डैन पेरेज़ को याद करते हुए, एफएसएचडी सोसाइटी के सह-संस्थापक और एफएसएचडी अनुसंधान और वकालत में एक प्रेरक शक्ति।

Join us for The Most Beautiful Urban Marathon in America®️, winding through downtown districts and crossing the Mississippi River.
The FSHD Society will participate in this event to raise funds for – and awareness about – FSHD treatments and a cure.
Twin Cities Marathon website. For more information on how to participate, or how to support this fundraiser, please contact Kim Shanley at Kim.Shanley@FSHDSociety.org.