by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
by Kim Shanley We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society. Kicking things off, Michael Ahlers […]
by Sam Feldman If you have FSHD (or are close with someone who does), you probably know that mix of frustration, fear, and “will anything ever actually help?” I’ve been […]
By Leah Lee Originally posted to the Muscular Dystrophy Coalition Facebook Group on July 26, 2025. Loving someone with FSHD means learning to live in constant motion. Everything is always […]
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