[…] 2017) – Today the FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy ( FSHD), announced that with the FSHD Champions, an international alliance of FSHD patient advocacy organizations, […]
Consensus Reached to Move Forward with Formation of International Global FSHD Patient Registry
FSHD and Rare Disease Day
[…] in 20 people will live with a rare disease at some point in their life. FSHD-a Rare Disease The National Organization of Rare Disorders (NORD) recognizes Fascioscapulohumeral Muscular Dystrophy (FSHD) […]
Intriguing research on tyrosine kinase inhibition as a potential therapy for FSHD: Sunitinib rescues muscle cells’ ability to develop
[…] of an FDA-approved drug, sunitinib, as having potential therapeutic activity for FSH muscular dystrophy ( FSHD). This research, sponsored by Muscular Dystrophy UK, the FSH Society, and the French Sunitinib […]
Miami FSHD Family Day Talks
Here are the agenda, speaker biographies, and presentation materials from our Miami FSHD Family Day Conference, which was held on Saturday, February 23, 2019, at the beautiful Newman Alumni Center […]
FSHD Society signs agreement to expand CTRN
From PRWeb The FSHD Society announced today that it has signed a memorandum of understanding to enter into a three-year agreement to enable the expansion of the international facioscapulohumeral muscular dystrophy […]