[…] place I love the most on Earth, where I feel ‘at home,’ my old summer camp in the Poconos (which was not yet open for the season). Because my mom […]
‘Eddie-mechanics’ was my secret to success
FSHD Inspires Sam Ray to Build Mobility Devices
[…] money supports research to find cures and send kids like me to the MDA summer camp—something I look forward to each year. The camp has been virtual the past two […]
What FSH Muscular Dystrophy Has Given Me
[…] fight against MD, setting up a fundraiser for the cause, or working at a summer camp for children afflicted. Using your voice is an important tool as well. The Muscular […]
Strength in Determination
[…] year. This money is used for research and to send kids to the MDA summer camp—something I look forward to each year. Last year was our seventh year raising money. […]
World FSHD Day backstory
[…] obtain proper care for their FSHD, in 2013 the wheelchair-bound brothers traveled to Rome and camped out in a tent in Piazza Montecitorio in front of the Italian Chamber of […]