May 24 6:00 pm - 7:00 pm Event Series Virginia Chapter virtual monthly meeting Zoom Virtual Meeting Event Details Get Directions
May 31 Featured Featured 8:00 pm - 9:00 pm Event Series CarePartner Hour: Helping with self-care Zoom Virtual Meeting Event Details Get Directions
Jul 6 Featured Featured 5:00 pm - 6:00 pm Event Series Women on Wellness – Transitions in mobility Zoom Virtual Meeting Event Details Get Directions
Oct 26 7:00 pm - 8:00 pm Event Series North Texas Virtual Chapter Meeting Virtual TX Event Details Get Directions
Nov 1 7:00 pm - 8:00 pm Event Series North Texas Virtual Chapter Meeting Virtual Denver Event Details Get Directions
Dec 27 Featured Featured 8:00 pm - 9:00 pm Event Series CarePartner Hour Zoom Virtual Meeting Event Details Get Directions
Jan 17 Featured Featured 7:00 pm - 8:00 pm Event Series Early-Onset Parent Roundtable Zoom Virtual Meeting Event Details Get Directions
Jan 19 7:00 pm - 8:00 pm Event Series North Carolina Chapter “Third Thursdays” Zoom Virtual Meeting Event Details Get Directions
Jan 21 10:00 am - 11:00 am NYC/NJ Area Virtual Chapter Meeting Virtual Denver Event Details Get Directions
Jan 22 1:00 pm - 3:00 pm Bay Area Chapter Meeting Stanford University 453 Quarry Road, Palo Alto Event Details Get Directions
Jan 26 Featured Featured 9:00 am - 9:30 am FSHD Radio: Hot off the Press Facebook and YouTube Event Details Get Directions
Jan 31 Featured Featured 8:00 pm - 9:00 pm CarePartner Hour: What are your “needs”? Zoom Virtual Meeting Event Details Get Directions
Feb 1 Featured Featured 5:00 pm - 6:00 pm Women on Wellness: Life Hacks Zoom Virtual Meeting Event Details Get Directions
Feb 11 2:00 pm - 4:30 pm Pacific Northwest’s Valentine’s Day Cocktails and Clinical Trials Chris Haven 12005 7th Ave NW, Seattle Event Details Get Directions
Feb 13 Featured Featured 5:00 pm - 6:00 pm Event Series Wellness Hour – Toward Hope Zoom Virtual Meeting Event Details Get Directions
Feb 14 Featured Featured 9:00 am - 10:00 am FSHD Radio: Community Profiles Facebook and YouTube Event Details Get Directions
Feb 14 Featured Featured 1:00 pm - 2:00 pm FSHD University: FORTITUDE A Phase 1/2 Clinical Trial of AOC 1020 in Adults with FSHD Zoom Web Conference Event Details Get Directions
Feb 19 4:00 pm - 6:00 pm Tampa Chapter Meeting True Food Kitchen 3645 Midtown Dr., Tampa Event Details Get Directions
Feb 23 Featured Featured 9:00 am - 9:30 am FSHD Radio: Hot off the Press Facebook and YouTube Event Details Get Directions
Mar 1 Featured Featured 5:00 pm - 6:00 pm Event Series Women on Wellness – Keeping up appearances Zoom Virtual Meeting Event Details Get Directions
Mar 9 Mar 9, 2023 - Mar 26, 2023 San Diego Brew Quest to Cure FSHD San Diego San Diego Event Details Get Directions
Mar 14 Featured Featured 9:00 am - 10:00 am FSHD Radio: Community Profiles Facebook and YouTube Event Details Get Directions
Mar 14 Featured Featured 6:00 pm - 7:00 pm Event Series Young Professionals Zoom Virtual Meeting Event Details Get Directions
Mar 21 5:00 pm - 6:00 pm East TN Chapter Meeting East Tennessee knoxville Event Details Get Directions
Mar 23 Featured Featured 9:00 am - 9:30 am FSHD Radio: Hot off the Press Facebook and YouTube Event Details Get Directions
Mar 23 Featured Featured 1:30 pm - 2:30 pm FSHD University: Novel treatment strategies for FSHD Zoom web conference Event Details Get Directions
Mar 25 Featured Featured 10:00 am - 11:00 am Event Series Young Professionals Zoom Virtual Meeting Event Details Get Directions
Mar 25 10:00 am - 12:00 pm Greater Philadelphia Chapter Meeting Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell, Blue Bell Event Details Get Directions
Mar 25 11:30 am - 1:30 pm North Texas Happy Hour Down South Kitchen & Bakery 6500 Cascades CT Ste. 100, The Colony Event Details Get Directions
Mar 26 3:30 pm - 5:30 pm Houston Area Happy Hour Johnny Tamales Cantina 4647 East Sam Houston Pkwy S, Pasadena Event Details Get Directions
Mar 29 8:00 pm - 9:00 pm New Hampshire Virtual Catch-Up Zoom Virtual Meeting Event Details Get Directions
Apr 1 3:30 pm - 5:30 pm Central Texas Chapter Happy Hour District Kitchen & Cocktails 7858 Shoal Creek Blvd, Ste. B, Austin Event Details Get Directions
Apr 2 3:00 pm - 5:00 pm Colorado Chapter Meeting and Social Gathering! Lariat Lodge Brewing Company 12684 W Indore Pl, Littleton Event Details Get Directions
Apr 10 Featured Featured 5:00 pm - 6:00 pm Wellness Hour – All about wheelchairs Zoom Virtual Meeting Event Details Get Directions
Apr 11 Featured Featured 8:00 am FSHD Radio: Community Profiles with Musician Apex Frazier Facebook and YouTube Event Details Get Directions
Apr 12 7:00 pm - 8:00 pm Nevada Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Apr 12 7:00 pm - 8:30 pm New England Chapter Movie Night & Discussion Zoom Virtual Meeting Event Details Get Directions
Apr 22 11:00 am - 2:00 pm Northeast Florida Chapter Brunch NE Florida Jacksonville Event Details Get Directions
Apr 22 11:30 am - 2:00 pm Canceled North Carolina Chapter Lunch Parkway UCC 1465 Irving Street SW - Winston-Salem, Winston-Salem Event Details Get Directions
Apr 26 7:00 pm - 8:00 pm All-Texas Chapter Meeting: Travel Tips Zoom Virtual Meeting Event Details Get Directions
Apr 27 Featured Featured 8:00 am FSHD Radio: Hot off the Press with Amanda Hill on the New Era of Clinical Trials Facebook and YouTube Event Details Get Directions
Apr 29 7:30 pm - 10:00 pm Idaho Talent Fest 2023! Boise State University Special Events Center 1800 W. University Drive, Boise Event Details Get Directions
May 3 6:00 pm - 7:00 pm British Columbia Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
May 4 Featured Featured 1:00 pm - 2:00 pm FSHD University: MANOUEVRE clinical trial Zoom Web Conference Event Details Get Directions
May 6 Featured Featured 10:00 am - 4:00 pm Rochester FSHD 360 University of Rochester Saunders Research Building 265 Crittenden Blvd., Rochester Event Details Get Directions
May 8 Featured Featured 5:00 pm - 6:00 pm Wellness Hour on Friendship: The Elixir of Life Zoom Virtual Meeting Event Details Get Directions
May 9 Featured Featured 8:00 am FSHD Radio: Community Profiles – All About Adoption Facebook and YouTube Event Details Get Directions
May 18 Featured Featured 1:00 pm - 2:00 pm FSHD University: What every newly diagnosed person should know Zoom Web Conference Event Details Get Directions
May 18 7:00 pm - 8:00 pm Michigan Chapter – Inaugural Meeting! Zoom Virtual Meeting Event Details Get Directions
May 25 Featured Featured 9:00 am FSHD Radio: Hot off the Press – World FSHD Day Plans with Leigh Reynolds Facebook and YouTube Event Details Get Directions
May 31 7:00 pm - 8:00 pm Connecticut Connections Reunion Zoom Virtual Meeting Event Details Get Directions
Jun 10 11:00 am - 1:00 pm Ontario Chapter Meeting Symposium Cafe 3055 Dundas St W, Mississauga Event Details Get Directions
Jun 11 1:00 pm - 3:00 pm Bay Area Chapter Meeting Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto Event Details Get Directions
Jun 11 4:00 pm - 5:30 pm Tampa Chapter Gathering True Food Kitchen 3645 Midtown Dr., Tampa Event Details Get Directions
Jun 12 Featured Featured 5:00 pm - 6:00 pm Wellness Hour Movie Night – Crip Camp Zoom Virtual Meeting Event Details Get Directions
Jun 13 Featured Featured 8:00 am FSHD Radio: Community Profiles with Actress and Advocate Lauren “Lolo” Spencer Facebook and YouTube Event Details Get Directions
Jun 13 7:00 pm - 8:00 pm New York City/NJ Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Jun 15 Featured Featured Jun 15, 2023 - Jun 16, 2023 30th Annual International Research Congress on FSHD Radisson Blu Milan Italy Milan Event Details Get Directions
Jun 17 6:00 pm - 8:00 pm PNW Chapter World FSHD Day & Father’s Day Celebration Cheney Stadium 2502 South Tyler Street, Tacoma Event Details Get Directions
Jun 20 Featured Featured 12:00 am - 11:59 pm World FSHD Day! Virtual Denver Event Details Get Directions
Jun 20 6:00 pm - 8:00 pm British Columbia Chapter World FSHD Day Celebration The Pint 455 Abbott St., Vancouver Event Details Get Directions
Jun 20 7:30 pm - 9:00 pm Atlanta Chapter World FSHD Day Watch Party Azteca Perimiter 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs Event Details Get Directions
Jun 21 6:30 pm - 8:00 pm Western PA Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Jun 22 Featured Featured 9:00 am FSHD Radio: Hot off the Press – IRC 2023 Recap Facebook and YouTube Event Details Get Directions
Jun 22 6:30 pm - 8:00 pm Idaho Chapter Meeting Louie's Pizza and Italian Restaurant 2500 E Fairview Ave, Meridian Event Details Get Directions
Jun 24 9:00 am - 10:30 am Alberta Chapter Meeting 1101 8th Street SE in Calgary, Alberta 1101 8th Street SE, Calgary Event Details Get Directions
Jul 8 10:00 am - 2:00 pm FSHD Lab Day at Nationwide Children’s Hospital Nationwide Children's Hospital Education Center 575 South 18th Street, Columbus Event Details Get Directions
Jul 10 Featured Featured 5:00 pm - 6:00 pm Wellness Hour – Summertime Happy Hour Zoom Virtual Meeting Event Details Get Directions
Jul 11 Featured Featured 8:00 am FSHD Radio: Community Profiles Facebook and YouTube Event Details Get Directions
Jul 20 Featured Featured 1:00 pm - 2:00 pm FSHD University – Epic Bio’s FSHD Program Zoom Web Conference Event Details Get Directions
Jul 27 Featured Featured 9:00 am FSHD Radio: Hot off the Press – the 2023 Walk & Roll to Cure FSHD with Beth Johnston Facebook and YouTube Event Details Get Directions
Jul 28 3:30 pm - 5:30 pm Heartland Chapter Happy Hour Boulevard Beer Hall 2534 Madison Ave, Kansas City Event Details Get Directions
Aug 3 Featured Featured 7:00 pm - 8:00 pm Team Captain Social Hour Zoom Web Conference Event Details Get Directions
Aug 5 12:00 pm - 4:00 pm Western PA Summer Picnic Adams Township Community Park 698 Valencia Rd, Mars Event Details Get Directions
Aug 8 Featured Featured 8:00 am FSHD Radio: Community Profiles – Ryan Levinson, Sailor & FSHD Voyager Facebook and YouTube Event Details Get Directions
Aug 14 Featured Featured 5:00 pm - 6:00 pm Wellness Hour – On Birding Zoom Virtual Meeting Event Details Get Directions
Aug 15 5:30 pm - 6:30 pm Mountain State Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Aug 19 5:00 pm - 7:00 pm Sacramento Chapter Meeting Mimi's Cafe 2029 Alta Arden Expy, Sacramento Event Details Get Directions
Aug 21 7:00 pm - 8:00 pm CenTex Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Aug 24 Featured Featured 9:00 am FSHD Radio: Hot off the Press – Max Adler, Walk & Roll Team Captain Facebook and YouTube Event Details Get Directions
Aug 24 Featured Featured 1:00 pm - 2:00 pm FSHD University – FSHD Experiences: Insights from Europe Zoom Web Conference Event Details Get Directions
Aug 24 6:00 pm - 7:00 pm San Diego Virtual Chapter Meeting Zoom Virtual Meeting Event Details Get Directions
Aug 26 12:00 pm - 2:00 pm Connecticut Chapter Annual Luncheon On the Border Mexican Grill & Cantina 1519 Silas Deane Highway, Rocky Hill Event Details Get Directions
Sep 5 Featured Featured 5:30 pm - 8:30 pm British Columbia Walk & Roll The Pint 455 Abbott St., Vancouver Event Details Get Directions
Sep 9 Featured Featured 8:30 am - 12:30 pm Alberta Walk & Roll RiverWalk Plaza 618 Confluence Way SE, Calgary Event Details Get Directions
Sep 10 Featured Featured 8:00 am - 12:00 pm Colorado Walk & Roll Philip S. Miller Park - Amphitheater 1375 E Plum Creek Pkwy, Castle Rock Event Details Get Directions
Sep 10 Featured Featured 12:00 pm - 3:00 pm Pacific Northwest Walk & Roll Cockrell Cider 6613 114th Ave Ct E, Puyallup Event Details Get Directions
Sep 11 Featured Featured 5:00 pm - 6:00 pm Wellness Hour – Preventing Falls Zoom Virtual Meeting Event Details Get Directions
Sep 12 Featured Featured 8:00 pm - 9:00 pm FSHD Radio: Community Profiles – Jenny and Tony Teel, Thriving in an Interabled Marriage Facebook and YouTube Event Details Get Directions
Sep 16 Featured Featured 9:00 am - 1:00 pm Ontario Walk & Roll Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga Event Details Get Directions
