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Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first… Read More »
FSHD Connecticut Connections
New England Virtual Meeting
Please join us for the first New England Chapter meeting of the new year! We plan to use this virtual meeting to discuss options for hosting a 2019 Walk &… Read More »
Greater Milwaukee Chapter Launch!
Please join us for an informal meet-and-greet gathering for everyone affected by FSHD – patients, family, & friends – to get to know one another, share our stories, and network…. Read More »
Dallas-Ft. Worth Members Meeting
Join us for our next Dallas-Ft. Worth members meeting. We have an exciting program planned, with presentations and hands-on demonstrations of muscle activation and the Rolf method, which one of… Read More »
FSH Society Radio – Two perspectives on living with FSHD
Join us via Facebook Live on Wednesday, January 30th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with two people from the Chicagoland area who live with… Read More »