Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD Communities across Canada with the shared goal to deliver treatments and a cure for FSH Muscular Dystrophy.
The Montreal Chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
While Louis-Vincent and Sylvain are powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
Louis-Vincent launched the Montreal Chapter with his father, Sylvain, in the summer of 2025. He was diagnosed with FSHD at the age of 15.  Since then, he has lost several physical abilities including running, using stairs, or standing up without using support. Despite these challenges, he successfully achieved his goal of becoming a CPA.
Louis-Vincent currently works as a financial analyst at one of the largest law firms in Quebec. He still has a strong interest in following professional sports, despite no longer being able to practice. He looks forward to making connections via the Montreal Chapter.
Jean Sylvain Côté co-directs the Montreal Chapter with his son, Louis-Vincent, who was diagnosed with FSHD when he was fifteen. Sylvain has worked in the pharmaceutical industry for over 30 years, and his current role is Senior Medical Science Liaison in a small biotechnology company specializing in hematology-oncology and neuroscience.
Sylvain lives on the South Shore of Montreal in a beautiful city called Mont-Saint-Hilaire. He also has a daughter, who does not have FSHD, who is studying to become an occupational therapist. CrossFit is one of his passions, and like his son, he is highly interested in sports. Sylvain looks forward to supporting the FSHD community as a co-director for the Montreal Chapter.
