Adjunct Scientific Workshop

On May 9th, 2025, the FSHD Society hosted an Adjunct Scientific Workshop. The summary and recording are shared below.

An Adjunct Scientific Workshop brings together key voices from the clinical and research communities to engage in rich discussion with the FDA. Our goal for this meeting was to address clinical assessment challenges in FSHD across three important areas:

• Functional outcome assessments;
• MRI and imaging;
• and circulating biomarkers.

We explored the current challenges, opportunities and approaches that are best suited to this heterogeneous disease. Please send questions & inquiries to: Anna Sylvester, Sr. Director, Advocacy & Education: Anna.Sylvester@FSHDSociety.org

Workshop Summary Recording Preliminary Agenda