ब्लॉग

Building a Clinical Data Library

प्रकाशित किया गया नवम्बर 14th, 202511/14/25

FOCUS will unify clinical trial, natural history, and patient data  By Dr. Lucienne Ronco, FSHD Society  As part of the Global FSHD Innovation Hub, the FSHD Society has undertaken the […]

के अंतर्गत दर्ज: एफएसएचडी अनुसंधान, एफएसएचडी सोसाइटी समाचार

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Living Spiritually with FSHD: Finding Strength, Meaning, and Community

प्रकाशित किया गया नवम्बर 11th, 202511/11/25

In October, the FSHD Society launched Living Spiritually with FSHD, a new Gathering Place that welcomes anyone exploring how faith, spirituality, and a sense of meaning intersect with life with […]

के अंतर्गत दर्ज: सामान्य

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Driving Breakthroughs for FSHD Treatments

प्रकाशित किया गया नवम्बर 5th, 202511/5/25

No Time to Wait  By Erin Saxon, FSHD Society Those living with FSHD face a harsh reality: this is a relentlessly progressive disease with no treatments to slow or stop […]

के अंतर्गत दर्ज: एफएसएचडी अनुसंधान, एफएसएचडी सोसाइटी समाचार

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Pushing Limits: Johnny Quintana, US Paralympic Athlete

प्रकाशित किया गया अक्टूबर 28th, 202510/28/25

From diagnosis to Team USA, he keeps climbing  By An Sasala, FSHD Society  Johnny Quintana conquers challenges—and heights. A former football player and wrestler, Quintana regularly defies his doctor’s initial […]

के अंतर्गत दर्ज: सामान्य

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Avidity Biosciences Acquired by Novartis

प्रकाशित किया गया अक्टूबर 27th, 202510/27/25

On October 26, 2025, Novartis announced that it has entered into an agreement to acquire Avidity Biosciences, Inc., marking another important advancement for the FSHD community.  With this acquisition, Novartis, […]

के अंतर्गत दर्ज: एफएसएचडी अनुसंधान, एफएसएचडी सोसाइटी समाचार

Tags: clinical trials

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