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Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is:… Read More »
FSHD Connecticut Connections
New England Virtual Meeting
Please join us for the first New England Chapter meeting of the new year! We plan to use this virtual meeting to discuss options for hosting a 2019 Walk & Roll fundraiser in the Boston area, hopefully in June. We welcome everyone’s input and ideas! This event is a fun, inspiring, and community-building event. It’s… Read More »
Greater Milwaukee Chapter Launch!
Please join us for an informal meet-and-greet gathering for everyone affected by FSHD – patients, family, & friends – to get to know one another, share our stories, and network. Light refreshments provided. Questions? Please contact Chapter Director Tim Hollenback: MilwaukeeChapter@fshdsociety.org.
Dallas-Ft. Worth Members Meeting
Join us for our next Dallas-Ft. Worth members meeting. We have an exciting program planned, with presentations and hands-on demonstrations of muscle activation and the Rolf method, which one of our new Dallas-area members has found very beneficial in addressing his FSHD issues. We are pleased to introduce you to our guest speakers: Noah Salih… Read More »
FSH Society Radio – Two perspectives on living with FSHD
Join us via Facebook Live on Wednesday, January 30th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with two people from the Chicagoland area who live with FSHD. Ramsey Shahed is a 21 year old student at DePaul University studying for his master’s in cybersecurity. He was diagnosed around ate 14 and has… Read More »