ABOUT
Become a Torch Bearer – our newly named monthly giving program! This is your opportunity to make a larger impact in lighting the way to a cure by supporting the FSHD Society’s goal to have disease-modifying therapies to our families by 2025 with a monthly sustaining gift.
WHY GIVE MONTHLY?
It’s affordable. By giving monthly, you can give what works for you and make an incredible impact throughout the year.
It’s sustained support. Monthly gifts allow us to continue working toward our goal to have disease-modifying therapies to our families by 2025, because we know we have the ongoing support of our Torch Bearers.
It’s rewarding. In addition to knowing you are making a difference in the lives of those affected by FSHD, you will also receive:
• Quarterly updates just for our Torch Bearers
• A Torch Bearer tote bag to show off your support for the Society
• A single point of contact for all your FSHD Society needs
• Access to an “invitation only” CEO webinar twice a year ($100+/month)
HOW YOUR MONTHLY DONATION HELPS US WORK TOWARD OUR MISSION:
• $10 monthly ($120 annually) empowers our chapters to engage, support, and share with our families on a local level.
• $25 monthly ($300 annually) allows a global patient
community to participate in FSHD University, which
is a monthly patient education and empowerment
resource.
• $50 monthly ($600 annually) helps underwrite academic research targeted on FSHD life-altering treatments.
• $100 monthly ($1,200 annually) expands and enhances the global research and pharmaceutical communities, providing expert-led education that expands their knowledge of FSHD.
CONTACT:
Development Coordinator: Julia Wade
Email: Julia.Wade@fshdsociety.org
Phone: (781) 301-7301