Atlanta Chapter

Connect. Support. Inform. Strengthen.

Welcome to the Atlanta Chapter

The Atlanta chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.

Join your local chapter and learn how we can support you on your FSHD journey.

Meet the Team

  • Jack Gerblick

    Jack Gerblick

    Jack Gerblick is the Chapter Director for the Atlanta Chapter of the FSHD Society and has been living with FSHD since 1991. His personal experience with the condition drives his passion to support others in the FSHD community.

    In addition to leading the Atlanta Chapter, Jack is also the Chair of the Community Engagement Committee for the FSHD Society, where he works to build connections and raise awareness of the disease. Through his volunteer efforts, Jack aims to strengthen the FSHD network, offer support, and help those impacted by the condition find a sense of community and hope.

    Contact Jack directly or visit the Atlanta Facebook page!

Volunteer with the Chapter

While Jack is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.

Upcoming Atlanta Chapter Events

  • Atlanta World FSHD Day Watch Party

    2026 Chapter Meetings
    El Azteca Perimeter - 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs GA 30328 El Azteca Perimeter - 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Spring, GA, United States

    8:00pm ET at El Azteca Perimeter - 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs GA 30328 Please join us once again to watch the King & Queen Buildings light up orange in honor of World FSHD Day! We are planning to meet up at El Azteca Perimeter, located at 6115 Peachtree Dunwoody Road, Ste. 100, […]

  • Atlanta Walk & Roll to Cure FSHD 2026

    2026 Atlanta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]