Read More »
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FSHD Radio: Community Profiles – All About Adoption
Facebook and YouTubeTuesday, May 9th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
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Young Professionals
Young Professionals: Five Approaches to FSHD and Fitness
Zoom Virtual Meeting7:00 pm ET | 6:00 pm CT | 5:00 pm MT | 4:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
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Feeling Fit with FSHD
Feeling Fit with FSHD – Training with Mitch Wade
Zoom Virtual Meeting18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Mitch Wade This month, we're excited to... Read More »
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Early-Onset Parent Roundtable
Early-Onset Parent Roundtable: Speech and swallowing
Zoom Virtual Meeting8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Kiera Berggren Children with early-onset FSHD often struggle with speech and swallowing due to weak... Read More »
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FSHD University: What every newly diagnosed person should know
Zoom Web Conference1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Bakri Elshiekh We want to make sure that newcomers to the FSHD community have an... Read More »