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FSHD Radio – Giving Tuesday Radiothon

Facebook Live

Tim Hollenback, FSHD Radio host #GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. On Tuesday, November 29th, we... Read More »

Colorado FSHD Chapter Meeting

Philadelphia Chapter Meeting

Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell, PA

Philadelphia Chapter Meeting Saturday, Dec. 3rd, 2022 10am – 12pm ET Wissahickon Valley Public Library, 650 Skippack Pike, Blue Bell PA 19422 (Zoom line for those who need to call... Read More »

NorTex End of Year Celebration

Napoli's Restaurant 2865 McDermott Rd. #235, Plano, TX

As 2022 comes close to an end, we want to celebrate this amazingly hopeful year with YOU! Please join us for some fun! WHEN: Saturday, December 3th, 2022  12pm – 2pm... Read More »

Colorado End of Year Get Together

Brothers Bar and Grill 7407 Park Meadows Drive, Lone Tree, CO

Please join us for appetizers and drinks! WHEN: Sunday December 4th, 2022  4pm – 6pm WHERE: Brothers Bar & Grill – 7407 Park Meadows Drive, Lone Tree CO 80129 WHO: YOU and your... Read More »

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Women on Wellness: On Mattering

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month we'll be talking about "mattering," feeling valued as a... Read More »

Ontario End of Year Get Together

Starbucks Scarborough Ontario 43 Milner Ave Unit 2, Scarborough, Ontario

As 2022 comes close to an end, we want to celebrate this amazingly hopeful year with YOU! Please join us for coffe and treats at a casual end-of-year get together!... Read More »

San Diego Chapter Meeting and Holiday Party

Avidity Biosciences 10975 N Torrey Pines Rd., La Jolla, CA

Please join us for a Chapter Meeting and Holiday Party!                 Light refreshments and beverages will be provided. Researchers from the Avidity Team... Read More »

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Wellness Hour: Holiday revels

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, you're invited to come dressed in Zoom-worthy holiday apparel, with favorite seasonal libations... Read More »

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Wellness Hour: Managing Pain

Zoom Virtual Meeting

5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Have you experienced pain as part of your FSHD? What has helped? What are your... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, January 10th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

East TN Chapter Meeting

Zoom Virtual Meeting

We hope you will join us for the first Chapter meeting of the year! Reconnect with old friends, and meet some new folks from our region. This will be a... Read More »

NYC/NJ Area Virtual Chapter Meeting

Virtual Denver

​​​​​ Saturday, January 21, 2023 10:00-11:00am Eastern Time Join us via Zoom HERE We hope you will join us for the first Chapter meeting of the year! Reconnect with old... Read More »

Colorado FSHD Chapter Meeting

Bay Area Chapter Meeting

Stanford University 453 Quarry Road, Palo Alto, CA

Chapter Meeting Sunday, January 22, 2023 1:00pm - 3:00pm Pacific Time Stanford University, Center for Academic Medicine, Grand Rounds Room 125 453 Quarry Road, Palo Alto, CA 94304 Our January... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, January 26th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will... Read More »

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Women on Wellness: Life Hacks

Zoom Virtual Meeting

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Let’s learn from each other by sharing great tricks for... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, February 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Colorado FSHD Chapter Meeting

Tampa Chapter Meeting

True Food Kitchen 3645 Midtown Dr, Tampa, FL

Dear Friends, Please mark your calendars for a get-together in Tampa! We'll be meeting up at the True Food Kitchen, and if the weather is nice enough, we'll enjoy our... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, February 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Ontario Virtual Chapter Meeting

Virtual TX

Saturday, February 25, 2023 10:00am ET Please join us for our first Chapter meeting of 2023! Grab a cup of coffee and join us for a casual discussion and Q&A... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, March 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Featured Featured

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Colorado FSHD Chapter Meeting

North Carolina Chapter Lunch

Parkway UCC 1465 Irving Street SW - Winston-Salem, Winston-Salem, NC

Dear Friends, Please join us for our first in-person lunch in a long time! We can't wait to see everyone face-to-face again. Lunch will be provided, so please RSVP to... Read More »

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FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, April 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

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Rochester FSHD 360

University of Rochester Saunders Research Building 265 Crittenden Blvd., Rochester, NY

9:00 a.m. US ET doors open | 10:00-3:30 p.m. US ET conference sessions The FSHD Society, in collaboration with the University of Rochester Medical Center, is hosting this year’s Rochester... Read More »

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FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, May 9th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles... Read More »

Featured Featured

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, May 25th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »