Ricordando Dan Perez, cofondatore della FSHD Society e forza trainante nella ricerca e nella difesa della FSHD.
FOCUS will unify clinical trial, natural history, and patient data By Dr. Lucienne Ronco, FSHD Society As part of the Global FSHD Innovation Hub, the FSHD Society has undertaken the […]
In October, the FSHD Society launched Living Spiritually with FSHD, a new Gathering Place that welcomes anyone exploring how faith, spirituality, and a sense of meaning intersect with life with […]
No Time to Wait By Erin Saxon, FSHD Society Those living with FSHD face a harsh reality: this is a relentlessly progressive disease with no treatments to slow or stop […]
From diagnosis to Team USA, he keeps climbing By An Sasala, FSHD Society Johnny Quintana conquers challenges—and heights. A former football player and wrestler, Quintana regularly defies his doctor’s initial […]
On October 26, 2025, Novartis announced that it has entered into an agreement to acquire Avidity Biosciences, Inc., marking another important advancement for the FSHD community. With this acquisition, Novartis, […]
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