Browsing “FSHD Society News - FSHD Society”

Building a Clinical Data Library

'ਤੇ ਪੋਸਟ ਕੀਤਾ ਗਿਆ ਨਵੰਬਰ 14th, 202511/14/25

FOCUS will unify clinical trial, natural history, and patient data  By Dr. Lucienne Ronco, FSHD Society  As part of the Global FSHD Innovation Hub, the FSHD Society has undertaken the […]

ਹੇਠ ਦਾਇਰ: FSHD ਖੋਜ, FSHD ਸੋਸਾਇਟੀ ਨਿਊਜ਼

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Driving Breakthroughs for FSHD Treatments

'ਤੇ ਪੋਸਟ ਕੀਤਾ ਗਿਆ ਨਵੰਬਰ 5th, 202511/5/25

No Time to Wait  By Erin Saxon, FSHD Society Those living with FSHD face a harsh reality: this is a relentlessly progressive disease with no treatments to slow or stop […]

ਹੇਠ ਦਾਇਰ: FSHD ਖੋਜ, FSHD ਸੋਸਾਇਟੀ ਨਿਊਜ਼

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Avidity Biosciences Acquired by Novartis

'ਤੇ ਪੋਸਟ ਕੀਤਾ ਗਿਆ ਅਕਤੂਬਰ 27th, 202510/27/25

On October 26, 2025, Novartis announced that it has entered into an agreement to acquire Avidity Biosciences, Inc., marking another important advancement for the FSHD community.  With this acquisition, Novartis, […]

ਹੇਠ ਦਾਇਰ: FSHD ਖੋਜ, FSHD ਸੋਸਾਇਟੀ ਨਿਊਜ਼

Tags: clinical trials

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A Personal Tribute to Dan Perez

'ਤੇ ਪੋਸਟ ਕੀਤਾ ਗਿਆ ਅਕਤੂਬਰ 6th, 202510/6/25

While his family and our community morns the loss, I want to honor the life of Dan Perez, a man whose vision, determination, and heart changed the course of FSHD […]

ਹੇਠ ਦਾਇਰ: FSHD ਇਤਿਹਾਸ, FSHD ਸੋਸਾਇਟੀ ਨਿਊਜ਼

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A Summer of Connection Across Our Chapters

'ਤੇ ਪੋਸਟ ਕੀਤਾ ਗਿਆ ਸਤੰਬਰ 16th, 20259/16/25

by Jenny Gast, National Director, Chapter Programs, FSHD Society What makes our chapter network so meaningful isn’t the size of the events, but the spirit within them. This summer, each […]

ਹੇਠ ਦਾਇਰ: FSHD ਸੋਸਾਇਟੀ ਨਿਊਜ਼, FSHD ਨਾਲ ਰਹਿਣਾ

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