Western PA Virtual Chapter Meeting

Virtual Denver

Wednesday, June 29th 6pm ET We hope you will join us for the next meeting of the Western PA Chapter! We will discuss takeaways from the recent Patient Connect conference,... Read More »

San Diego Chapter Meeting

115 South Clementine Street 115 South Clementine Street, Los Angeles, CA

San Diego Chapter Meeting Saturday, July 16, 2022 11:30am-1:30pm Pacific Time 115 South Clementine Street Oceanside, CA 7th Floor Meeting Room Please join us for a potluck lunch! We will be... Read More »

New England Chapter Summer Picnic

New England Air Museum 36 Perimeter Road, Windsor Locks, CT

New England Chapter Summer Picnic Saturday, July 16th 12pm – 4pm (in-person only) New England Air Museum 36 Perimeter Road Windsor Locks, CT 06096 We hope that the entire New... Read More »

Western PA FSHD Family Picnic

Adams Township Community Park 698 Valencia Rd, Mars, PA

FSHD Family Picnic Saturday, August 6th 12pm – 4pm ET Adams Township Community Park 698 Valencia Rd Mars, PA 16046   We hope you can join us for the annual... Read More »

Bay Area Chapter Meeting

Bay Area Virtual San Francisco, CA

Bay Area Chapter Meeting Sunday, August 14, 2022 2:00pm - 3:00pm Pacific Time You're invited to a virtual gathering of our San Francisco Bay Area Chapter of the FSHD Society... Read More »

San Diego Brew Quest to Cure FSHD

August 18-28, 2022 Visit all participating breweries in the San Diego area and have your name entered into a drawing for a flat screen TV. In order to receive a... Read More »

San Diego Chapter Meeting

Virtual Denver

San Diego Chapter Meeting Thursday, August 18, 2022 5:30pm - 6:30pm Pacific Time The San Diego Walk & Roll is only a few weeks away!! Sign up now! Team Captain's Kick... Read More »

UPIN Family Day at the Aquarium

Loveland Living Planet Aquarium 12033 Lone Peak Pkwy, Draper, UT

The 2022 Family Day at the Aquarium! The planet is alive! Explore it with us at the 2022 UPIN Family Day at the Loveland Living Planet Aquarium on Saturday, August... Read More »

All Texas Chapter Meeting

Virtual TX

All Texas Chapter Meeting Tuesday, August 30th, 2022 6:30pm - 8:00pm Central Time The CenTex chapter invites you to join us for a research update from Jamshid Arjomand, FSHD Society's... Read More »

Drum & Roll Kickoff

Western PA Virtual Pittsburgh, PA

Thursday, September 1, 2022 6:00pm ET Via Zoom We hope you'll join us virtually on September 1st for our official kickoff of the Western Pennsylvania Chapter's 2022 Drum & Roll celebration!... Read More »

2022 San Diego Walk & Roll to Cure FSHD

Harbor Island Park 1875 Harbor Island Dr., San Diego, CA

Please mark your calendars for the 2022 San Diego Walk & Roll to Cure FSHD! We will see you on Saturday, September 10, 2022 Please reach out to the Chapter and... Read More »

2022 Pacific Northwest Walk & Roll to Cure FSHD

Town Square Park 31600 Pete von Reichbauer Way S,, Federal Way, WA

Please mark your calendars for the 2022 Pacific Northwest Walk & Roll to Cure FSHD! We will see you on Saturday, September 10, 2022 Please reach out to the Walk Leader,... Read More »

Greater Philadelphia Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Greater Philadelphia Chapter meeting Saturday, Sept. 10th, 10:00am – 12:00pm ET Wissahickon Valley Public Library 650 W Skippack Pike, Blue Bell, PA 19422 We hope you can join us for... Read More »

2022 Colorado Walk & Roll to Cure FSHD

Philip S. Miller Park 1375 W Plum Creek Parkway, Castle Rock, CO

Please mark your calendars for the 2022 Colorado Walk & Roll to Cure FSHD! We will see you on Sunday, September 11, 2022 Please reach out to the Walk Leader, Anne... Read More »

2022 Intermountain Walk & Roll to Cure FSHD

Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UT

Please mark your calendars for the 2022 Intermountain Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Kathryn... Read More »

2022 Kansas City Walk & Roll to Cure FSHD

Kansas City Kansas City, MO

Please mark your calendars for the 2022 Kansas City Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader,... Read More »

2022 Columbus Walk & Roll to Cure FSHD!

Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OH

Please mark your calendars for the 2022 Columbus Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Chapter Director, Sue... Read More »

2022 Ontario Walk & Roll to Cure FSHD

Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga, Ontario

Please mark your calendars for the 2022 Ontario Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Steve... Read More »

2022 Dakotas Walk & Roll to Cure FSHD

Urban Plains Park 3020 51st Street, Fargo, ND

Please mark your calendars for the 2022 Dakotas Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Bryan... Read More »

2022 St. Louis Walk & Roll to Cure FSHD!

Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO

Please mark your calendars for the 2022 St. Louis Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Chapter Director,... Read More »

2022 South Carolina Virtual Walk & Roll

South Carolina SC

Please mark your calendars for the 2022 South Carolina Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to Walk Leader,... Read More »

2022 Arizona Walk & Roll to Cure FSHD

Arizona AZ

Please mark your calendars for the 2022 Arizona Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Ally... Read More »

2022 Chicago Walk & Roll to Cure FSHD

Chicago IL

Please mark your calendars for the 2022 Chicago Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Susie... Read More »

2022 Philadelphia Virtual Walk & Roll

Philadelphia PA

Please mark your calendars for the 2022 Philadelphia Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out with any questions! Wecan... Read More »

2022 West Michigan Walk & Roll to Cure FSHD

First Reformed Church 301 Washington Ave, Grand Haven, MI

Please mark your calendars for the 2022 West Michigan Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 Please reach out to the Walk Leader, with... Read More »

2022 Virginia Walk & Roll to Cure FSHD

Virginia VA

Please mark your calendars for the 2022 Virginia Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 Please reach out to the Walk Leader, Jodie... Read More »

2022 NE Florida Walk & Roll to Cure FSHD

Jacksonville Jumbo Shrimp Baseball Stadium 301 A. Philip Randolph Boulevard, Jacksonville, FL

Please mark your calendars for the 2022 NE Florida Walk & Roll to Cure FSHD! We will see you on Saturday, September 24, 2022 for a pregame picnic at the Jacksonville... Read More »

2022 Minnesota Walk & Roll to Cure FSHD

Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MN

Please mark your calendars for the 2022 Minnesota Walk & Roll to Cure FSHD! We will see you on Sunday, September 25, 2022 Please reach out to the Chapter Director, Jacob... Read More »

“All of Me” play & Chapter reception

Boyd-Quinson Stage 30 Union Street, Pittsfield, MA

Dear FSHD Society friends, We want to make sure that you know about a fantastic opportunity to support a fellow FSHD’er: The world premiere of the play, All of Me,... Read More »

North Texas Virtual Chapter Meeting

Virtual TX

North Texas Chapter Thursday, September 28, 2022 7:00pm-8:00pm CT Join Us Virtually HERE Please join us on Wednesday, September 28th for a virtual chapter meeting. This will be our time to come... Read More »

2022 Los Angeles Walk & Roll to Cure FSHD

Wilson Park 2200 Crenshaw Blvd, Torrance, CA

Please mark your calendar for the 2022 Los Angeles Walk & Roll to Cure FSHD! We will see you Saturday, October 15, 2022 Please reach out to the Walk Leader,... Read More »

2022 Atlanta Walk & Roll to Cure FSHD!

Chattahoochee Nature Center Ben Brady Lakeside Pavilion 9135 Willeo Rd, Roswell, GA

Please mark your calendars for the 2022 Atlanta Walk & Roll to Cure FSHD! We will see you on Sunday, October 16, 2022 Please reach out to the Chapter Director, Jack... Read More »