Mar 20 7:00 pm - 8:00 pm Event Series North Carolina Chapter “Third Thursdays” Zoom Virtual Meeting Event Details Get Directions
Mar 20 Featured Featured 1:00 pm - 2:00 pm Event Series Raise Your Voice! Advocacy Call to Action – FSHD University with Anna Gilmore Zoom Web Conference Event Details Get Directions
Mar 18 Featured Featured 8:00 pm - 9:00 pm Event Series Parents’ Roundtable – Lung Care in Pediatric FSHD Zoom Virtual Meeting Event Details Get Directions
Mar 18 7:00 pm - 8:00 pm Event Series Ontario Chapter – Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Mar 17 Featured Featured 8:00 pm - 9:00 pm Event Series Young Adults – Nutrition and supplements Zoom Virtual Meeting Event Details Get Directions
Mar 13 Featured Featured 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD – Shoulders, neck and face Part 2 Zoom Virtual Meeting Event Details Get Directions
Mar 11 Featured Featured 8:00 am Event Series FSHD Straight Talk with Tim Hollenback Facebook, YouTube, and anywhere you listen to podcasts Event Details Get Directions
Mar 10 Featured Featured 4:00 pm - 6:00 pm Event Series Wellness Hour – Artist Creativity Gallery 2025 Zoom Virtual Meeting Event Details Get Directions
Mar 5 Featured Featured 5:00 pm - 6:00 pm Event Series Women On Wellness – personal care attendants and VA services Zoom Virtual Meeting Event Details Get Directions
Feb 27 6:00 pm - 7:00 pm Western PA Chapter Virtual Meeting – BetterLife Demo Zoom Virtual Meeting Event Details Get Directions
Feb 25 Featured Featured 8:00 pm - 9:00 pm Event Series CarePartner Hour Zoom Virtual Meeting Event Details Get Directions
Feb 4 Featured Featured 8:00 am - 5:00 pm 2025 FSHD Connect-Europe Amsterdam, The Netherlands Event Details Get Directions
Jan 28 6:00 pm - 7:00 pm Virginia Chapter Monthly Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Jan 13 7:00 pm - 8:00 pm New England Chapter Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Dec 26 Featured Featured 11:00 am - 12:00 pm Event Series Feeling Fit with FSHD – Cancelled Zoom Virtual Meeting Event Details Get Directions
Dec 19 Featured Featured 1:00 pm - 2:00 pm FSHD University: Annual Drug Development Update Zoom Web Conference Event Details Get Directions
Dec 16 Featured Featured 9:00 pm - 10:00 pm Event Series Young Adults – Art and Journaling Zoom Virtual Meeting Event Details Get Directions
Dec 16 7:00 pm - 8:30 pm 12-16 Western PA Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Dec 11 6:00 pm - 7:00 pm 12/11/24 NYC/NJ-Area Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Dec 7 2:00 pm - 4:00 pm St. Louis Chapter Holiday Gathering 4Hands Brewery 17081 N Outer 40 Rd, Chesterfield Event Details Get Directions
Dec 3 6:00 pm - 7:00 pm Event Series Virginia Chapter, Monthly Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Nov 24 11:00 am - 1:00 pm Ontario Chapter Brunch Meeting Milestones Richmond Hill 30 High Tech Rd, Richmond Hill Event Details Get Directions
Nov 21 Featured Featured 1:00 pm - 2:00 pm FSHD University: ReSolve – What We Have Learned Zoom Web Conference Event Details Get Directions
Nov 17 12:00 pm - 2:00 pm Colorado Chapter Meeting (In-Person) Landsdowne Arms Restaurant Dorchester Street, Highlands Ranch Event Details Get Directions
Nov 5 7:00 pm - 8:00 pm Event Series 2024 North Texas Virtual Chapter Meetings Zoom Virtual Meeting Event Details Get Directions
Nov 3 All Day Event Series 2024 Drum & Roll to Cure FSHD National Aviary Allegheny Commons Park Event Details Get Directions
Nov 2 12:00 pm - 2:00 pm Pacific Northwest Chapter Winter Education Meeting Zoom Virtual Meeting Event Details Get Directions
Nov 2 Featured Featured 11:00 am - 4:00 pm New England FSHD 360 University of Massachusetts Medical Center Plantation Street, Worcester Event Details Get Directions
Oct 30 7:00 pm - 8:00 pm Event Series North Texas Virtual Chapter Meeting Virtual Denver Event Details Get Directions
Oct 23 7:00 pm - 8:00 pm 10/23 New England Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Oct 23 4:00 pm - 5:00 pm 10/23 Chicago Chapter Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Oct 17 Featured Featured 1:00 pm - 2:00 pm FSHD University: Good Bad Things Zoom Web Conference Event Details Get Directions
Oct 8 7:00 pm - 8:00 pm Western PA Chapter Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Oct 5 10:00 am - 1:00 pm Greater Philadelphia Chapter Meeting Bryn Mawr Rehabilitation Hospital - 414 Paoli Pike, Malvern PA 19355 Paoli Pike, Malvern Event Details Get Directions
Oct 5 Featured Featured 9:00 am - 4:30 pm Kansas City FSHD 360 Merriam Community Center 6040 Slater St, Merriam Event Details Get Directions
Oct 2 7:00 pm - 8:00 pm Alberta Chapter Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Sep 24 6:00 pm - 7:00 pm Virginia Chapter Monthly Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Sep 20 Sep 20, 2024 @ 6:00 pm - Sep 22, 2024 @ 11:59 pm Virtual Screening: Good Bad Things Virtual TX Event Details Get Directions
Sep 19 Featured Featured 1:00 pm - 2:00 pm FSHD University: Insurance Coverage for Costly Rare-Disease Treatments Zoom Web Conference Event Details Get Directions
Aug 29 7:00 pm - 8:30 pm Western PA Chapter Drum & Roll Prep Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Aug 29 Featured Featured 1:00 pm - 2:00 pm FSHD University: BetterLife FSHD with Amanda Hill Zoom Web Conference Event Details Get Directions
Aug 25 3:30 pm - 5:30 pm San Diego Chapter Ice Cream Social Hilltop Community Park, 9711 Oviedo Way, San Diego, CA 92129 Oviedo Way, San Diego Event Details Get Directions
Aug 24 6:00 pm Virginia Chapter Social Event: Norfolk Tides vs. Worcester Red Sox Harbor Park Stadium, 150 Park Ave, Norfolk, VA 23510 Park Avenue, Norfolk Event Details Get Directions
Aug 20 7:00 pm - 8:00 pm St. Louis Chapter In-Person Support Meeting Webster Groves Public Library - 301 E Lockwood Ave, Webster Groves, MO 63119 East Lockwood Avenue, St. Louis Event Details Get Directions
Aug 19 5:30 pm - 6:30 pm Atlanta Chapter Virtual Meeting: Walk & Roll Prep Zoom Virtual Meeting Event Details Get Directions
Aug 19 Featured Featured 9:00 am - 6:00 pm The Muscle to Keep Life Moving The Cape Club of Sharon 25 Tiot Street Sharon, MA 02067 Tiot Street, Sharon Event Details Get Directions
Aug 15 Featured Featured All Day Good Bad Things Theatrical Premiere Theaters Near You Event Details Get Directions
Aug 7 6:00 pm - 7:00 pm Los Angeles Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Aug 3 12:00 pm - 2:00 pm Western PA Chapter 3rd Annual Family Picnic Adams Township Community Park, 698 Valencia Rd., Mars, PA 16046 Valencia Road, Mars Event Details Get Directions
Jul 19 12:00 pm - 2:00 pm New England Chapter In-Person Social Gathering On the Border Mexican Grill & Cantina 1519 Silas Deane Highway, Rocky Hill Event Details Get Directions
Jul 17 7:00 pm - 8:00 pm Western PA Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Jul 11 6:00 pm - 7:00 pm Chicago Chapter Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Jun 26 8:00 am - 5:00 pm Sacramento Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Jun 23 11:00 am - 3:00 pm Summer Park Party – Michigan Chapter Tunnel Park 66 Lakeshore Ave, Holland, MI 49424 - North Picnic Pavilion Lakeshore Avenue, Holland Event Details Get Directions
Jun 22 2:00 pm - 4:00 pm Event Series Virginia Chapter Celebration of World FSHD Day Billsburg Brewery, 2054 Jamestown Rd, Williamsburg, VA 23185 Jamestown Road, Williamsburg Event Details Get Directions
Jun 20 5:30 pm - 8:00 pm BC Chapter World FSHD Day Celebration Event Rogue Kitchen and Wetbar Gastown 601 West Cordova Street, Vancouver Event Details Get Directions
Jun 20 Featured Featured 1:00 pm - 2:00 pm FSHD University – FORTITUDE Trial interim results Zoom Web Conference Event Details Get Directions
Jun 9 Featured Featured 1:00 pm - 4:00 pm Pacific Northwest Day at the Ball Park! Cheney Stadium, 2502 S Tyler St, Tacoma, WA 98405 Cheney Stadium 2502 S. Tyler St, Tacoma Event Details Get Directions
Jun 6 7:00 pm - 8:00 pm Michigan Chapter Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
May 22 7:00 pm - 8:00 pm New England Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
May 20 7:00 pm - 8:00 pm May 20: Western PA Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
May 18 5:00 pm North Carolina Chapter Social Gathering Floyd & Blackies: 142 8th Avenue, Cramerton, NC 28032 142 8th Avenue, Cramerton Event Details Get Directions
May 16 Featured Featured 1:00 pm - 2:00 pm FSHD University – Project Mercury Zoom Web Conference Event Details Get Directions
May 11 10:30 am - 11:30 am May 11 Dakotas Chapter Meeting 3247 47th St S, Fargo, ND 58104 3247 47th St South, Fargo Event Details Get Directions
May 4 12:00 pm - 2:00 pm May 4th Sacramento Chapter Meeting Mimi's Cafe, 2029 Alta Arden Expy, Sacramento, CA 95825 Mimi's Cafe 2029 Alta Arden Expy, Sacramento Event Details Get Directions
Apr 27 11:00 am - 1:00 pm Ontario Chapter Brunch Meeting Milestones Richmond Hill 30 High Tech Rd, Richmond Hill Event Details Get Directions
Apr 27 Featured Featured 9:00 am - 3:30 pm Texas FSHD 360 Allen R. Baca Center 301 W. Bagdad Ave. Building 2, Round Rock Event Details Get Directions
Apr 21 10:30 am - 12:30 pm CANCELED April 21, 2024 – Alberta Chapter – Edmonton Brunch Meeting 4810 Calgary Trail NW, Edmonton, AB T6H 5H5 Â 4810 Calgary Trail NW, Edmonton Event Details Get Directions
Apr 18 Featured Featured 1:00 pm - 2:00 pm FSHD University – Family communication Zoom Web Conference Event Details Get Directions
Apr 13 Featured Featured 6:30 pm - 8:30 pm 2024 Idaho Talent Fest Boise State University Special Events Center 1800 W. University Drive, Boise Event Details Get Directions
Apr 10 6:00 pm - 7:00 pm British Columbia and Alberta Chapters – Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Apr 6 1:00 pm - 3:00 pm April 6, 2024: Chicagoland Chapter Meeting, In-Person Northlake Library 231 N Wolf Rd, Northlake Event Details Get Directions
Apr 6 9:00 am - 10:00 am NYC/NJ-area Virtual Chapter Meeting – April 6, 2024 Zoom Virtual Meeting Event Details Get Directions
Mar 23 3:00 pm - 5:00 pm Colorado Chapter Meeting 9352 Dorchester St., Highlands Ranch, CO 80129 Lansdowne Arms, Library Room 9352 Dorchester St., Highlands Ranch Event Details Get Directions
Mar 23 2:00 pm - 4:00 pm North Texas chapter meeting 3111 Preston Rd, Frisco, TX 3111 Preston Rd, Frisco Event Details Get Directions
Mar 21 Featured Featured 1:00 pm - 2:00 pm Finding reliable health information on the Internet, with Tina Griffin Zoom Web Conference Event Details Get Directions
Mar 17 Featured Featured 6:00 pm - 7:00 pm Texas Virtual Happy Hour Zoom Virtual Meeting Event Details Get Directions
Mar 12 7:00 pm - 8:00 pm New England Chapter – Virtual Meeting Zoom Virtual Meeting Event Details Get Directions
Mar 5 7:00 pm - 8:00 pm 3/5/24 Michigan Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Mar 2 10:15 am - 1:00 pm Greater Philadelphia Area Chapter Meeting Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell Event Details Get Directions
Feb 28 7:00 pm - 8:00 pm Western PA Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Feb 15 Featured Featured 12:00 pm - 1:00 pm Introduction to Breathing Muscle Weakness Zoom Web Conference Event Details Get Directions
Feb 13 Featured Featured 8:00 am FSHD Radio: Community Profiles – Jane Nemke, Founder of Designs to Thrive Facebook and YouTube Event Details Get Directions
Feb 10 12:00 pm - 2:00 pm Feb. 10, 2024: Pacific NW Chapter Meeting 7860 SE 13th Ave, Portland 97202 Sellwood Library Meeting Room 7860 SE 13th Ave, Portland Event Details Get Directions
Feb 10 9:00 am - 10:00 am Greater NYC/NJ-area Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
