FSHD Society https://validator.w3.org/feed/docs/rss2.html My FSHD Journey: From Fear to Hope, World FSHD Day Stories Blog Home Three Years. Ten Countries. One Shared Mission…What We Built Together  34th Annual International Research Congress Los Angeles Hybrid Meeting FSHD Connect Conference Michigan Chapter Meeting Michigan Chapter In-Person Gathering Volunteer Spotlight – Rick Whitehead – Knoxville, TN  July 2026 Feeling Fit July 2026 Weekend Wellness Hour Meeting Virginia Chapter Meeting International Research Congress Epicrispr Reports First Clinical Evidence of Increased Lean Muscle Volume in Patients with FSHD Following Treatment with EPI-321 July 2026 Living Spiritually with FSHD July 2026 Wellness Hour Meeting: Click to Register July 2026 Women on Wellness Meeting: Click to Register Western PA Chapter Meeting Living Beside FSHD: World FSHD Day Stories Living Beside FSHD: World FSHD Day Stories Chasing Justice and Butterflies: Ed Barocas Reflects on a Life of Purpose, Humor, and Hope Genetic Testing Media Library Colleen’s Story: World FSHD Day Stories A Mother’s Perspective: World FSHD Day Stories World FSHD Day – June 20, 2026 Why I joined BetterLife: A Q&A with Robert (Bob) Humphreys Jr. A Mother’s Perspective: World FSHD Day Stories My FSHD Journey: From Fear to Hope, World FSHD Day Stories Chasing Justice and Butterflies: Ed Barocas Reflects on a Life of Purpose, Humor, and Hope Colleen’s Story: World FSHD Day Stories Novartis Announces Positive Biomarker Results for Del-brax in FSHD Avidity’s FORTITUDE-1/2 Trial Avidity’s FORTITUDE-3 Trial Three Years. Ten Countries. One Shared Mission…What We Built Together  Volunteer Spotlight – Rick Whitehead – Knoxville, TN  Why I joined BetterLife: A Q&A with Robert (Bob) Humphreys Jr. Fundraising Grant Opportunities Novartis Announces Positive Biomarker Results for Del-brax in FSHD Current Trials and Studies FSHD University: Navigating Women’s Health with FSHD FSHD University: Project Mercury Update: Three Years of Global Collaboration and What’s Next FSHD University: Working with FSHD: Navigating Vocational Rehabilitation Services St. Louis World FSHD Day Celebration A Glimpse into Mental Health in FSHD: Early Insights from BetterLife Multi-Chapter Meeting: Eastern & Central Zones Multi-Chapter Meeting: Mountain & Pacific Time Zones North Carolina Chapter World FSHD Day Baseball Game