FSHD Society https://validator.w3.org/feed/docs/rss2.html World FSHD Day – June 20, 2026 A Mother’s Perspective: World FSHD Day Stories Living Beside FSHD: World FSHD Day Stories Genetic Testing Media Library My FSHD Journey: From Fear to Hope, World FSHD Day Stories Virginia Chapter Meeting What a New Study on FSHD and Mortality Means for Our Community Blog The Better Nutrition for FSHD Diet Home Current Trials and Studies FSHD University: Navigating Women’s Health with FSHD FSHD University: Project Mercury Update: Three Years of Global Collaboration and What’s Next FSHD University: Working with FSHD: Navigating Vocational Rehabilitation Services St. Louis World FSHD Day Celebration A Glimpse into Mental Health in FSHD: Early Insights from BetterLife Multi-Chapter Meeting: Eastern & Central Zones Living Spiritually with FSHD: Prayer that Changes. Sarepta’s letter to the FSHD community Fundraising Grant Opportunities Novartis Announces Positive Biomarker Results for Del-brax in FSHD Novartis Announces Positive Biomarker Results for Del-brax in FSHD Multi-Chapter Meeting: Mountain & Pacific Time Zones North Carolina Chapter World FSHD Day Baseball Game College is Possible, Preparation is Necessary Avidity’s FORTITUDE-3 Trial Young Adults – Relationships & FSHD Colorado/New Mexico Chapter Gathering for World FSHD Day Michigan Chapter Meeting Virginia Chapter Meeting June Wellness Hour – Click to Register British Columbia Chapter World FSHD Day Event Canada Multi-Chapter Meeting with SOLVE FSHD The FSHD Society, SOLVE FSHD, and the FSHD CTRN Announce Launch of Industry Collaborative to Improve FSHD Clinical Trials A Glimpse into Mental Health in FSHD: Early Insights from BetterLife What a New Study on FSHD and Mortality Means for Our Community College is Possible, Preparation is Necessary World FSHD Day Special – FSHD Straight Talk with Tim Hollenback FSHD Straight Talk with Tim Hollenback Feeling Fit with FSHD – Click to Register FSHD Connect Conference Women on Wellness – Remembering Ora Prilleltensky Atlanta World FSHD Day Watch Party International Research Congress Restem Contact Us World FSHD Day Avidity’s FORTITUDE-1/2 Trial