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We cover the answers to many genetic testing questions, including where to get a genetic test, on the FSHD Society's dedicated webpage: Genetic Testing.

For a complete list of genetic testing labs worldwide, visit the NCBI Genetic Testing Registry.

US & Canada: To find a genetic counselor, ask your neuromuscular specialist or search www.findageneticcounselor.com

If you still have questions after visiting the webpages above, please submit your inquiry below.

For information on current FSHD trials and studies, please visit the FSHD Society's Current Trials and Studies webpage. You will find a list of all trials and studies currently being conducted on FSHD patients. Each trial and study has its own dedicated webpage with simplified information that has been written and reviewed by our staff and the study team.

Additionally, if you are interested in learning more about clinical trials in general, we have a clinical trial education hub with links to several helpful resources: Clinical Trials Education.

If you still have questions after visiting the webpages above, please submit your inquiry below.

We have a multitude of resources dedicated to early-onset FSHD: Early-onset FSHD.

Included in these resources is a link to our Parents' Roundtable Chapter, which was formed by parents of children with FSHD with the goal of connecting other parents and family members of children with FSHD.

If you still have questions after visiting the webpages above, please submit your inquiry below.

Please explore this helpful resource regarding nutrition for patients with FSHD: Better Nutrition for FSHD.

If you still have questions after visiting the webpage above, please submit your inquiry below.

Our Volunteer Navigator, Wade, published a wonderful blog post on college accessibility that offers a realistic perspective on navigating the accommodation process in higher education: College is Possible, Preparation is Necessary.

Submitting your inquiry below will connect you with Wade.

Please explore any of the blog posts that we have published about pain management over the years:

If you still have questions after visiting the webpages above, please submit your inquiry below.

Please explore any of the blog posts that we have published about assistive technology over the years:

If you still have questions after visiting the webpages above, please submit your inquiry below.

We cover the answers to many care coordination questions on the FSHD Society's dedicated webpage: Coordinating Care.

If you still have questions after visiting the webpage above, please submit your inquiry below.

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