PRMRP Funding Renewal
The Peer Reviewed Medical Research Program (PRMRP) is a government grant fund that supports research into select conditions. To be eligible, our U.S. Senators must include FSHD as part of their Appropriations requests. For the first time last year (2025), we successfully campaigned to get FSHD included as one of the approximately 66 conditions competing for $370 million in medical research funding!
It’s almost time to renew our eligibility for this program – which means we are looking for State Advocacy Leaders who are willing to spearhead efforts in their state to speak to their Senator’s offices. More information on this important volunteer role coming soon.
In April and May, we will need EVERYONE to write letters, send emails, and make phone calls to their Senators… keep an eye out for more information to be posted soon!