The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research.
World renowned clinicians, medical researchers, pharmaceutical industry leaders and basic scientists present and discuss new developments, reinforce collaborative efforts, facilitate new initiatives, and coordinate research and clinical activities. With the recent advances in FSHD research and clinical advances, this conference has become catalytic in translating ideas into potential therapies. Our 2022 congress drew over 200 attendees and 27 industry partners.
Make plans now to attend the 2023 International Research Congress in Milan, Italy, June 15-16, 2023!

Programs and abstracts of past meetings
- 2022 FSHD IRC Program
- 2022 IRC Abstract Book
- 2021 IRC Program
- 2021 IRC Abstract Book
- 2020 FSHD IRC Meeting Report (Skeletal Muscle)
- 2020 FSHD IRC Program
- 2020 IRC Abstract Book
- Neuromuscular Disease Journal article on IRC 2019
- 2019 FSHD IRC Program
- 2019 IRC Abstract Book
- 2018 FSHD Research Conference Program Book
- 2018 IRC Abstract Book
- 2016 FSHD Research Connect Boston
- 2015 Boston, Massachusetts
- 2014 San Diego, California
- 2013 Cambridge, Massachusetts
- 2012 San Francisco, California
- 2011 Watertown, Massachusetts
- 2010 Watertown, Massachusetts
- 2009 Watertown, Massachusetts
- 2008 Philadelphia, Pennsylvania
- 2007 San Diego, California
- 2006 New Orleans, Louisiana
- 2005 Salt lake City, Utah
- 2004 Toronto, Ontario, Canada
- 2003 Los Angeles, California