Lighting the Way to a Cure

Loading Events

← Back to Events

Facebook Live

+ Google Map
United States

Oct

30

FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger

FSHD Radio with Alan Brown of NFL films

Oct 30 @ 9:00 pm - 10:00 pm
Facebook Live, United States

Join host Tim Hollenback on October 30, 2019 on Facebook Live for a conversation with the fantastic Alan Brown. Originally scheduled for July 31, the show had to be rescheduled due to technical difficulties. Alan, of Holicong, Pennsylvania, is the director of business development at NFL Films, the company that produces commercials, television programs, feature films, and documentaries for and about the National Football League (NFL). Alan Brown of NFL Films. Alan has FSHD in his family. “My great-grandmother, grandmother, mother and…

Find out more »

Nov

20

FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger

FSHD Radio welcomes Levi Benson and Jenny Hasenjaeger

Nov 20 @ 8:00 pm - 9:00 pm
Facebook Live, United States + Google Map

Jenny Hasenjaeger Levi Benson FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger this month. They share an FSHD diagnosis and a love of music. Levi Benson was featured earlier this year in FSHD Advocate and on our blog. Since the time he performed his first childhood song, “I Love My Lips,” made famous by VeggieTales’ Larry the Cucumber, Levi Benson’s lips have been crooning tunes. Those on the listening end of the Kansas musician's performances have been…

Find out more »

Dec

2

#GivingTuesdayTelethon

GivingTuesday Telethon for FSHD

Dec 2 @ 8:00 am - 9:00 pm
Facebook Live, United States + Google Map

#GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. We are marking the day by holding our first GivingTuesday Telethon. Streamed over Facebook Live, our Telethon host will interview leaders in our community—activists, celebrities, scientists, doctors, people doing awesome things—to raise worldwide awareness of FSHD. See the interview schedule for the GivingTuesday Telethon for FSHD HERE.

Find out more »
+ Export Events