Western PA Virtual Chapter Meeting
Virtual DenverWednesday, June 29th 6pm ET We hope you will join us for the next meeting of the Western PA Chapter! We will discuss takeaways from the recent Patient Connect conference,... Read More »
Loading view.
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
Wellness Hour – How do I talk to my family about FSHD?
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT FSHD is a familial condition, and yet family members can hold different attitudes about how... Read More »
FSHD Radio: Community Profiles with Dylan King
Facebook and YouTubeTuesday, July 12th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
FSHD University – True Cost of FSHD
Zoom Web Conference1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT The FSHD Society is conducting a new survey-based study called “The True Cost of FSHD” and... Read More »
San Diego Chapter Meeting
115 South Clementine Street 115 South Clementine Street, Los Angeles, CASan Diego Chapter Meeting Saturday, July 16, 2022 11:30am-1:30pm Pacific Time 115 South Clementine Street Oceanside, CA 7th Floor Meeting Room Please join us for a potluck lunch! We will be... Read More »
New England Chapter Summer Picnic
New England Air Museum 36 Perimeter Road, Windsor Locks, CTNew England Chapter Summer Picnic Saturday, July 16th 12pm – 4pm (in-person only) New England Air Museum 36 Perimeter Road Windsor Locks, CT 06096 We hope that the entire New... Read More »
Featured
Early-Onset Parent Roundtable
Virtual DenverTuesday, July 19th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
2022 Walk & Roll Team Captain Happy Hour
Virtual DenverTeam Captain Happy Hour! Thursday, July 21st 4pm PT | 5pm MT | 6pm CT | 7pm ET Ending FSHD will take all of us and that’s why the Walk... Read More »
Western Washington FSHD Community Group Meeting
Western Washington Support Group WashingtonThe Western Washington FSHD Community Group invites you to join them virtually, every month on the 4th Saturday via Zoom web conference: Join Zoom Meeting from your computer or tablet: https://zoom.us/j/154396011... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour: Helping with self-care
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, July 28th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 4th Thursday of every month, join us for FSHD Radio:... Read More »
Featured
Women on Wellness – Transitioning to assistive devices
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we continue our discussions about transitioning to assistive... Read More »
Women on Wellness – Transitions in mobility
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Our topic this month is transitions in mobility. How do... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Western PA FSHD Family Picnic
Adams Township Community Park 698 Valencia Rd, Mars, PAFSHD Family Picnic Saturday, August 6th 12pm – 4pm ET Adams Township Community Park 698 Valencia Rd Mars, PA 16046 We hope you can join us for the annual... Read More »
Featured
GenZ of FSHD – Fundraising is empowering
Zoom Virtual Meeting3:00 PM ET 2:00 PM CT | 1:00 PM MT | 12:00 PM PT This month, we'll be talking about fundraising! Maybe this sounds intimidating, but learning how to get... Read More »
Featured
Wellness Hour: Getting to know us
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we'd like to have some fun and give our growing group a chance... Read More »
Featured
FSHD Radio: Community Profiles – Claire Szabo Cassella
Facebook, YouTube, and anywhere you listen to podcastsTuesday, August 9th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Bay Area Chapter Meeting
Bay Area Virtual San Francisco, CABay Area Chapter Meeting Sunday, August 14, 2022 2:00pm - 3:00pm Pacific Time You're invited to a virtual gathering of our San Francisco Bay Area Chapter of the FSHD Society... Read More »
Featured
Early-Onset Parent Roundtable
Virtual DenverTuesday, August 16th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
Florida Chapters Meeting: Tampa, Southwest Florida, and Northeast Florida
Florida Chapters: Tampa, Southwest Florida, and Northeast Florida! Wednesday, August 17th 6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT Please join us for a combined virtual... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
FSHD University – Resilience and FSHD
Zoom Web Conference1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Kent Drescher, PhD Dealing with life’s slings and arrows alongside FSHD may feel like a lot,... Read More »
San Diego Brew Quest to Cure FSHD
August 18-28, 2022 Visit all participating breweries in the San Diego area and have your name entered into a drawing for a flat screen TV. In order to receive a... Read More »
San Diego Chapter Meeting
Virtual DenverSan Diego Chapter Meeting Thursday, August 18, 2022 5:30pm - 6:30pm Pacific Time The San Diego Walk & Roll is only a few weeks away!! Sign up now! Team Captain's Kick... Read More »
UPIN Family Day at the Aquarium
Loveland Living Planet Aquarium 12033 Lone Peak Pkwy, Draper, UTThe 2022 Family Day at the Aquarium! The planet is alive! Explore it with us at the 2022 UPIN Family Day at the Loveland Living Planet Aquarium on Saturday, August... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, August 25th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Our Hot off the Press guest this month is Beth Johnston, FSHD... Read More »
Western Washington FSHD Community Group Meeting
Western Washington Support Group WashingtonThe Western Washington FSHD Community Group invites you to join them virtually, every month on the 4th Saturday via Zoom web conference: Join Zoom Meeting from your computer or tablet: https://zoom.us/j/154396011... Read More »
All Texas Chapter Meeting
Virtual TXAll Texas Chapter Meeting Tuesday, August 30th, 2022 6:30pm - 8:00pm Central Time The CenTex chapter invites you to join us for a research update from Jamshid Arjomand, FSHD Society's... Read More »
Featured
CarePartner Hour – Purchasing equipment
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT We're going to cover two topics this month. The first topic is "Have you purchased equipment... Read More »
CarePartner Hour: Helping with self-care
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Calling all care partners to join us this month for a conversation about helping your loved... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Drum & Roll Kickoff
Western PA Virtual Pittsburgh, PAThursday, September 1, 2022 6:00pm ET Via Zoom We hope you'll join us virtually on September 1st for our official kickoff of the Western Pennsylvania Chapter's 2022 Drum & Roll celebration!... Read More »
Featured
Women on Wellness: Chair yoga and self-compassion
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month is all about self-care. Donna Russo will lead... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
Feeling Fit with FSHD – Abs and Breathing
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are interested in exercise and fitness, we meet... Read More »
2022 San Diego Walk & Roll to Cure FSHD
Harbor Island Park 1875 Harbor Island Dr., San Diego, CAPlease mark your calendars for the 2022 San Diego Walk & Roll to Cure FSHD! We will see you on Saturday, September 10, 2022 Please reach out to the Chapter and... Read More »
2022 Pacific Northwest Walk & Roll to Cure FSHD
Town Square Park 31600 Pete von Reichbauer Way S,, Federal Way, WAPlease mark your calendars for the 2022 Pacific Northwest Walk & Roll to Cure FSHD! We will see you on Saturday, September 10, 2022 Please reach out to the Walk Leader,... Read More »
Greater Philadelphia Chapter Meeting
Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PAGreater Philadelphia Chapter meeting Saturday, Sept. 10th, 10:00am – 12:00pm ET Wissahickon Valley Public Library 650 W Skippack Pike, Blue Bell, PA 19422 We hope you can join us for... Read More »
2022 Colorado Walk & Roll to Cure FSHD
Philip S. Miller Park 1375 W Plum Creek Parkway, Castle Rock, COPlease mark your calendars for the 2022 Colorado Walk & Roll to Cure FSHD! We will see you on Sunday, September 11, 2022 Please reach out to the Walk Leader, Anne... Read More »
2022 Southwest Florida Walk & Roll to Cure FSHD
Baker Park 50 Riverside Circle, NaplesPlease mark your calendars for the 2022 Southwest Florida Walk & Roll to Cure FSHD! We will see you on Sunday, September 11, 2022 Please reach out to Walk Leader, Heloise... Read More »
Featured
Wellness Hour – Sharing your FSHD diagnosis with your family
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we will be discussing how to talk about an FSHD diagnosis with family... Read More »
Featured
FSHD Radio: Community Profiles with Madison Ferris
Facebook and YouTubeTuesday, September 13th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
FSHD University: Exercise and Nutritional Interventions for the Treatment of FSHD
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Mark Tarnopolsky, MD PhD Join us for a talk by Mark Tarnopolsky, MD PhD, Professor... Read More »
2022 Intermountain Walk & Roll to Cure FSHD
Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UTPlease mark your calendars for the 2022 Intermountain Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Kathryn... Read More »
2022 Kansas City Walk & Roll to Cure FSHD
Kansas City Kansas City, MOPlease mark your calendars for the 2022 Kansas City Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader,... Read More »
2022 Canadian National Virtual Walk & Roll to Cure FSHD
Virtual TXPlease mark your calendars for the 2022 Canadian National Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to us, with... Read More »
Featured
2022 Walk & Roll to Cure FSHD Livestream Celebration!
Facebook LiveTim Hollenback, FSHD Radio host Tune in to the 3rd Annual Walk & Roll Livestream Celebration on Facebook@FSHDSociety Saturday, September 17, 2022 9:30am-12:30pm Eastern | 6:30-9:30am Pacific LIVE on our... Read More »
2022 Columbus Walk & Roll to Cure FSHD!
Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OHPlease mark your calendars for the 2022 Columbus Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Chapter Director, Sue... Read More »
2022 Ontario Walk & Roll to Cure FSHD
Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga, OntarioPlease mark your calendars for the 2022 Ontario Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Steve... Read More »
2022 Dakotas Walk & Roll to Cure FSHD
Urban Plains Park 3020 51st Street, Fargo, NDPlease mark your calendars for the 2022 Dakotas Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Bryan... Read More »
2022 Wisconsin Virtual Walk & Roll to Cure FSHD
Wisconsin WIPlease mark your calendars for the 2022 Wisconsin Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader,... Read More »
2022 St. Louis Walk & Roll to Cure FSHD!
Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MOPlease mark your calendars for the 2022 St. Louis Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Chapter Director,... Read More »
2022 South Carolina Virtual Walk & Roll
South Carolina SCPlease mark your calendars for the 2022 South Carolina Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to Walk Leader,... Read More »
2022 Arizona Walk & Roll to Cure FSHD
Arizona AZPlease mark your calendars for the 2022 Arizona Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Ally... Read More »
2022 Chicago Walk & Roll to Cure FSHD
Chicago ILPlease mark your calendars for the 2022 Chicago Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Susie... Read More »
2022 North Carolina Virtual Walk & Roll to Cure FSHD
North Carolina NCPlease mark your calendars for the 2022 North Carolina Walk & Roll to Cure FSHD! Join us virtually from your favorite park, neighborhood, or trail! Saturday, September 17, 2022 Please... Read More »
2022 Philadelphia Virtual Walk & Roll
Philadelphia PAPlease mark your calendars for the 2022 Philadelphia Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out with any questions! Wecan... Read More »
2022 Bay Area Walk & Roll to Cure FSHD
Please mark your calendars for the 2022 Bay Area Walk & Roll to Cure FSHD! We will see you on Sunday, September 18, 2022 Please reach out to the Chapter and Walk... Read More »
Featured
Early-Onset Parent Roundtable
Virtual DenverTuesday, September 20th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
Feeling Fit with FSHD – Abs and Breathing Part 2
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Our meeting on Sept. 8 focused on techniques to strengthen the abs and breathing.... Read More »
Featured
FSHD Radio: Hot off the Press with Amanda Hill
Facebook and YouTubeThursday, September 22nd 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 4th Thursday of every month, join us for FSHD Radio:... Read More »
2022 West Michigan Walk & Roll to Cure FSHD
First Reformed Church 301 Washington Ave, Grand Haven, MIPlease mark your calendars for the 2022 West Michigan Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 Please reach out to the Walk Leader, with... Read More »
2022 North Texas Walk & Roll to Cure FSHD
Dallas Dallas, TXPlease mark your calendars for the 2022 North Texas Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 Please reach out to the Walk Leader,... Read More »
2022 Virginia Walk & Roll to Cure FSHD
Virginia VAPlease mark your calendars for the 2022 Virginia Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 Please reach out to the Walk Leader, Jodie... Read More »
2022 Mid-Atlantic Walk & Roll to Cure FSHD
Mid-Atlantic DCPlease mark your calendars for the 2022 Mid Atlantic Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 at the Alpha Ridge Park in Marriotsville,... Read More »
Western Washington FSHD Community Group Meeting
Western Washington Support Group WashingtonThe Western Washington FSHD Community Group invites you to join them virtually, every month on the 4th Saturday via Zoom web conference: Join Zoom Meeting from your computer or tablet: https://zoom.us/j/154396011... Read More »
2022 NE Florida Walk & Roll to Cure FSHD
Jacksonville Jumbo Shrimp Baseball Stadium 301 A. Philip Randolph Boulevard, Jacksonville, FLPlease mark your calendars for the 2022 NE Florida Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 for a pregame picnic at the Jacksonville... Read More »
2022 Minnesota Walk & Roll to Cure FSHD
Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MNPlease mark your calendars for the 2022 Minnesota Walk & Roll to Cure FSHD! We will see you on Sunday, September 25, 2022 Please reach out to the Chapter Director, Jacob... Read More »
“All of Me” play & Chapter reception
Boyd-Quinson Stage 30 Union Street, Pittsfield, MADear FSHD Society friends, We want to make sure that you know about a fantastic opportunity to support a fellow FSHD’er: The world premiere of the play, All of Me,... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual MeetingPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour – Talking to family and friends
Zoom Virtual Meeting8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT Our topic this month is "Talking about FSHD with family and friends." Sharing a diagnosis when... Read More »
North Texas Virtual Chapter Meeting
Virtual TXNorth Texas Chapter Thursday, September 28, 2022 7:00pm-8:00pm CT Join Us Virtually HERE Please join us on Wednesday, September 28th for a virtual chapter meeting. This will be our time to come... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
2022 New England Walk & Roll to Cure FSHD
Boston Boston, MAPlease mark your calendars for the 2022 New England Walk & Roll to Cure FSHD! We will see you on Saturday, October 1, 2022 Please reach out to the Walk Leader,... Read More »
Featured
Women on Wellness – Pelvic floor issues
Zoom Virtual MeetingFirst Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we will have a physical therapist who specializes... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
Wellness Hour – Coping strategies
Zoom Virtual Meeting5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, join us for a discussion on coping with the changes brought about by... Read More »
Featured
FSHD Radio: Community Profiles with Ranae Beeker
Facebook and YouTubeTuesday, October 11th 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT On the 2nd Tuesday of every month, join us for FSHD Radio:... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
Feeling Fit with FSHD – Low-impact seated exercises
12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are interested in exercise and fitness, we meet... Read More »
2022 Los Angeles Walk & Roll to Cure FSHD
Wilson Park 2200 Crenshaw Blvd, Torrance, CAPlease mark your calendar for the 2022 Los Angeles Walk & Roll to Cure FSHD! We will see you Saturday, October 15, 2022 Please reach out to the Walk Leader,... Read More »
2022 Atlanta Walk & Roll to Cure FSHD!
Chattahoochee Nature Center Ben Brady Lakeside Pavilion 9135 Willeo Rd, Roswell, GAPlease mark your calendars for the 2022 Atlanta Walk & Roll to Cure FSHD! We will see you on Sunday, October 16, 2022 Please reach out to the Chapter Director, Jack... Read More »
Featured
Early-Onset Parent Roundtable – Children and mental health
Virtual DenverTuesday, October 18th 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday... Read More »
FSHD Radio Sequester Camp
Facebook Live9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it's... Read More »
Featured
FSHD University: Bowel and urinary issues in FSHD
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Join Drs. Michael Cole, Kathy Mathews, Christopher Cooper, and Eyad Hanna, of the University of... Read More »
Featured
Utah FSHD 360
University of Utah Guest House & Conference Center 110 Fort Douglas Blvd., Salt Lake City, UT10:00-3:00 PM Mountain Time The FSHD Society, in collaboration with our Utah and Idaho chapters and the University of Utah, is hosting this year’s Utah FSHD 360 conference. The University... Read More »