FSHD Society https://validator.w3.org/feed/docs/rss2.html What BetterLife Data Tell Us About Genetic Testing in FSHD Blog Women on Wellness – October 2026 – Click Here to Register Current Trials and Studies FSHD University: Forming Healthy Exercise Habits with FSHD Living Spiritually with FSHD – October 2026 2026 Walk & Roll to Cure FSHD – Live Updates & Weekly Coverage Home Parents’ Roundtable Chapter Weekend Wellness Hour – October 2026 CarePartner Hour – October 2026 October 2026 Parents Roundtable Meeting Chair Yoga with Donna Wellness Hour Meeting – October 2026 Feeling Fit with FSHD – October 2026 Young Adults with FSHD – October Meeting Media Library Virginia Chapter Meeting Chasing Justice and Butterflies: Ed Barocas Reflects on a Life of Purpose, Humor, and Hope Los Angeles Chapter In-Person Meeting Epicrispr EPI-321 Study Newly Diagnosed with FSHD? FSHD Navigator Arrowhead and Sarepta’s SRP-1001 Trial FSHD University: Pediatric Respiratory Monitoring and FSHD World FSHD Alliance Scholar Rock’s FORGE Trial School & Education Resources Early-onset FSHD FSHD University: Autonomy in Driving: Maintaining & Expanding Independence FSHD University: Annual Drug Development Update BetterLife FSHD St. Louis Walk & Roll to Cure FSHD 2026 Novartis’ Phase 3 HARBOR Trial Results: An Update for the FSHD Community British Columbia Walk & Roll to Cure FSHD 2026 Mountain & Pacific Multi-Chapter Meeting Eastern & Central Multi-Chapter Meeting Compliance Living Spiritually with FSHD – Living Testimony Indiana FSHD Community Meeting Greater Philadelphia Chapter Hybrid Meeting Columbus Chapter In-Person Meeting St. Louis Chapter Mid-Atlantic Walk & Roll to Cure FSHD 2026 Virginia Chapter Meeting Walk & Roll to Cure FSHD September 2026 Women on Wellness Meeting – Click to Register FSHD University Webinar: Update on The MOVE Peds Study Grant Opportunities Additional Resources