Lighting the Way to a Cure

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Zoom Web Conference

https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 United States
https://zoom.us/j/442453571

Aug

1

FSHD Connecticut Connections

Aug 1, 2019 @ 7:00 pm - 8:30 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 United States

Kathy Senecal and Shawn Welch invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Please note: The August meeting will specifically focus on planning for our October 6th Walk & Roll fundraiser. All are welcome to join! Join from PC, Mac, Linux, iOS or Android: https://zoom.us/j/442453571 Or iPhone one-tap : US: +16699006833,,442453571# or…

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Jan

20

Voice of the Patient Forum Your Role in Drug Development

Webinar on the Voice of the Patient Forum

Jan 20 @ 12:00 pm - 1:00 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 United States

Informational Webinar Our webinar on January 20th at noon U.S. Eastern Time will introduce our Voice of the Patient Forum (taking place on April 21) and answer your questions about how to be involved. This meeting is the FSHD Community’s platform to present testimony by patients and family caregivers and educate the FDA on how FSHD has impacted your life or the life of your loved ones. Your input will result in a Voice of the Patient Report that will…

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Mar

28

Kansas City Chapter Meeting

Mar 28 @ 1:00 pm - 2:00 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 United States
Colorado FSHD Chapter Meeting

Please mark your calendars for our first VIRTUAL Chapter Meeting of 2020! When: Saturday, March 28th 1:00-3:00 (Central) Where: Join from your computer or tablet: https://zoom.us/j/918212805 OR by phone 312-626-6799, Meeting ID: 918 212 805 We look forward to brainstorming about the future! We hope you can join us! ~Kiley Higgs, Kansas City Chapter Director kansascitychapter@fshdsociety.org    

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