ABOUT
Become a Torch Bearer – our newly named monthly giving program! This is your opportunity to make a larger impact in lighting the way to a cure by supporting the FSHD Society’s goal to have disease-modifying therapies to our families by 2025 with a monthly sustaining gift.
WHY GIVE MONTHLY?
It’s affordable. By giving monthly, you can give what works for you and make an incredible impact throughout the year.
It’s sustained support. Monthly gifts allow us to continue working toward our goal to have disease-modifying therapies to our families by 2025, because we know we have the ongoing support of our Torch Bearers.
It’s rewarding. In addition to knowing you are making a difference in the lives of those affected by FSHD, you will also receive:
• Quarterly updates just for our Torch Bearers
• A Torch Bearer tote bag to show off your support for the Society
• A single point of contact for all your FSHD Society needs
• Access to an “invitation only” CEO webinar twice a year ($100+/month)
HOW YOUR MONTHLY DONATION HELPS US WORK TOWARD OUR MISSION:
• $30 monthly ($360 annually) allows a global patient community to participate in FSHD University, a monthly patient-education and empowerment resource so they can live a stronger life with FSHD.
• $60 monthly ($720 annually) helps underwrite academic research targeted on FSHD life-altering treatments, moving us closer to our goal of treatments to families by 2025.
• $90 monthly ($1080 annually) underwrites conference fees to present funded research findings, educating our community of researchers and broadening collaborations, which accelerates progress towards treatments and a cure.
• $120 monthly ($1,440 annually) helps to fund one of our upcoming FSHD 360 Days, a fun, educational day that brings together researchers, clinicians and those affected by FSH muscular dystrophy to learn of the latest in healthcare, research and clinical trials, leading to decreased isolation and greater personal empowerment.