Browsing “FSHD Society News - FSHD Society”

Building a Clinical Data Library

प्रकाशित किया गया नवम्बर 14th, 202511/14/25

FOCUS will unify clinical trial, natural history, and patient data  By Dr. Lucienne Ronco, FSHD Society  As part of the Global FSHD Innovation Hub, the FSHD Society has undertaken the […]

के अंतर्गत दर्ज: एफएसएचडी अनुसंधान, एफएसएचडी सोसाइटी समाचार

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Driving Breakthroughs for FSHD Treatments

प्रकाशित किया गया नवम्बर 5th, 202511/5/25

No Time to Wait  By Erin Saxon, FSHD Society Those living with FSHD face a harsh reality: this is a relentlessly progressive disease with no treatments to slow or stop […]

के अंतर्गत दर्ज: एफएसएचडी अनुसंधान, एफएसएचडी सोसाइटी समाचार

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Avidity Biosciences Acquired by Novartis

प्रकाशित किया गया अक्टूबर 27th, 202510/27/25

On October 26, 2025, Novartis announced that it has entered into an agreement to acquire Avidity Biosciences, Inc., marking another important advancement for the FSHD community.  With this acquisition, Novartis, […]

के अंतर्गत दर्ज: एफएसएचडी अनुसंधान, एफएसएचडी सोसाइटी समाचार

Tags: clinical trials

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A Personal Tribute to Dan Perez

प्रकाशित किया गया अक्टूबर 6th, 202510/6/25

While his family and our community morns the loss, I want to honor the life of Dan Perez, a man whose vision, determination, and heart changed the course of FSHD […]

के अंतर्गत दर्ज: एफएसएचडी इतिहास, एफएसएचडी सोसाइटी समाचार

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A Summer of Connection Across Our Chapters

प्रकाशित किया गया सितम्बर 16th, 20259/16/25

by Jenny Gast, National Director, Chapter Programs, FSHD Society What makes our chapter network so meaningful isn’t the size of the events, but the spirit within them. This summer, each […]

के अंतर्गत दर्ज: एफएसएचडी सोसाइटी समाचार, एफएसएचडी के साथ रहना

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