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On May 9th, 2025, the FSHD Society hosted an Adjunct Scientific Workshop. After the meeting, the report and recording will be posted here.
An Adjunct Scientific Workshop brings together key voices from the clinical and research communities to engage in rich discussion with the FDA. Our goal for this meeting is to address clinical assessment challenges in FSHD across three important areas: Functional outcome assessments, MRI and imaging, and circulating biomarkers. We will explore the current challenges, opportunities and approaches that are best suited to this heterogeneous disease.
Preliminary AgendaTo view the recording, please click here:
View the Recording on Youtube
Please send questions & inquiries to: Anna Gilmore, Sr. Director, Advocacy & Education: Anna.Gilmore@FSHDSociety.org
